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Caring on the Clock is the first book to bring together cutting-edge research on a wide range of paid care occupations, and to place the various fields within a comprehensive and comparative framework across occupational boundaries. The book includes twenty-two original essays by leading researchers across a range of disciplines—including sociology, psychology, social work, and public health. They examine the history of the paid care sector in America, reveal why paid-care work can be both personally fulfilling but also make workers vulnerable to burnout, emotional fatigue, physical injuries, and wage exploitation. Finally, the editors outline many innovative ideas for reform, including top-down and grassroots efforts to improve recognition, remuneration, and mobility for care workers. 

As America faces a series of challenges to providing care for its citizens, including the many aging baby boomers, this volume offers a wealth of information and insight for policymakers, scholars, advocates, and the general public.

Each day Burt Wheeler is plagued by the same question. When did it happen? If he could pinpoint the beginning, then he might begin to make peace with himself. He vividly remembers when the doctor diagnosed Kee, his loving wife of over fifty years, with "Alzheimer-type dementia." But, as hard as he tries, it's impossible for him to determine when his wife's dementia started. He remembers her bout with depression, but that, he thinks, was surely due to her breast cancer. There was their dream vacation to Greece when Kee seemed so tired and indifferent. There were the unopened books, when reading had always been such a source of pleasure to her. And, he recalls, the gradual personality changes with friends, and even with family.

Wheeler started writing this book as a form of self-therapy when he found himself thrust into the role of caretaker to his wife--a role for which he felt unprepared. He wrote in memory of the very special woman his wife had been—a wonderful mother, charming and gracious, as well as a deeply respected psychotherapist. She was also his best friend, and he loved her. So, to some degree, this is a love story—a story about two people who have shared life's ups and downs for over fifty years. It's also about commitment.

In Close to Me, but Far Away, Wheeler provides insight into what a caregiver's day is like, as he shares his most intimate thoughts with us. The book provides a window into the author's personal life as he seeks to confront his own ineptitude and the occasional despair he feels as he deals daily with Alzheimer's. He also touches on the question of what keeps him going through times of exhaustion and frustration. Part of his answer lies in holding tenaciously to memories, and part lies in what he believes is a human's extraordinary capacity to continue plodding along simply because he must. Wheeler also believes in rejoicing in the beauty that can be experienced, and he believes in humor, humor achieved only by distancing ourselves from the events that so deeply engage us. And, of course, there is also the indefinable nature of love.

Alzheimer's is a terrifying and horrible disease, as much for loved ones as for the patient. Those who are caregivers or friends of Alzheimer's patients or caregivers will empathize with Burton Wheeler's story. And some might receive comfort from his words or learn from him. Because Alzheimer's is a disease that could affect anyone, Close to Me, but Far Away is a story that should be read by all.

In 2001, Thailand introduced universal health care reforms that have become some of the most celebrated in the world, providing almost its entire population with health protection coverage. However, this remarkable implementation of health policy is not without its weaknesses. Drawing on two years of fieldwork at a district hospital in northern Thailand, Bo Kyeong Seo examines how people in marginal and dependent social positions negotiate the process of obtaining care.
Using the broader concept of elicitation, Seo analyzes the social encounters and forces that shape caregivers. These dynamics challenge dichotomies of subjugation and resistance, consent and coercion, and dependence and autonomy. The intimate and moving stories at the core of Eliciting Care from patients and providers draw attention to a broader, critically important phenomenon at the hospital level. Seo's poignant ethnography engages with feminist theory on the ethics of care, and in so doing, makes a significant contribution to emerging work in the field of health policy and politics.

