137 books match the query 'Patients' and 5 start with h

cover of Heart 2 Heart: Stories from Patients with Left Ventricular Assist Devices

Heart 2 Heart

Stories from Patients with Left Ventricular Assist Devices

Edited by Ruth Halben, M.S.W.

Michigan Publishing Services, 2016

Heart 2 Heart brings together stories of patients who suffered from a serious heart condition and therefore received an LVAD (Left Ventricular Assist Device). The patients describe the various
hardships they and their families endured as well as how many found hope after receiving an LVAD.
 
Each chapter is written by a different patient or a patient’s family member, creating a unique
collection of stories that reveals the realities of living life with an implanted heart pump. Heart 2 Heart is composed of seventeen patient voices, where fourteen males and three females of different ethnicities and ages share with the reader their tale--from their initial diagnosis, to their eventual LVAD procedure performed at the University of Michigan Hospital.
 
The editor, Ruth Halben, M.S.W., is a clinical social worker in the University of Michigan Health System who works with LVAD patients and their families. Ruth is one of the first LVAD social workers in the nation, and she draws both from her expertise and her heartfelt relationships with her patients to bring together this wonderful resource for current and future LVAD patients.
[more]
cover of Holy Anorexia

Holy Anorexia

Rudolph M. Bell

University of Chicago Press, 1985

Is there a resemblance between the contemporary anorexic teenager counting every calorie in her single-minded pursuit of thinness, and an ascetic medieval saint examining her every desire? Rudolph M. Bell suggests that the answer is yes.

"Everyone interested in anorexia nervosa . . . should skim this book or study it. It will make you realize how dependent upon culture the definition of disease is. I will never look at an anorexic patient in the same way again."—Howard Spiro, M.D., Gastroenterology

"[This] book is a first-class social history and is well-documented both in its historical and scientific portions."—Vern L. Bullough, American Historical Review

"A significant contribution to revisionist history, which re-examines events in light of feminist thought. . . . Bell is particularly skillful in describing behavior within its time and culture, which would be bizarre by today's norms, without reducing it to the pathological."—Mary Lassance Parthun, Toronto Globe and Mail

"Bell is both enlightened and convincing. His book is impressively researched, easy to read, and utterly fascinating."—Sheila MacLeod, New Statesman
[more]
cover of Home Bound: Growing Up With A Disability

Home Bound

Growing Up With A Disability

Cass Irvin

Temple University Press, 2003

"When I was growing up, I learned that if you were a girl you went to school and college, then you married, became a wife and had a family. . . . When I became disabled, my journey, I was pretty sure, was not going to take me in those directions. What was I supposed to be? What kind of life was I supposed to have?"Once polio had made her a quadriplegic, Cass Irvin didn't know where she fit in or what would become of her. Neither did her parents, teachers, counselors, or rehabilitation therapists. And so began her search for a place to call home.In this memoir, Cass Irvin tells of the remarkable journey that transformed her from a young girl too timid to ask for help to a community activist and writer who speaks forcefully about the needs of people with disabilities. As a young girl she was taken to Warm Springs, Georgia, where she learned about living as a disabled person and found a hero in Franklin Delano Roosevelt, the famously if silently disabled president. Bright and inquisitive, Cass soon began to question the prevailing assumptions of a society that had no place for her and to question her own meekness.In time, her keen sense of injustice gave her the courage to fight for a college education. That personal victory emboldened her to find the means to live independently, but it also persuaded her that political work is the key to enabling all people with disabilities to live fulfilling lives. This book, then, is testimony to the importance of community building and organizing as well as the story of one woman's struggle for independence.
[more]
cover of Hospital Time

Hospital Time

Amy Hoffman

Duke University Press, 1997

Hospital Time is a memoir about friendship, family, and caregiving in the age of AIDS. Amy Hoffman, a writer, lesbian activist, and former editor of Gay Community News, chronicles with fury and unflinching honesty her experience serving as primary caretaker for her friend and colleague, Mike Riegle, who died from AIDS-related complications in 1992. Hoffman neither idealizes nor deifies Riegle, whom she portrays as a brilliant man, devoted prison rights activist, and very difficult friend.
Hoffman became central to Riegle’s caregiving when he asked her to be his health-care proxy, and although she willingly chose to do this, she explores her conflicting feelings about herself in this role and about her involvement with Riegle and his grueling struggle with hospitalization, illness, and, finally, death. She tells of the waves of grief that echoed throughout her life, awakening memories of other losses, entering her dreams and fantasies, and altering her relationships with friends, family, and even total strangers.
Hoffman’s memoir gives voice to the psychological and emotional havoc AIDS creates for those in the difficult role of caring for the terminally ill and it gives recognition to the role that lesbians continue to play in the AIDS emergency. A foreword by Urvashi Vaid, former executive director of the National Gay and Lesbian Task Force, offers a meditation on the politics of AIDS and the role of family in the lives of lesbians and gay men.
[more]
cover of Humanizing Brain Tumors: Strategies for You and Your Physician

Humanizing Brain Tumors

Strategies for You and Your Physician

Edited by Jonathan A. Forbes, Abdelkader Mahammedi, and Soma Sengupta

University of Minnesota Press, 2022

Three practicing doctors present the stories of nine individuals diagnosed with brain tumors.
 
Humanizing Brain Tumors details the lived experiences of patients and their loved ones, from the presentation of symptoms to diagnosis and treatment. These nine test cases and the accompanying compendium offer insight and guidance to anyone living with, caring for, or treating those with brain tumors. Written with a humanistic, yet realistic touch, the authors have created a resource that reminds readers of the important partnership between doctors, patients, and caregivers.
 
This collection delves into our modern understanding of brain tumors, using clinical presentation to illustrate the patient experience and summarize methods of treatment. Imagery, including both MRI scans and medical illustrations, facilitates a vivid description of neuroanatomy. Providing a concise description of modern forms of treatment for patients affected with brain tumors, this book presents a patient-centric perspective.

Humanizing Brain Tumors will appeal to the hundreds of thousands of patients and their loved ones who are affected by brain tumors every year.
[more]