In Cape Town, South Africa, many people with tuberculosis also use substances. This sets up a seemingly impossible problem: People who use substances are at increased risk of tuberculosis disease; and substance use seems to result in erratic behavior that makes successful treatment of people affected by tuberculosis extremely difficult. People affected don’t get healthy, healthcare providers are frustrated, and families seek to balance love and care for those who are ill with self-protection. How are we to understand this? Where does the responsibility for poor health and healing lie? What are the possibilities for an effective healthcare response? Through a close look at lives and care, Making Uncertainty: Tuberculosis, Substance Use, and Pathways to Health shows how patterns of substance use, tuberculosis disease, and their interaction are shaped by history, social context, and political economy. This, in turn, generates new perspectives on what makes poor health, and what good care might look like.

When ethnomethodologist Albert Robillard began to suffer the  symptoms of motor-neuron disease, he realized he was a living laboratory for revealing the countless taken-for-granted methods people use to produce being together. Meaning of a Disability is a detailed autobiography of the experiences and trained observations of a university professor who became paralyzed in mid-life.

With his loss of speech, Robillard was forced to communicate through a lip-reading system developed by his wife and student assistants. Restricted by this form of communication and his paralysis, he soon learned the frustrations of making his  meaning known. Hospital nurses wrongly anticipated his words. Those who translated for him inevitably distorted his meaning. Most of all, the casual pace of conversational  give-and-take was disrupted. Old friends would leave before Robillard could provide the expected interactional response.

Finding himself isolated due to his lack of both mobility and vocalization, Robillard threw himself into his academic work and began to develop settings and methods where he could satisfactorily interact with others. A researcher and writer experienced in describing the bodily and verbal methods used to coordinate and construct the most ordinary of social forms, Robillard joins in this book both his years of sociological training and his time with illness to talk with moving and illuminating analysis about a  broad range of matters. Moving gracefully from examinations of narratives about disability and illness, the stigmatizing things that healthcare providers unwittingly say to their patients, and communication problems in the intensive care unit, to more personal reflections on anger, isolation, and stories of tragedy, Robillard also discusses disability in the workplace and such seemingly simple topics as computers and vacations. Meaning of a Disability is the personal story of a highly trained observer forced to confront simultaneously the limits of the disabled person's social world and the unspoken assumptions about meaningful interaction -- as he struggles with the daily difficulties of maintaining his identity.

Meaning of a Disability will interest a wide audience, including healthcare professionals, disabled people, and caretakers as well as academics studying ethnomethodology, health and illness, conversation, symbolic interaction, storytelling, and most aspects of lived experience.

Mother in Summer is a collection of poems offering candid, powerful insight into the grief of losing a parent.

Some 400,000 hip fractures occur every year, the vast majority among the elderly; all too often these fractures are associated with death or severe disability. After her mother's double hip fracture, Luisa Margolies immersed herself in identifying and coordinating the services and professionals needed to provide critical care for an elderly person. She soon realized that the American medical system is ill prepared to deal with the long-term care needs of our graying society. The heart of My Mother's Hip is taken up with the author's day-to-day observations as her mother's condition worsened, then improved only to worsen again, while her father became increasingly anxious and disoriented. As both a devoted daughter and a skilled anthropologist, Margolies vividly renders her interactions with physicians, nurses, hospital workers, nursing home administrators, the Medicare bureaucracy, home care providers, and her parents. In the Lessons chapter that follows each episode, she discusses in a broader context the weighty decisions that adult children must make on their parents' behalf and the emotional toll their responsibility takes. Here she addresses the complex practical issues that commonly arise in such situations: understanding the consequences of hip fracture and its treatment, preparing health care proxies and advanced directives, enabling elders to remain at home, and the heartbreaking dilemma of prolonging life. Like many adult children, Margolies learned her lessons about eldercare in the midst of crises. This book is intended to ease the information-gathering and decision-making processes for others involved in eldercare.

The Mythical Bill, a moving and unusual book, is for people who suffer the devastating effects of combat on the psyche, for those who encounter any debilitating disease, and for those who grow up with a father only partially present. McAuliffe’s ear-catching, evocative, and often breathtaking writing forces readers to confront the most terrifying question posed by a parent’s mental illness: will I get it too? Her narrative voice is searching, compassionate, and self-deprecating, but cut through with welcome bits of humor in this daughter’s story of confusion, sadness, and loss.