For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.
The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.
Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.
The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.
Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.
Dennis Hale reached the dock just in time to see the Daniel J. Morrell heading out to open waters, a 600-foot freighter that had plied the waters for sixty years, carrying ore from Minnesota’s Iron Range to steel firms around the Great Lakes. The twenty-six-year-old watchman had, quite literally, missed the boat—which meant scrambling to rejoin the Morrell at its next stop or forfeiting a good chunk of his pay package. Seventy-two hours later, Hale would find himself clinging to a life raft alongside the frozen bodies of his crewmates in the violent waves of Lake Huron. The boat would not be reported missing for another twenty-seven hours and by the time the life raft was found, Dennis Hale would remain as the sole survivor of the wreck of the Daniel J. Morrell.
This is life-and-death drama on the inland sea as only Michael Schumacher can tell it. In Torn in Two the great Lakes historian recreates the circumstances surrounding the terrible storm of November 29, 1966, that broke the mighty freighter in half, sending twenty-five of the Morrell’s twenty-nine-man crew to their deaths and consigning the surviving four to the freezing raft where all but Hale would perish. At the heart of Torn in Two are the terrible hours spent by Hale on the life raft with his crewmen, clinging to life for thirty-eight hours in freezing temperatures and wearing only a peacoat, life jacket, and boxer shorts. The fight to save Hale and find the others, the Coast Guard hearings into what happened, the discovery of the wreckage—Schumacher’s vivid narrative captures every harrowing detail and curious fact of the Morrell’s demise, finally doing justice to this epic shipwreck fifty years past.
Contributors. Abolade Adeniji, John T. Chalcraft, Duane J. Corpis, Ian Christopher Fletcher, Yaël Simpson Fletcher, Matthew Guterl, Rafael M. Hernández, Vinay Lal, R. J. Lambrose, Mukoma wa Ngugi, Masao Nishikawa, Takamitsu Ono, Nalini Persaud, Alka Roy, Micol Seigel, Christine Skwiot, Karen Sotiropoulos, Ulrike Strasser, Vijaya Teelock, Heidi Tinsman, Jyotsna Uppal, Merry Wiesner-Hanks
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