Results by title
281 books match the query 'Disease & Health Issues' and 12 start with w
Waiting for Cancer to Come
Women’s Experiences with Genetic Testing and Medical Decision Making for Breast and Ovarian CancerSharlene Hesse-Biber
University of Michigan Press, 2014
Waiting for Cancer to Come tells the stories of women who are struggling with their high risk for cancer. Based on interviews and surveys of dozens of women, this book pieces together the diverse yet interlocking experiences of women who have tested positive for the BRCA 1/2 gene mutations, which indicate a higher risk of developing breast and ovarian cancer. Sharlene Hesse-Biber brings these narratives to light and follows women’s journeys from deciding to get screened for BRCA, to learning the test has come back positive, to dealing with their risk. Many women already know the challenges of a family history riddled with cancer and now find themselves with the devastating knowledge of their own genetic risk. Using the voices of the women themselves to describe the under-explored BRCA experience, Waiting for Cancer to Come looks at the varied emotional, social, economic, and psychological factors at play in women’s decisions about testing and cancer prevention.
War on Autism
On the Cultural Logic of Normative ViolenceAnne McGuire
University of Michigan Press, 2016
Watching Our Weights
The Contradictions of Televising Fatness in the “Obesity Epidemic”Zimdars, Melissa
Rutgers University Press, 2019
Watching Our Weights explores the competing and contradictory fat representations on television that are related to weight-loss and health, medicalization and disease, and body positivity and fat acceptance. While television—especially reality television—is typically understood to promote individual self-discipline and expert interventions as necessary for transforming fat bodies into thin bodies, fat representations and narratives on television also create space for alternative as well as resistant discourses of the body. Melissa Zimdars thus examines the resistance inherent within TV representations and narratives of fatness as a global health issue, the inherent and overt resistance found across stories of medicalized fatness, and programs that actively avoid dieting narratives in favor of less oppressive ways of thinking about the fat body. Watching Our Weights weaves together analyses of media industry lore and decisions, communication and health policies, medical research, activist projects, popular culture, and media texts to establish both how television shapes our knowledge of fatness and how fatness helps us better understand contemporary television.
Weighty Problems
Embodied Inequality at a Children’s Weight Loss CampLaura Backstrom
Rutgers University Press, 2019
What Adolescents Ought to Know
Sexual Health Texts in Early Twentieth-Century AmericaJennifer Burek Pierce
University of Massachusetts Press, 2011
In 1901, Dr. Alfred Fournier committed an act both simple and revolutionary: he wrote ForOur Sons, When They Turn 18, a sexual and reproductive health treatise based on his clinical work at a leading Paris hospital. If this booklet aided adolescent understanding of health, it also encouraged reformers around the world to publish. By 1913, countless works on venereal disease prevention were available to adolescents.
During this period, authors wrestled with how to make still-developing scientific information available to a reader also in the process of maturing. What would convince a young person to avoid acting on desire? What norms should be employed in these arguments, when social and legal precedents warned against committing ideas about sex to print? How, in other words, could information about sex be made both decent and compelling? Health reformers struggled with these challenges as doctors' ability to diagnose diseases such as syphilis outpaced the production of medicines that could restore health. In this context, information represented the best and truest prophylactic. When publications were successful, from the perspective of information dissemination, they were translated and distributed worldwide.
What Adolescents Ought to Know explores the evolution of these printed materials—from a single tract, written by a medical researcher and given free to anyone, to a thriving commercial enterprise. It tells the story of how sex education moved from private conversation to purchased text in early twentieth-century America.
When Care is Conditional
Immigrants and the U.S. Safety NetDani Carrillo
Russell Sage Foundation, 2024
Through in-depth interviews with Latinx immigrants in northern California, Carrillo examines three circumstances—place, gender, and immigration status—that intersect to influence an individual’s access to health care, food assistance, and other benefits. She demonstrates that place of residence affects undocumented immigrants’ ability to get care since more services are available in urban areas, where many immigrants cannot afford to live, than suburban areas, where public transportation is limited. She also shows that while both men and women who are undocumented have difficulty obtaining care, men often confront more challenges. Undocumented women who are pregnant or mothers are eligible for some government safety net programs and rely on informal coethnic networks or a “guiding figure”—a relative, friend, neighbor, or coworker—who explains how to get care and makes them feel confident in accessing it. Most undocumented men, in contrast, are not eligible for public programs except in a medical emergency and often lack someone to guide them directly to care. Men sometimes steer one another to jobs through worker centers—where they may learn about various services and take advantage of those that increase their employability, like English or computer classes—but a culture of masculinity leads them to downplay medical problems and seek health care only in a crisis.
As undocumented immigrants navigate this exclusionary system, Carrillo finds that they resist the rhetoric stigmatizing them as lawbreakers. Dismissing the importance of “papers” and highlighting their work ethic, they question the fairness of U.S. immigration policies and challenge ideas about who deserves care.
