Results by title

Are our identities attached to our faces? If so, what happens when the face connected to the self is gone forever—or replaced? In Face/On, Sharrona Pearl investigates the stakes for changing the face–and the changing stakes for the face—in both contemporary society and the sciences.
 
The first comprehensive cultural study of face transplant surgery, Face/On reveals our true relationships to faces and facelessness, explains the significance we place on facial manipulation, and decodes how we understand loss, reconstruction, and transplantation of the face. To achieve this, Pearl draws on a vast array of sources: bioethical and medical reports, newspaper and television coverage, performances by pop culture icons, hospital records, personal interviews, films, and military files. She argues that we are on the cusp of a new ethics, in an opportune moment for reframing essentialist ideas about appearance in favor of a more expansive form of interpersonal interaction. Accessibly written and respectfully illustrated, Face/On offers a new perspective on face transplant surgery as a way to consider the self and its representation as constantly present and evolving. Highly interdisciplinary, this study will appeal to anyone wishing to know more about critical interventions into recent medicine, makeover culture, and the beauty industry.
 

This book provides the first in-depth examination of the experiences of a large sampling of faculty members of color in nursing, medicine, pharmacy, and dentistry schools across the United States. Anchoring her study in grounded theory, Dena Hassouneh draws on extraordinary interviews with one hundred diverse faculty members—together with rich contextual data—to illuminate the deeply entrenched cultural and institutional challenges to equity that they confront. She also presents practical strategies to overcome those challenges. The book documents the ways in which faculty members of color are excluded from full participation in their laboratory or department; yet Hassouneh’s research shows that faculty of color can survive and even thrive. The interviews and data clearly reveal both the social, educational, and departmental contexts that determine satisfaction and success in recruitment and advancement and the impact that faculty of color have had on their students, peers, patients, schools, and communities.

Faith and the Pursuit of Health explores how Pentecostal Christians manage chronic illness in ways that sheds light on health disparities and social suffering in Samoa, a place where rates of obesity and related cardiometabolic disorders have reached population-wide levels. Pentecostals grapple with how to maintain the health of their congregants in an environment that fosters cardiometabolic disorders. They find ways to manage these forms of sickness and inequality through their churches and the friendships developed within these institutions. Examining how Pentecostal Christianity provides many Samoans with tools to manage day-to-day issues around health and sickness, Jessica Hardin argues for understanding the synergies between how Christianity and biomedicine practice chronicity. 

Our children mean the world to us. They are so central to our hopes and dreams that we will do almost anything to keep them healthy, happy, and safe. What happens, then, when a child has serious problems? In Family Trouble, a compelling portrait of upheaval in family life, sociologist Ara Francis tells the stories of middle-class men and women whose children face significant medical, psychological, and social challenges. 
 
Francis interviewed the mothers and fathers of children with such problems as depression, bi-polar disorder, autism, learning disabilities, drug addiction, alcoholism, fetal alcohol syndrome, and cerebral palsy. Children’s problems, she finds, profoundly upset the foundations of parents’ everyday lives, overturning taken-for-granted expectations, daily routines, and personal relationships. Indeed, these problems initiated a chain of disruption that moved through parents’ lives in domino-like fashion, culminating in a crisis characterized by uncertainty, loneliness, guilt, grief, and anxiety. Francis looks at how mothers and fathers often differ in their interpretation of a child’s condition, discusses the gendered nature of child rearing, and describes how parents struggle to find effective treatments and to successfully navigate medical and educational bureaucracies. But above all, Family Trouble examines how children’s problems disrupt middle-class dreams of the “normal” family. It captures how children’s problems “radiate” and spill over into other areas of parents’ lives, wreaking havoc even on their identities, leading them to reevaluate deeply held assumptions about their own sense of self and what it means to achieve the good life.  

Engagingly written, Family Trouble offers insight to professionals and solace to parents. The book offers a clear message to anyone in the throes of family trouble: you are in good company, and you are not as different as you might feel...

