A Wall Street Journal Top Ten Book of the Year
A First Things Books for Christmas Selection
Winner of the Expanded Reason Award
“This important work of moral philosophy argues that we are, first and foremost, embodied beings, and that public policy must recognize the limits and gifts that this entails.”
—Wall Street Journal
The natural limits of the human body make us vulnerable and dependent on others. Yet law and policy concerning biomedical research and the practice of medicine frequently disregard these stubborn facts. What It Means to Be Human makes the case for a new paradigm, one that better reflects the gifts and challenges of being human.
O. Carter Snead proposes a framework for public bioethics rooted in a vision of human identity and flourishing that supports those who are profoundly vulnerable and dependent—children, the disabled, and the elderly. He addresses three complex public matters: abortion, assisted reproductive technology, and end-of-life decisions. Avoiding typical dichotomies of conservative-liberal and secular-religious, Snead recasts debates within his framework of embodiment and dependence. He concludes that if the law is built on premises that reflect our lived experience, it will provide support for the vulnerable.
“This remarkable and insightful account of contemporary public bioethics and its individualist assumptions is indispensable reading for anyone with bioethical concerns.”
—Alasdair MacIntyre, author of After Virtue
“A brilliantly insightful book about how American law has enshrined individual autonomy as the highest moral good…Highly thought-provoking.”
—Francis Fukuyama, author of Identity
Disability and literacy are often understood as incompatible. Disability is taken to be a sign of illiteracy, and illiteracy to be a sign of disability. These oppositions generate damaging consequences for disabled students (and those labeled as such) who are denied full literacy education and for nonliterate adults who are perceived as lacking intelligence, knowledge, and ability. What It Means to Be Literate turns attention to disabled writers themselves, exposing how the cultural oppositions between disability and literacy affect how people understand themselves as literate and even as fully human. Drawing on interviews with individuals who have experienced strokes and brain injuries causing the language disability aphasia, Elisabeth L. Miller argues for the importance of taking a disability materiality approach to literacy that accounts for the embodied, material experiences of disabled people writing and reading. This approach reveals how aphasic writers’ literate practices may reinscribe, challenge, or even exceed scripts around the body in literacy (how brains, hands, eyes, mouths, voice boxes, and more operate to make reading and writing happen) as well as what and how spaces, activities, tools, and materials matter in literate practice. Miller pushes for a deeper understanding of how individuals’ specific bodies always matter for literate practice and identity, enabling researchers to better account for, and counter, ableist literate norms.
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