Carrillo offers concrete recommendations, such as improving labor conditions and reexamining benefit eligibility, to increase access to care for not only undocumented immigrants but also people who have been excluded because of their race, criminal record, gender identity, sexual orientation, or disability. She argues that working with and across populations creates a powerful form of solidarity in advocating for inclusive care.
When Care Is Conditional provides compelling insights into how safety net and immigration policies intersect to affect people’s everyday lives and calls for a cultural shift so that the United States can provide unconditional care for all.
When Death Is on the Horizon
Temporality, Finitude, and Care Toward Life’s EndAnnemarie Samuels
Rutgers University Press, 2026
The urge to engage with finitude is increasingly central in our present apocalyptic time of political and ecological turmoil. Aging populations and the rapid development of advanced, but expensive, technologies to ever further postpone death pose significant healthcare challenges for societies around the world. In these times, how do people care when the end of life is near? How do they orient toward death? Do they see death as an absolute end, and if not, what sort of horizon does death present? Questioning taken for granted assumptions about end-of-life care, When Death Is on the Horizon analyzes how people approach death in a wide variety of geographical locations and social contexts. Through in-depth ethnographic case studies, it shows how people orient toward, beyond, and away from death, and how they do so within a world marked by historic and ongoing socio-political and structural inequalities.
This book is also freely available online as an open access digital edition.
When Roe Fell
How Barriers, Inequities, and Systemic Failures of Justice in Abortion Became VisibleKatrina Kimport
Rutgers University Press, 2026
When the Air Became Important
A Social History of the New England and Lancashire Textile IndustriesJanet Greenlees
Rutgers University Press, 2019
Who Will Care For Us?
Long-Term Care and the Long-Term WorkforcePaul Osterman
Russell Sage Foundation, 2017
Using national surveys, administrative data, and nearly 120 original interviews with workers, employers, advocates, and policymakers, Osterman finds that direct care workers are marginalized and often invisible in the health care system. While doctors and families alike agree that good home care aides and CNAs are crucial to the well-being of their patients, the workers report poverty-level wages, erratic schedules, exclusion from care teams, and frequent incidences of physical injury on the job. Direct care workers are also highly constrained by policies that specify what they are allowed to do on the job, and in some states are even prevented from simple tasks such as administering eye drops.
Osterman concludes that broadening the scope of care workers’ duties will simultaneously boost the quality of care for patients and lead to better jobs and higher wages. He proposes integrating home care aides and CNAs into larger medical teams and training them as “health coaches” who educate patients on concerns such as managing chronic conditions and transitioning out of hospitals. Osterman shows that restructuring direct care workers’ jobs, and providing the appropriate training, could lower health spending in the long term by reducing unnecessary emergency room and hospital visits, limiting the use of nursing homes, and lowering the rate of turnover among care workers.
As the Baby Boom generation ages, Who Will Care for Us? demonstrates the importance of restructuring the long-term care industry and establishing a new relationship between direct care workers, patients, and the medical system.
Why Surgeons Struggle with Work-Hour Reforms
James E. Coverdill
Vanderbilt University Press, 2021
Why Surgeons Struggle with Work-Hour Reforms focuses on general surgeons, a historically long-hour specialty, who fiercely opposed the reforms and are among the least compliant. Why do surgeons struggle with the reforms? Why do they continue to work long hours and view the act of doing so as reasonable if not quintessentially professional? Although the analysis is situated in the growing scientific literature on the consequences of fatigue, the authors do not adjudicate between the claims of surgeons and reform advocates about the effects of long work hours on patient or provider safety. Rather, the aim is to explore and explain how aspects of the occupational culture of surgeons and the social organization of surgical training and practice interlock to impede the reforms.
Work, Retire, Repeat
The Uncertainty of Retirement in the New EconomyTeresa Ghilarducci
University of Chicago Press, 2024
A damning portrait of the dire realities of retirement in the United States—and how we can fix it.
While the French went on strike in 2023 to protest the increase in the national retirement age, workers in the United States have all but given up on the notion of dignified retirement for all. Instead, Americans—whose elders face the highest risk of poverty compared to workers in peer nations—are fed feel-good stories about Walmart clerks who can finally retire because a customer raised the necessary funds through a GoFundMe campaign.
Many argue that the solution to the financial straits of American retirement is simple: people need to just work longer. Yet this call to work longer is misleading in a multitude of ways, including its endangering of the health of workers and its discrimination against people who work in lower-wage occupations. In Work, Retire, Repeat, Teresa Ghilarducci tells the stories of elders locked into jobs—not because they love to work but because they must.
But this doesn’t need to be the reality. Work, Retire, Repeat shows how relatively low-cost changes to how we finance and manage retirement will allow people to truly choose how they spend their golden years.