In Fevered Measures, John Mckiernan-González examines public health campaigns along the Texas-Mexico border between 1848 and 1942 and reveals the changing medical and political frameworks U.S. health authorities used when facing the threat of epidemic disease. The medical borders created by these officials changed with each contagion and sometimes varied from the existing national borders. Federal officers sought to distinguish Mexican citizens from U.S. citizens, a process troubled by the deeply interconnected nature of border communities. Mckiernan-González uncovers forgotten or ignored cases in which Mexicans, Mexican Americans, African Americans, and other groups were subject to—and sometimes agents of—quarantines, inspections, detentions, and forced-treatment regimens. These cases illustrate the ways that medical encounters shaped border identities before and after the Mexican Revolution. Mckiernan-González also maintains that the threat of disease provided a venue to destabilize identity at the border, enacted processes of racialization, and re-legitimized the power of U.S. policymakers. He demonstrates how this complex history continues to shape and frame contemporary perceptions of the Latino body today.

In the first decade of the AIDS epidemic, New York City was struck like no other. By the early nineties, it was struggling with more known cases than the next forty most infected cities, including San Francisco, combined.

Fighting for Our Lives is the first comprehensive social history of New York's AIDS community-a diverse array of people that included not only gay men, but also African Americans, Haitians, Latinos, intravenous drug users, substance abuse professionals, elite supporters, and researchers. Looking back over twenty-five years, Susan Chambré focuses on the ways that these disparate groups formed networks of people and organizations that-both together and separately-supported persons with AIDS, reduced transmission, funded research, and in the process, gave a face to an epidemic that for many years, whether because of indifference, homophobia, or inefficiency, received little attention from government or health care professionals.

Beyond the limits of New York City, and even AIDS, this case study also shows how any epidemic provides a context for observing how societies respond to events that expose the inadequacies of their existing social and institutional arrangements. By drawing attention to the major faults of New York's (and America's) response to a major social and health crisis at the end of the twentieth century, the book urges more effective and sensitive actions-both governmental and civil-in the future.

After the great pandemic of 1348, the plague became endemic in Europe, affecting life at every level for more than three hundred years. In attempting to fight the dread enemy, the North Italian states had developed, by the early sixteenth century, a highly sophisticated system of public health. Special permanent magistracies combining legislative and executive powers were established to administer all public health matters.
    In this volume, Carlo M. Cipolla throws new light on the subject, utilizing newly uncovered and significant archival material.
    In the first essay, the author analyzes the complex set of interrelationships that existed between theory and practice in Renaissance epidemiology. The significance of this essay goes beyond the history of public health and extends to the larger history of science.
    In the second essay, Cipolla studies a case in which health matters became the object of intense diplomatic activity. In that instance, fully sovereign states envisaged interstate controls and relinquished discretionary powers for the sake of the “common health.” Although the concerted effort was short-lived, it does represent an attempt at international health cooperation that was unmatched for another two centuries, until the first International Sanitary Conference, held in Paris in 1851.
    In the third essay, unusually detailed statistical documentation allows the author to analyze in detail the demographic, economic, and social aspects of the fight against the plague in a Tuscan city—Pistoia—during the epidemic of 1630–31.
    A richly documented appendix, forming an essay in itself, illustrates present knowledge of the clinical, pathological, and epidemiological features of the plague in the sixteenth and seventeenth centuries in Europe.

 

Today most people die gradually, from incremental illnesses, rather than from the heart attacks or fast-moving diseases that killed earlier generations. Given this new reality, the essays in Final Acts explore how we can make informed and caring end-of-life choices for ourselves and for those we loveùand what can happen without such planning.

Contributors include patients, caretakers, physicians, journalists, lawyers, social workers, educators, hospital administrators, academics, psychologists, and a poet, and among them are ethicists, religious believers, and nonbelievers. Some write moving, personal accounts of "good" or 'bad" deaths; others examine the ethical, social, and political implications of slow dying. Essays consider death from natural causes, suicide, and aid-in-dying (assisted suicide).

Writing in a style free of technical jargon, the contributors discuss documents that should be prepared (health proxy, do-not-resuscitate order, living will, power of attorney); decision-making (over medical interventions, life support, hospice and palliative care, aid-in-dying, treatment location, speaking for those who can no longer express their will); and the roles played by religion, custom, family, friends, caretakers, money, the medical establishment, and the government.

For those who yearn for some measure of control over death, the essayists in Final Acts, from very different backgrounds and with different personal and professional experiences around death and dying, offer insight and hope.

