front cover of Chronic Pain and the Family
Chronic Pain and the Family
A New Guide
Julie K. Silver M.D.
Harvard University Press, 2004

Chronic pain is the leading cause of disability in the United States, affecting as many as 48 million people in this country alone. It can demoralize and depress both patient and family, especially when there is no effective pain control and no hope for relief. Improperly managed, chronic pain can lead to substance abuse (usually painkillers) and to acute psychological and emotional distress. Pain begets stress and stress begets pain in a wretched downward spiral.

Silver reviews the causes and characteristics of chronic pain and explores its impact on individual family relationships and on the extended family, covering such issues as employment, parenting, childbearing and inheritance, and emotional health. Silver treats aspects of chronic pain not covered in a typical office visit: how men and women differ in their experience of chronic pain, the effect of chronic pain on a toddler's behavior or an older child's performance in school, the risks of dependence on and addiction to pain medications, and practical ways for relatives beyond the immediate family circle to offer help and support to the person in pain.

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front cover of Epilepsy and the Family
Epilepsy and the Family
A New Guide
Richard Lechtenberg M.D.
Harvard University Press, 2002

Epilepsy and the Family: A New Guide updates Richard Lechtenberg’s classic handbook for people with seizure disorders and those closest to them. It offers coping strategies for the wide range of practical and emotional challenges that epilepsy can introduce into the family: marital and sexual difficulties, concerns about pregnancy and inheritance, drug compliance and abuse among teenagers, personality changes and suicide. This new guide addresses the personal questions that adults with epilepsy may be reluctant to ask their physician, and it offers chapters tailored to the special stresses of spouses, parents, and siblings who, like the patient, must live with a seizure disorder.

As many as two and a half million Americans have epilepsy. Thirty percent of them are children under the age of 18. And there are 125,000 newly diagnosed cases each year. A practicing neurologist with decades of clinical experience, Lechtenberg clearly and concisely explains the biology behind this complex and relatively widespread class of diseases. He discusses the various medical conditions that can cause seizures in children and adults and points out that the cause of many seizure disorders is never discovered. Patients and those who care about them will find authoritative but accessible advice on various medications and surgical approaches and the information they need to ask informed questions of their doctors. For the medical professional, this book offers important information on how to better treat the patient with epilepsy by recognizing the needs of the entire family.

This revised edition addresses:

— New drugs and surgical techniques that have been developed in the past 15 years
— Pharmaceutical and non-pharmaceutical treatment strategies
— New clinical data on drug combinations and side effects
— Up-to-date statistics for mortality, reproduction, violent behavior, divorce, and suicide

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front cover of Parkinson’s Disease and the Family
Parkinson’s Disease and the Family
A New Guide
Nutan Sharma, M.D., and Elaine Richman, Ph.D.
Harvard University Press, 2005

Parkinson’s disease is a movement disorder characterized by tremor, stiffness, and slow gait. It affects 500,000 people in the United States, with approximately 50,000 new cases diagnosed annually. But its impact is much wider. Family members with little understanding of the disease often find themselves struggling to help their loved one navigate the complexities of the health care system. Patients wonder, Which treatments are best for me? Will I be able to live on my own? Should I join a drug trial?

In this straightforward, compassionate guide, Nutan Sharma and Elaine Richman address these concerns and more. They provide a thorough review of the etiology, diagnosis, and current treatment of Parkinson’s, with special consideration given to the effect on family dynamics and routines—including the often neglected topics of long-term care and sexual function. The authors also review the pros and cons of various alternative therapies, including nutritional supplements, massage therapy, and traditional Chinese medicine.

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front cover of Spinal Cord Injury and the Family
Spinal Cord Injury and the Family
A New Guide
Michelle J. Alpert M.D.
Harvard University Press, 2008

Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.

Combining Dr. Alpert’s clinical experience with patients’ own stories, Spinal Cord Injury and the Family is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.

The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the “what now?” questions—from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

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front cover of Stroke and the Family
Stroke and the Family
A New Guide
Joel Stein M.D.
Harvard University Press, 2004

A young woman suffers a stroke; she rebuilds her career and personal life, but not before her marriage falls apart. An eighty-year-old man dies unexpectedly of stroke, leaving his grown sons to wonder whether they are genetically predisposed to stroke. A recently retired woman confronts her future with a husband suddenly disabled by stroke. How can she help her husband? Will he ever recover? How will she cope with her own emotional stress?

In Stroke and the Family: A New Guide, Joel Stein shows the many faces of stroke and the people it strikes. To the family just beginning to cope with the aftermath of a stroke, the diagnostic tests, drug regimens, rehabilitation strategies, and varied prognoses can be completely bewildering. Because stroke can affect memory, speech, and movement, the impact on everyday routines and close relationships can be especially intense. Stein has produced a book that allows general readers and nonphysicians working with stroke survivors to make sense of the confusing variety of diagnoses and treatment options, and goes on to explore challenges the recovering stroke patient and the recovering family will face during a long recuperation with an uncertain outcome. Stroke and the Family offers up-to-date information and places the current research findings in context.

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