The Fifth Volume in the Deaf Lives Series
Born in Melbourne, Australia, in 1974, Paul Jacobs lost his mother when he was three months old. When he was five, he lost most of his hearing. These two defining events formed the core of his being. He spent the first two decades of his life “coming to terms with being neither Deaf nor hearing — a neither/nor, an in-between — and a person with a social identity that had yet to be invented.” His memoir, Neither—Nor: A Young Australian’s Experience with Deafness, recounts this journey.
Jacobs excelled in sports and the classroom, but he never lost awareness of how he was seen as different, often in cruel or patronizing ways. His father, a child psychologist, headed a long list of supportive people in his life, including his Uncle Brian, his itinerant teacher of the deaf Mrs. Carey, a gifted art teacher Mrs. Klein, who demanded and received from him first-rate work, a notetaker Rita, and Bella, his first girlfriend. Jacobs eventually attended university, where he graduated with honors. He also entered the Deaf world when he starred on the Deaf Australian World Cup cricket team. However, he never learned sign language, and frequently noted the lack of an adult role model for “neither—nors” such as himself.
Still emotionally adrift in 1998, Jacobs toured Europe, then volunteered to tutor deaf residents at Court Grange College in Devon, England. There, he discovered a darker reality for some deaf individuals — hearing loss complicated by schizophrenia, Bonnevie-Ullrich Syndrome, and other conditions. After returning to Australia, Jacobs recognized what he had gleaned from his long journey: “Power comes from within, not without. Sure, deafness makes one prone to be stigmatized. Yet having a disability can act as a stimulus for greater personal growth, richer experiences, and more genuine relationships.”
When three deaf men in the 1960s invented and sold TTYs, the first teletypewriting devices that allowed deaf people to communicate by telephone, they started a telecommunications revolution for deaf people throughout America. A New Civil Right: Telecommunications Equality for Deaf and Hard of Hearing Americans chronicles the history of this movement, which lagged behind new technical developments decades after the advent of TTYs.
In this highly original work, Author Karen Peltz Strauss reveals how the paternalism of the hearing-oriented telecommunications industries slowed support for technology for deaf users. Throughout this comprehensive account, she emphasizes the grassroots efforts behind all of the eventual successes. A New Civil Right recounts each advance in turn, such as the pursuit of special customer premises equipment (SCPE) from telephone companies; the Telecommunications Act of 1982 and the Telecommunications Accessibility Enhancement Act of 1988 and the 1990 Americans with Disabilities Act, which required nationwide relay telephone services for deaf and hard of hearing users.
Strauss painstakingly details how all of these advances occurred incrementally, first on local and state levels, and later through federal law. It took exhaustive campaigning to establish 711 for nationwide relay dialing, while universal access to television captioning required diligent legal and legislative work to pass the Decoder Circuitry Act in 1990. The same persistence resulted in the enactment of the Telecommunications Act of 1996, which required all off-the-shelf communications equipment, including new wireless technology, to be readily accessible to deaf users.
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