As women moved into the formal labor force in large numbers over the last forty years, care work – traditionally provided primarily by women – has increasingly shifted from the family arena to the market. Child care, elder care, care for the disabled, and home care now account for a growing segment of low-wage work in the United States, and demand for such work will only increase as the baby boom generation ages. But the expanding market provision of care has created new economic anxieties and raised pointed questions: Why do women continue to do most care work, both paid and unpaid? Why does care work remain low paid when the quality of care is so highly valued? How effective and equitable are public policies toward dependents in the United States? In For Love and Money, an interdisciplinary team of experts explores the theoretical dilemmas of care provision and provides an unprecedented empirical overview of the looming problems for the care sector in the United States. Drawing on diverse disciplines and areas of expertise, For Love and Money develops an innovative framework to analyze existing care policies and suggest potential directions for care policy and future research. Contributors Paula England, Nancy Folbre, and Carrie Leana explore the range of motivations for caregiving, such as familial responsibility or limited job prospects, and why both love and money can be efficient motivators. They also examine why women tend to specialize in the provision of care, citing factors like job discrimination, social pressure, or the personal motivation to provide care reported by many women. Suzanne Bianchi, Nancy Folbre, and Douglas Wolf estimate how much unpaid care is being provided in the United States and show that low-income families rely more on unpaid family members for their child and for elder care than do affluent families. With low wages and little savings, these families often find it difficult to provide care and earn enough money to stay afloat. Candace Howes, Carrie Leana and Kristin Smith investigate the dynamics within the paid care sector and find problematic wages and working conditions, including high turnover, inadequate training and a “pay penalty” for workers who enter care jobs. These conditions have consequences: poor job quality in child care and adult care also leads to poor care quality. In their chapters, Janet Gornick, Candace Howes and Laura Braslow provide a systematic inventory of public policies that directly shape the provision of care for children or for adults who need personal assistance, such as family leave, child care tax credits and Medicaid-funded long-term care. They conclude that income and variations in states’ policies are the greatest factors determining how well, and for whom, the current system works. Despite the demand for care work, very little public policy attention has been devoted to it. Only three states, for example, have enacted paid family leave programs. Paid or unpaid, care costs those who provide it. At the heart of For Love and Money is the understanding that the quality of care work in the United States matters not only for those who receive care but also for society at large, which benefits from the nurturance and maintenance of human capabilities. As care work gravitates from the family to the formal economy, this volume clarifies the pressing need for America to fundamentally rethink its care policies and increase public investment in this increasingly crucial sector.

Hospital Time is a memoir about friendship, family, and caregiving in the age of AIDS. Amy Hoffman, a writer, lesbian activist, and former editor of Gay Community News, chronicles with fury and unflinching honesty her experience serving as primary caretaker for her friend and colleague, Mike Riegle, who died from AIDS-related complications in 1992. Hoffman neither idealizes nor deifies Riegle, whom she portrays as a brilliant man, devoted prison rights activist, and very difficult friend.
Hoffman became central to Riegle’s caregiving when he asked her to be his health-care proxy, and although she willingly chose to do this, she explores her conflicting feelings about herself in this role and about her involvement with Riegle and his grueling struggle with hospitalization, illness, and, finally, death. She tells of the waves of grief that echoed throughout her life, awakening memories of other losses, entering her dreams and fantasies, and altering her relationships with friends, family, and even total strangers.
Hoffman’s memoir gives voice to the psychological and emotional havoc AIDS creates for those in the difficult role of caring for the terminally ill and it gives recognition to the role that lesbians continue to play in the AIDS emergency. A foreword by Urvashi Vaid, former executive director of the National Gay and Lesbian Task Force, offers a meditation on the politics of AIDS and the role of family in the lives of lesbians and gay men.

There are fundamental tasks common to every society: children have to be raised, homes need to be cleaned, meals need to be prepared, and people who are elderly, ill, or disabled need care. Day in, day out, these responsibilities can involve both monotonous drudgery and untold rewards for those performing them, whether they are family members, friends, or paid workers. These are jobs that cannot be outsourced, because they involve the most intimate spaces of our everyday lives--our homes, our bodies, and our families.

Mignon Duffy uses a historical and comparative approach to examine and critique the entire twentieth-century history of paid care work--including health care, education and child care, and social services--drawing on an in-depth analysis of U.S. Census data as well as a range of occupational histories. Making Care Count focuses on change and continuity in the social organization along with cultural construction of the labor of care and its relationship to gender, racial-ethnic, and class inequalities. Debunking popular understandings of how we came to be in a "care crisis," this book stands apart as an historical quantitative study in a literature crowded with contemporary, qualitative studies, proposing well-developed policy approaches that grow out of the theoretical and empirical arguments.