Albert Einstein remains the quintessential icon of modern genius. Like Newton and many others, his seminal work in physics includes the General Theory of Relativity, the Absolute Nature of Light, and perhaps the most famous equation of all time: E=mc2.
 
Following his death in 1955, Einstein’s brain was removed and preserved, but has never been fully or systematically studied. In fact, the sections are not even all in one place, and some are mysteriously unaccounted for! In this compelling tale, Frederick E. Lepore delves into the strange, elusive afterlife of Einstein’s brain, the controversy surrounding its use, and what its study represents for brain and/or intelligence studies. 

Carefully reacting to the skepticism of 21st century neuroscience, Lepore more broadly examines the philosophical, medical, and scientific implications of brain-examination. Is the brain simply a computer? If so, how close are we to artificially creating a human brain? Could scientists create a second Einstein? This “biography of a brain” attempts to answer these questions, exploring what made Einstein’s brain anatomy exceptional, and how “found” photographs--discovered more than a half a century after his death--may begin to uncover the nature of genius.

Obstetric fistula is a birthing injury caused by prolonged obstructed labor that results in urinary and fecal incontinence. It is nearly non-existent in the Global North. In contrast Niger, in West Africa, has one of the highest rates of fistula in the world. In Western humanitarian and media narratives, fistula is presented as deeply stigmatizing, resulting in divorce, abandonment by kin, exile from communities, depression and suicide. In Fistula Politics, Alison Heller illustrates the inaccuracy of these popular narratives and shows how they serve the interests not of the women so affected, but of humanitarian organizations, the media, and local clinics.  

The 1960s revolutionized American contraceptive practice. Diaphragms, jellies, and condoms with high failure rates gave way to newer choices of the Pill, IUD, and sterilization. Fit to Be Tied provides a history of sterilization and what would prove to become, at once, socially divisive and a popular form of birth control.

During the first half of the twentieth century, sterilization (tubal ligation and vasectomy) was a tool of eugenics. Individuals who endorsed crude notions of biological determinism sought to control the reproductive decisions of women they considered "unfit" by nature of race or class, and used surgery to do so. Incorporating first-person narratives, court cases, and official records, Rebecca M. Kluchin examines the evolution of forced sterilization of poor women, especially women of color, in the second half of the century and contrasts it with demands for contraceptive sterilization made by white women and men. She chronicles public acceptance during an era of reproductive and sexual freedom, and the subsequent replacement of the eugenics movement with "neo-eugenic" standards that continued to influence American medical practice, family planning, public policy, and popular sentiment.

What happens when a baby is born with “ambiguous” genitalia or a combination of “male” and “female” body parts? Clinicians and parents in these situations are confronted with complicated questions such as whether a girl can have XY chromosomes, or whether some penises are “too small” for a male sex assignment. Since the 1950s, standard treatment has involved determining a sex for these infants and performing surgery to normalize the infant’s genitalia. Over the past decade intersex advocates have mounted unprecedented challenges to treatment, offering alternative perspectives about the meaning and appropriate medical response to intersexuality and driving the field of those who treat intersex conditions into a deep crisis. Katrina Karkazis offers a nuanced, compassionate picture of these charged issues in Fixing Sex, the first book to examine contemporary controversies over the medical management of intersexuality in the United States from the multiple perspectives of those most intimately involved.

Drawing extensively on interviews with adults with intersex conditions, parents, and physicians, Karkazis moves beyond the heated rhetoric to reveal the complex reality of how intersexuality is understood, treated, and experienced today. As she unravels the historical, technological, social, and political forces that have culminated in debates surrounding intersexuality, Karkazis exposes the contentious disagreements among theorists, physicians, intersex adults, activists, and parents—and all that those debates imply about gender and the changing landscape of intersex management. She argues that by viewing intersexuality exclusively through a narrow medical lens we avoid much more difficult questions. Do gender atypical bodies require treatment? Should physicians intervene to control the “sex” of the body? As this illuminating book reveals, debates over treatment for intersexuality force reassessment of the seemingly natural connections between gender, biology, and the body.

Flatlined lifts the veil of secrecy on twenty-first century health care and delves into the realities of good people caught in a bad medical system. Dr. Guy L. Clifton, a practitioner as well as a policy advocate, reveals first-hand accounts of needless tragedy, such as the young man who died after a car wreck for lack of a bed in a qualified hospital and the surgeon who was dejected by the scarcity of resources needed to enable him to perform heart surgery on an uninsured man.

