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Health care workers are burned out. Health care leaders know that workers are burned out but do not yet have the right tools to fix the problem. Called to Care? argues that we can mitigate burnout by examining what is most meaningful about health care work. Using interviews and observation of a wide range of health care workers, Cain shows that workers who care for our most vulnerable adults find their work to be meaningful when they are able to connect to the work and make progress on something that matters. In most cases, these meaningful experiences are also consistent with better care for patients. And yet organizational practices, policy environments, and cultural meanings get in the way of meaningful work, creating burnout. But it doesn’t have to be this way. Called to Care? illustrates that workplaces can and should align meaningful work experiences with quality care for patients.

Each Day I Like It Better recounts the journeys of Jonah and seven other children and their families (interviewed by the author) in their quests for appropriate educational placements and therapeutic interventions. The author describes their varied, but mostly successful, experiences with ECT.

A survey of research on pediatric ECT is incorporated into the narrative, and a foreword by child psychiatrist Dirk Dhossche and ECT researcher and practitioner Charles Kellner explains how ECT works, the side effects patients may experience, and its current use in the treatment of autism, catatonia, and violent behavior in children.

Fighting to Care explores the lived experiences of children with pediatric blood cancer in Argentina, centering the struggles to care from the moment a child is labelled as experiencing "strangeness in the blood.” The book focuses on the notion of "permeable bodies" to understand children’s corporeal and subjective dynamic experience of cancer treatment and interpersonal care. Despite their vulnerability, throughout the course of demanding treatment, children display significant agency, actively navigating their medical journeys through various forms of communication and action. Fighting to Care also highlights the collective forms of care and the personal and interpersonal pain experienced by children, their families, and healthcare professionals in contexts of urgency and against health bureaucracies. In Argentina, caregiving, that is, fighting to care, is deeply intertwined with fighting for health rights within a public healthcare system that, while historically universal and free, is complex and impacted by recurring economic crises and social inequalities.

“A practical, highly informative, and sympathetic guide.”
—The Washington Post

Most of us will become a caregiver at some point in our lives. And we will assume this role for the most personal reason imaginable: wanting to help someone we love. But we may not know where to start, and we may be afraid of losing ourselves in this daunting task.

Former first lady Rosalynn Carter, a longtime advocate for caregivers and mental health, knows firsthand the challenges of this labor of love. Drawing upon her own experiences and those of hundreds of others whose stories she gathered over many decades, Mrs. Carter offers reassuring, practical advice to any caregiver who has faced stress, anxiety, or loneliness.

Helping Yourself Help Others, reissued here with a new foreword, is as relevant as ever. Long before the COVID-19 pandemic inspired national conversations about the vast undervaluing of unpaid caregiving, the dangers of burnout, and the merits of self-care for relief, Rosalynn Carter was shining a light on these matters and everything else that caregivers confront. Filled with empathy, this encouraging guide will help you meet a difficult challenge head-on and find fulfillment and empowerment in your caregiving role.

Many of the authors are well-known poets and writers, but others have not been published in mainstream media. They represent a range of cultural backgrounds. Although their works approach caregiving in very different ways, the authors share a commitment to emotional truth, unvarnished by societal ideals of what caregivers should feel and do. These stories and poems paint profoundly moving and revealing portraits of family caregivers.

However, the story of the Magdalene community is not about these statistics, but about the stories the women tell. They say they thrive in the community because it is a place where they are free to be themselves, safe to give and receive love, and free to speak their trutheven to complain sometimes about how their storytelling is exploited "for the good of the community." A Place about Mercy is a participantobservation account of the history of this remarkable community founded in 1997, its structure, its Thistle Farms beauty products operation, and Reverend Becca Stevens's communal and spiritual vision. The book is finally about what it means to walk the path of healing with a group of unlikely women as guide.

Magdalene House was the subject of a multiplepart documentary on National Public Radio.

Christine's father, as it turned out, prepared too slowly for old age. Before he had made any decision, fate disabled him through a series of strokes. Confined to a nursing home, severely impaired by dementia and frustrated by his circumstances, his life epitomized the predicament her mother wanted to avoid.

So Far Away gives us an intimate view of a person interacting with and reacting to her parents at the ends of their lives. In a richly detailed, poignant story of family members' separate yet interwoven journeys, it underscores the complexities and opportunities that life presents each one of us.

In a series of moving vignettes, the author begins by describing a particular representation of Water-Moon Kuan Yin, a Buddhist teacher and goddess associated with compassion, who often sits on a precarious overhang or floats on a flimsy petal. Then Kuan Yin steps out of the frame to join the author in the mundane challenges of caring for her father-transferring his health insurance, struggling with a wheelchair van, managing adult diapers, or playing in the fictions of dementia. From perplexed to poignant to funny, the vignettes record the working-class English of a fading but still wise dad, and they find other human versions of Kuan Yin in a doctor who will still make house calls or kind strangers in the street.

The book includes ten illustrations: both classical representations of Kuan Yin and also the author's own drawings, which adapt Kuan Yin in an act of practical spirituality, reading art through life and life through art. Each vignette invites the harried caregiver to take a deep breath and meditate on the trials and joys of caring for an aging parent.

The urge to engage with finitude is increasingly central in our present apocalyptic time of political and ecological turmoil. Aging populations and the rapid development of advanced, but expensive, technologies to ever further postpone death pose significant healthcare challenges for societies around the world. In these times, how do people care when the end of life is near? How do they orient toward death? Do they see death as an absolute end, and if not, what sort of horizon does death present? Questioning taken for granted assumptions about end-of-life care, When Death Is on the Horizon analyzes how people approach death in a wide variety of geographical locations and social contexts. Through in-depth ethnographic case studies, it shows how people orient toward, beyond, and away from death, and how they do so within a world marked by historic and ongoing socio-political and structural inequalities.

This book is also freely available online as an open access digital edition.