Some 400,000 hip fractures occur every year, the vast majority among the elderly; all too often these fractures are associated with death or severe disability. After her mother's double hip fracture, Luisa Margolies immersed herself in identifying and coordinating the services and professionals needed to provide critical care for an elderly person. She soon realized that the American medical system is ill prepared to deal with the long-term care needs of our graying society. The heart of My Mother's Hip is taken up with the author's day-to-day observations as her mother's condition worsened, then improved only to worsen again, while her father became increasingly anxious and disoriented. As both a devoted daughter and a skilled anthropologist, Margolies vividly renders her interactions with physicians, nurses, hospital workers, nursing home administrators, the Medicare bureaucracy, home care providers, and her parents. In the Lessons chapter that follows each episode, she discusses in a broader context the weighty decisions that adult children must make on their parents' behalf and the emotional toll their responsibility takes. Here she addresses the complex practical issues that commonly arise in such situations: understanding the consequences of hip fracture and its treatment, preparing health care proxies and advanced directives, enabling elders to remain at home, and the heartbreaking dilemma of prolonging life. Like many adult children, Margolies learned her lessons about eldercare in the midst of crises. This book is intended to ease the information-gathering and decision-making processes for others involved in eldercare.

Alzheimer’s disease is a growing public health crisis. According to the Alzheimer’s Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people—the Alzheimer’s family—undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer’s patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer’s family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The senior years can be daunting, for spouses, children, other caregivers, and seniors themselves. Too often a sudden crisis leaves a family unprepared and feeling helpless. Chronic illnesses and limited funds can present difficult and emotional choices regarding care or housing. Rules and resources vary from state to state. Everyone can use help from experienced professionals in understanding them.

Boyer and Shapiro provide Nevada-specific information\--medical, legal, and financial\--on the wide range of problems that arise during the elder years. Case studies show how a typical family copes with troubles such as failing health or financial cares and what options they have. This guide will help any Nevada resident plan for their own senior years and take care of aging parents, spouses, and other loved ones.

 In a national survey, 19 million Americans said they have a family member with Alzheimer's, and 37 million said they knew someone who had it. But when Rosette Teitel found herself in the role of caregiver to her ailing husband, she could find no books that answered her practical needs: How do you give a 170-pound man a shower? How do you pick him up when he falls? What support networks are available? When is it time to consider a nursing home and how do you find one?

There are many kinds of helpers in our world, the caregivers among us. They are the social workers who serve the vulnerable, the nurses and doctors who treat the ill, the teachers who instruct the young, the first responders who rescue the imperiled, the faith leaders who comfort the congregation, the volunteers who support the community. And whether or not it is our professional calling, each of us is likely to serve as a caregiver at some point in our lives, as a parent raising a child, for instance, or as a loved one caring for an aging relative. These and many other efforts to serve are among the most noble pursuits we can imagine, but they come with a danger worth recognizing. 

In their devotion to the well-being of others, caregivers routinely put their own well-being  last and can unintentionally burn themselves out physically, emotionally, and spiritually. Their self-neglect, paired alongside a deep desire to help others, has the potential to stir up feelings of anger and resentment, leading to a sense of guilt and shame. They often believe that if they were to grant themselves any rest or grace, they would be at risk of failing in their duty. 

In The Soul of the Helper, Dr. Holly K. Oxhandler shows caregivers and fellow helpers a more self-compassionate way to cope with their overwhelming responsibilities and to attend to their own needs, particularly when it comes to their mental health and spiritual journey. She invites them to pause and realize that if they let their personal resources run dry, they cannot possibly care for others as fully as they wish. In fact, their efforts are likely to cause more harm than good. 

With a background in spiritually-integrated mental health, Dr. Oxhandler teaches helpers a seven-step process to slow down and reconnect with the stillness within themselves. It is in this space of stillness that Oxhandler guides helpers to reconnect with the “sacred spark” within their soul. By allowing themselves to enter that stillness, caregivers will recognize that they, too, are worthy of care. And with that realization, they will see anew the sacred spark that dwells inside everyone else, especially within those they’re helping.

As a social worker, researcher, and person of faith, Dr. Oxhandler writes in a warm and welcoming style, shares many relatable stories, and widens her scope to include believers of all faiths and spiritual traditions. Her book is for caregivers everywhere who sense the sacred spark within them saying, in effect: “Come to me, all you who are weary and burdened, and I will give you rest.”