Arguing that a lack of coordinated care and quality medical practice benchmarks result in high levels of redundancy and ineffectiveness, Clifton proposes that the key to reducing health care costs, improving quality, and financially protecting the uninsured, is to reduce wastefulness, and offers a solution for achieving success.

Flatlined sounds the warning call: By 2018 Medicare and Medicaid will consume about one-third of the federal budget. American businesses now pay three times as much of their payroll for health care as global competitors, expected to worsen as health care grows at twice the rate of the U.S. economy. Based on his years of experience in policy and medicine, Clifton offers an attainable solution through the development of an American Medical Quality System.

On its initial publication, Forgive and Remember emerged as the definitive study of the training and lives of young surgeons. Now with an extensive new preface, epilogue, and appendix by the author, reflecting on the changes that have taken place since the book's original publication, this updated second edition of Charles L. Bosk's classic study is as timely as ever.

Much has changed in the lives of children, and in the health care provided to them, over the past century. Formative Years explores how children's lives have become increasingly medicalized, traces the emergence of the fields of pediatrics and child health, and offers fascinating case studies of important and timely issues.

With contributions from historians and physicians, this collection illuminates some of the most important transformations in children's health in the United States since the 1880s. Opening with a history of pediatrics as a medical specialty, the book addresses such topics as the formulation of normal growth curves, Better Babies contests at county fairs, the "discovery" of the sexual abuse of children, and the political radicalism of the founder of pediatrics, Dr. Abraham Jacobi.

One of the first long-term historical and analytical overviews of pediatrics and child health in the twentieth century, Formative Years will be a welcome addition to several fields, including the history of medicine and technology, the history of childhood, modern U.S. history, women's history, and American studies. It also has ramifications for policymakers concerned with child welfare and development and poses important questions about the direction of children's health in the twenty-first century.

Alexandra Minna Stern is Associate Director of the Center for the History of Medicine and Assistant Professor of Obstetrics and Gynecology and American Culture at the University of Michigan. Howard Markel is the George Edward Wantz Professor of the History of Medicine, Professor of Pediatrics and Communicable Diseases, and Professor of History at the University of Michigan, and Director of the Center for the History of Medicine.

What happens to pregnant women when the largest country in the world implements a global health policy aimed at reorganizing hospitals and re- training health care workers to promote breastfeeding? Since 1992, the Chinese government has led the world in reorganizing more than 7,000 hospitals into “Baby- Friendly” hospitals. The initiative’s goal, overseen by UNICEF and the World Health Organization, is to promote the practice of breastfeeding by reorganizing hospital routines, spaces, and knowledge in maternity wards and obstetrics clinics. At the same time, China’s hospitals in the mid- 1990s operated as sites where the effects of economic reform and capitalism increasingly blurred the boundaries between state imperatives to produce healthy future citizens and the flexibility accorded individuals through their participation in an emerging consumer culture.

Formulas for Motherhood follows a group of women over eighteen months as they visited a Beijing Baby- Friendly Hospital over the course of their pregnancies and throughout their postpartum recoveries. The book shows how the space of the hospital operates as a microcosm of the larger social, political, and economic forces that urban Chinese women navigate in the process of becoming a mother. Relations between biomedical practices, heightened expectations of femininity and sexuality demanded by a consumer culture, alongside international and national agendas to promote maternal and child health, reveal new agents of maternal governance emerging at the very moment China’s economy heats up. This ethnography provides insight into how women’s creative pragmatism in a rapidly changing society leads to their views and decisions about motherhood.

As science penetrates the secrets of nature, with each discovery generating new questions, Mary Shelley's Frankenstein will sound its note of warning. Many scientific developments have provoked references to Frankenstein, a story that, for nearly two centuries, has gripped our imaginations and haunted our nightmares. How can society balance the benefits of medical discoveries against the ethical or spiritual questions posed?

Frankenstein: Penetrating the Secrets of Nature accompanies a traveling exhibit of the same name. This lavishly illustrated volume begins by highlighting Shelley's novel and the context in which she conceived it. It next focuses on the redefinition of the Frankenstein myth in popular culture. Here, the fate of the monster becomes a moral lesson illustrating the punishment for ambitious scientists who seek to usurp the place of God by creating life. The final section examines the continuing power of the Frankenstein story to articulate present-day concerns raised by new developments in biomedicine such as cloning and xenografting (the use of animal organs in human bodies), and the role scientists and citizens play in determining acceptable limits of scientific and medical advances.

