What is the direct impact that disability studies has on the lives of disabled people today? The editors and contributors to this essential anthology, Barriers and Belonging, provide thirty-seven personal narratives thatexplore what it means to be disabled and why the field of disability studies matters.
The editors frame the volume by introducing foundational themes of disability studies. They provide a context of how institutions—including the family, schools, government, and disability peer organizations—shape and transform ideas about disability. They explore how disability informs personal identity, interpersonal and community relationships, and political commitments. In addition, there are heartfelt reflections on living with mobility disabilities, blindness, deafness, pain, autism, psychological disabilities, and other issues. Other essays articulate activist and pride orientations toward disability, demonstrating the importance of reframing traditional narratives of sorrow and medicalization.
The critical, self-reflective essays in Barriers and Belonging provide unique insights into the range and complexity of disability experience.
Passing—an act usually associated with disguising race—also relates to disability. Whether a person classified as mentally ill struggles to suppress aberrant behavior to appear "normal" or a person falsely claims a disability to gain some advantage, passing is a pervasive and much discussed phenomenon. Nevertheless, Disability and Passing is the first anthology to examine this issue.
The editors and contributors to this volume explore the intersections of disability, race, gender, and sexuality as these various aspects of identity influence each other and make identity fluid. They argue that the line between disability and normality is blurred, discussing disability as an individual identity and as a social category. And they discuss the role of stigma in decisions about whether or not to pass.
Focusing on the United States from the nineteenth century to the present, the essays in Disability and Passing speak to the complexity of individual decisions about passing and open the conversation for broader discussion.
Contributors include: Dea Boster, Allison Carey, Peta Cox, Kristen Harmon, David Linton, Michael Rembis, and the editors.
"Disability Theory is just the book we've been waiting for. Clear, cogent, compelling analyses of the tension between the 'social model' of disability and the material details of impairment; of identity politics and unstable identities; of capability rights and human interdependence; of disability and law, disability as masquerade, disability and sexuality, disability and democracy---they're all here, in beautifully crafted and intellectually startling essays. Disability Theory is a field-defining book: and if you're curious about what 'disability' has to do with 'theory,' it's just the book you've been waiting for, too."
---Michael Bérubé, Pennsylvania State University
"Disability Theory is magisterially written, thoroughly researched, and polemically powerful. It will be controversial in a number of areas and will probably ruffle feathers both in disability studies as well as in realms of cultural theory. And that's all to the good."
---Michael Davidson, University of California, San Diego
"Not only is Disability Theory a groundbreaking contribution to disability studies, it is also a bold, ambitious and much needed revision to a number of adjacent and overlapping fields including cultural studies, literary theory, queer theory, and critical race studies. Siebers has written a powerful manifesto that calls theory to account and forces readers to think beyond our comfort zones."
---Helen Deutsch, University of California, Los Angeles
Intelligent, provocative, and challenging, Disability Theory revolutionizes the terrain of theory by providing indisputable evidence of the value and utility that a disability studies perspective can bring to key critical and cultural questions. Tobin Siebers persuasively argues that disability studies transfigures basic assumptions about identity, ideology, language, politics, social oppression, and the body. At the same time, he advances the emerging field of disability studies by putting its core issues into contact with signal thinkers in cultural studies, literary theory, queer theory, gender studies, and critical race theory.
Tobin Siebers is V. L. Parrington Collegiate Professor, Professor of English Language and Literature, and Professor of Art and Design at the University of Michigan.
A volume in the series Corporealities: Discourses of Disability
Illustration: Pattern by Riva Lehrer, acrylic on panel, 18" X 24", 1995
In an era when human lives are increasingly measured and weighed in relation to the medical and scientific, notions of what is “normal” have changed drastically. While it is no longer useful to think of a person’s particular race, gender, sexual orientation, or choice as “normal,” the concept continues to haunt us in other ways. In The End of Normal, Lennard J. Davis explores changing perceptions of body and mind in social, cultural, and political life as the twenty-first century unfolds. The book’s provocative essays mine the worlds of advertising, film, literature, and the visual arts as they consider issues of disability, depression, physician-assisted suicide, medical diagnosis, transgender, and other identities.
Using contemporary discussions of biopower and biopolitics, Davis focuses on social and cultural production—particularly on issues around the different body and mind. The End of Normal seeks an analysis that works comfortably in the intersection between science, medicine, technology, and culture, and will appeal to those interested in cultural studies, bodily practices, disability, science and medical studies, feminist materialism, psychiatry, and psychology.
“[A]n important, prescient, and necessary contribution…a kind of litmus test for the efficacy of Foucault’s concepts in the study of disability, concepts that lead to a refusal of the biological essentialism implied in the disability/impairment binary.”
—Foucault Studies
“Tremain has done an exceptional job at organizing and procuring important, rigorously argued, and entertaining essays…. This book should be a mandatory read for anyone interested in contemporary philosophical debates surrounding the experience of disability."