At the turn of the twentieth century, Frederick Novy was the leader among a new breed of full-time bacteriologists at American medical schools. Although historians have examined bacteriologic work done in American health department laboratories, there has been little examination of similar work completed within U.S. medical schools during this period.
 
In Frederick Novy and the Development of Bacteriology in Medicine, medical historian, medical researcher, and clinician Powel H. Kazanjian uses Novy’s archived letters, laboratory notebooks, lecture notes, and published works to examine medical research and educational activities at the University of Michigan and other key medical schools during a formative period in modern medical science.
 

 
 
      John Duffy's classic history, formerly titled The Healers, has
        been thoroughly revised and updated for this second edition, which includes
        new chapters on women and minorities in medicine and on the challenges
        currently facing the health care field.
      "This remains the only comprehensive history of American medicine.
        The treatment of the emergence of modern medicine and the flowering of
        surgery is especially fresh and well done. As one of the respected scholars
        in our profession, John Duffy has again demonstrated his wide knowledge
        of the subject."
        -- Thomas N. Brunner, author of To the Ends of the Earth: Women's
        Search for Education in Medicine
 

From Madness to Mental Health neither glorifies nor denigrates the contributions of psychiatry, clinical psychology, and psychotherapy, but rather considers how mental disorders have historically challenged the ways in which human beings have understood and valued their bodies, minds, and souls.

Greg Eghigian has compiled a unique anthology of readings, from ancient times to the present, that includes Hippocrates; Julian of Norwich's Revelations of Divine Love, penned in the 1390s; Dorothea Dix; Aaron T. Beck; Carl Rogers; and others, culled from religious texts, clinical case studies, memoirs, academic lectures, hospital and government records, legal and medical treatises, and art collections. Incorporating historical experiences of medical practitioners and those deemed mentally ill, From Madness to Mental Health also includes an updated bibliography of first-person narratives on mental illness compiled by Gail A. Hornstein.

From the early 1980s, the U.S. environmental breast cancer movement has championed the goal of eradicating the disease by emphasizing the importance of reducing—even eliminating exposure to chemicals and toxins. From Pink to Green chronicles the movement's disease prevention philosophy from the beginning.

Challenging the broader cultural milieu of pink ribbon symbolism and breast cancer "awareness" campaigns, this movement has grown from a handful of community-based organizations into a national entity, shaping the cultural, political, and public health landscape. Much of the activists' everyday work revolves around describing how the so called "cancer industry" downplays possible environmental links to protect their political and economic interests and they demand that the public play a role in scientific, policy, and public health decision-making to build a new framework of breast cancer prevention.

From Pink to Green successfully explores the intersection between breast cancer activism and the environmental health sciences, incorporating public and scientific debates as well as policy implications to public health and environmental agendas.

From Popular Medicine to Medical Populism presents the history of medical practice in Costa Rica from the late colonial era—when none of the fifty thousand inhabitants had access to a titled physician, pharmacist, or midwife—to the 1940s, when the figure of the qualified medical doctor was part of everyday life for many of Costa Rica’s nearly one million citizens. It is the first book to chronicle the history of all healers, both professional and popular, in a Latin American country during the national period.
Steven Palmer breaks with the view of popular and professional medicine as polar opposites—where popular medicine is seen as representative of the authentic local community and as synonymous with oral tradition and religious and magical beliefs and professional medicine as advancing neocolonial interests through the work of secular, trained academicians. Arguing that there was significant and formative overlap between these two forms of medicine, Palmer shows that the relationship between practitioners of each was marked by coexistence, complementarity, and dialogue as often as it was by rivalry. Palmer explains that while the professionalization of medical practice was intricately connected to the nation-building process, the Costa Rican state never consistently displayed an interest in suppressing the practice of popular medicine. In fact, it persistently found both tacit and explicit ways to allow untitled healers to practice. Using empirical and archival research to bring people (such as the famous healer or curandero Professor Carlos Carbell), events, and institutions (including the Rockefeller Foundation) to life, From Popular Medicine to Medical Populism demonstrates that it was through everyday acts of negotiation among agents of the state, medical professionals, and popular practitioners that the contours of Costa Rica’s modern, heterogeneous health care system were established.

From Residency to Retirement tells the stories of twenty American doctors over the last half century, which saw a period of continuous, turbulent, and transformative changes to the U.S. health care system. The cohort’s experiences are reflective of the generation of physicians who came of age as presidents Carter and Reagan began to focus on costs and benefits of health services.
 
Mizrahi observed and interviewed these physicians in six timeframes ending in 2016. Beginning with medical school in the mid-1970s, these physicians reveal the myriad fluctuations and uncertainties in their professional practice, working conditions, collegial relationships, and patient interactions. In their own words, they provide a “view from the front lines” both in academic and community settings. They disclose the satisfactions and strains in coping with macro policies enacted by government and insurance companies over their career trajectory.
 
They describe their residency in internal medicine in a large southern urban medical center as a “siege mentality” which lessened as they began their careers, in Getting Rid of Patients, the title of Mizrahi’s first book (1986). As these doctors moved on in their professional lives more of their experiences were discussed in terms of dissatisfaction with financial remuneration, emotional gratification, and intellectual fulfillment. Such moments of career frustration, however, were also interspersed with moments of satisfaction at different stages of their medical careers. Particularly revealing was whether they were optimistic about the future at each stage of their career and whether they would recommend a medical career to their children. Mizrahi's subjects also divulge their private feelings of disillusionment and fear of failure given the malpractice epidemic and lawsuits threatened or actually brought against so many doctors. Mizrahi’s work, covering almost fifty years, provides rarely viewed insights into the lives of physicians over a professional life span.

One of the twentieth century’s most controversial sexologists—or “fuckologists,” to use his own memorable term—John Money was considered a trailblazing scientist and sexual libertarian by some, but damned by others as a fraud and a pervert.  Money invented the concept of gender in the 1950s, yet fought its uptake by feminists. He backed surgical treatments for transsexuality, but argued that gender roles were set by reproductive capacity. He shaped the treatment of intersex, advocating experimental sex changes for children with ambiguous genitalia. He pioneered drug therapy for sex offenders, yet took an ambivalent stance towards pedophilia. In his most publicized case study, Money oversaw the reassignment of David Reimer as female following a circumcision accident in infancy. Heralded by many as proof that gender is pliable, the case was later discredited when Reimer revealed that he had lived as a male since his early teens.

In Fuckology, the authors contextualize and interrogate Money's writings and practices. The book focuses on his three key diagnostic concepts, “hermaphroditism,” “transsexualism,” and “paraphilia,” but also addresses his lesser-known work on topics ranging from animal behavior to the philosophy of science. The result is a comprehensive collection of new insights for researchers and students within cultural, historical, and gender studies, as well as for practitioners and activists in sexology, psychology, and patient rights.

Future Medicine is an investigation into the clinical, legal, ethical, and regulatory changes occurring in our health care system as a result of the developing field of Complimentary and Alternative Medicine (CAM). Here Michael H. Cohen describes the likely evolution of the legal system and the health care system at the crossroads of developments in the way human beings care for body, mind, emotions, environment, and soul.

Through the use of fascinating and relevant case studies, Cohen presents stimulating questions that will challenge academics, intellectuals, and all those interested in the future of health care. In concise, evocative strokes, the book lays the foundation for a novel synthesis of ideas from such diverse disciplines as transpersonal psychology, political philosophy, and bioethics. Providing an exploration of regulatory conundrums faced by many healing professionals, Cohen articulates the value of expanding our concept of health care regulation to consider not only goals of fraud control and quality assurance, but also health care freedom, integration of global medicine, and human transformation.

Future Medicine provides a fair-minded, illuminating, and honest discussion that will interest hospice workers, pastoral counselors, and psychotherapists, as well as bioethicists, physicians and allied health care providers, complementary and alternative medical providers (such as chiropractors, acupuncturists, naturopaths, massage therapists, homeopaths, and herbalists), and attorneys, hospital administrators, health care executives, and government health care workers.

Michael H. Cohen is Director for Legal Programs, the Center for Research and Education in Complementary and Integrative Medical Therapies, Beth Israel Deaconess Medical Center, Harvard Medical School.