—Essays in Philosophy
“A beautiful exploration of how Foucault’s analytics of power and genealogies of discursive knowledges can open up new avenues for thinking critically about phenomena that many of us take to be inevitable and thus new ways of resisting and possibly at times redirecting the forces that shape our lives. Every scholar, every person with an interest in Foucault or in political theory generally, needs to read this book.”
—Ladelle McWhorter, University of Richmond
Disability and gender, terms that have previously seemed so clear-cut, are becoming increasingly complex in light of new politics and scholarship. These words now suggest complicated sets of practices and ways of being.
Contributors to this innovative collection explore the intersection of gender and disability in the arts, consumer culture, healing, the personal and private realms, and the appearance of disability in the public sphere—both in public fantasies and in public activism. Beginning as separate enterprises that followed activist and scholarly paths, gender and disability studies have reached a point where they can move beyond their boundaries for a common landscape to inspire new areas of inquiry. Whether from a perspective in the humanities, social sciences, sciences, or arts, the shared subject matter of gender and disability studies—the body, social and cultural hierarchy, identity, discrimination and inequality, representation, and political activism—insistently calls for deeper conversation. This volume provides fresh findings not only about the discrimination practiced against women and people with disabilities, but also about the productive parallelism between these two categories.
Richard III will always be central to English disability history as both man and myth—a disabled medieval king made into a monster by his nation’s most important artist.
In Richard III’s Bodies from Medieval England to Modernity, Jeffrey Wilson tracks disability over 500 years, from Richard’s own manuscripts, early Tudor propaganda, and x-rays of sixteenth-century paintings through Shakespeare’s soliloquies, into Samuel Johnson’s editorial notes, the first play produced by an African American Theater company, Freudian psychoanalysis, and the rise of disability theater. For Wilson, the changing meanings of disability created through shifting perspectives in Shakespeare’s plays prefigure a series of modern attempts to understand Richard’s body in different disciplinary contexts—from history and philosophy to sociology and medicine.
While theorizing a role for Shakespeare in the field of disability history, Wilson reveals how Richard III has become an index for some of modernity’s central concerns—the tension between appearance and reality, the conflict between individual will and external forces of nature and culture, the possibility of upward social mobility, and social interaction between self and other, including questions of discrimination, prejudice, hatred, oppression, power, and justice.
What happens when cochlear implants, heralded as the first successful bionic technologies, make their way around the globe and are provided by both states and growing private markets? As Sensory Futures follows these implants from development to domestication and their unequal distribution in India, Michele Ilana Friedner explores biotechnical intervention in the realm of disability and its implications for state politics in the Global South.
A signing and speaking deaf bilateral cochlear implant user, Friedner weaves personal reflections into this fine-grained ethnography of everyday negotiations, activist aspirations, and the space of the family. She places sensory anthropology in conversation with disability studies to analyze how normative sensoria are cultivated and the pursuit of listening and speaking capability is enacted. She argues that the conditions of potentiality that have emerged through cochlear implantation have, in fact, resulted in ever narrower understandings of future life possibilities. Rejecting sensory hierarchies that privilege audition, Friedner calls for multisensory, multimodal, and multipersonal ways of relating to the world.
Sensory Futures explores deaf people’s desires to create habitable worlds and grapple with what their futures might look like, in India and beyond, amid a surge in both biotechnical interventions and disability rights activism. With implications for a broad range of disability experiences, this sensitive, in-depth research focuses on the specific experiences of deaf people, both children and adults, and the structural, political, and social possibilities offered by both biotechnological and social “cures.”
Engaging interdisciplinary conversations from the rhetoric of health and medicine, disability studies, narrative medicine, and sociology, Kessler takes an innovative look at how stigma functions on individual, interpersonal, and societal levels. In doing so, Kessler reveals how stories and lived experiences have much to teach us not only about how stigma functions but also about how it can be dismantled.
Developing a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human
Twentieth-century neuroscience fixed the brain as the basis of consciousness, the self, identity, individuality, even life itself, obscuring the fundamental relationships between bodies and the worlds that they inhabit. In Unraveling, Matthew J. Wolf-Meyer draws on narratives of family and individual experiences with neurological disorders, paired with texts by neuroscientists and psychiatrists, to decenter the brain and expose the ableist biases in the dominant thinking about personhood.
Unraveling articulates a novel cybernetic theory of subjectivity in which the nervous system is connected to the world it inhabits rather than being walled off inside the body, moving beyond neuroscientific, symbolic, and materialist approaches to the self to focus instead on such concepts as animation, modularity, and facilitation. It does so through close readings of memoirs by individuals who lost their hearing or developed trauma-induced aphasia, as well as family members of people diagnosed as autistic—texts that rethink modes of subjectivity through experiences with communication, caregiving, and the demands of everyday life.
Arguing for a radical antinormative bioethics, Unraveling shifts the discourse on neurological disorders from such value-laden concepts as “quality of life” to develop an inclusive model of personhood that honors disability experiences and reconceptualizes the category of the human in all of its social, technological, and environmental contexts.
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