front cover of The Accidental Teacher
The Accidental Teacher
Life Lessons from My Silent Son
Annie Lubliner Lehmann
University of Michigan Press, 2009

"Jonah Lehmann is an accidental teacher of others, including his family and friends. This personal and touching account of Jonah's life is enlightening, especially to those coming to terms with similar challenges with autism and other cognitive disabilities. It was written with love to support research on autism, and I recommend it to anyone and everyone touched by those of us who are different."
---Patricia E. Kefalas Dudek, Legal Advocate for People with Disabilities

"I have never read a book about a disabled person that caught me from page one. I could not put this one down. Lehmann offers a profound perspective on living with the reality of a severely disabled child. This book will be required reading for students who take my class in Special Education Administration."
---Frances LaPlante-Sosnowsky, Associate Professor of Education at Wayne State University

"A story of the astonishing power of human love and family triumph over hardship. Lehmann's story, engaging and at times both heartbreaking and joyful, offers an intimate view of one mother's journey as she works with professionals and a blur of caregivers to assist the ever-changing needs of her son. I highly recommend it to seasoned professionals in the field of autism and students preparing for careers in special education."
---Janet E. Graetz, Assistant Professor of Human Development and Child Studies at Oakland University

A child teaches without intending to . . .
Having severe autism does not stop Annie Lehmann's son Jonah from teaching her some of life's most valuable lessons. The Accidental Teacher, a heartfelt memoir about self-discovery rather than illness, uses insight and humor to weave a tale rich with kitchen-table wisdom. It explains the realities of life with a largely nonverbal son and explores the frustrations and triumphs of the Lehmann family as Jonah grew into a young adult. This book is a must-read for anyone who has been personally touched by a major life challenge.

Annie Lubliner Lehmann, a freelance writer for more than twenty-five years, has published articles in many newspapers and magazines, including the New York Times and Detroit Free Press. She resides in Michigan with her husband and two of her three children. Her eldest son, who inspired this memoir, is now a young adult with autism who lives in a supervised home.

[more]

front cover of Affect, Animals, and Autists
Affect, Animals, and Autists
Feeling Around the Edges of the Human in Performance
Marla Carlson
University of Michigan Press, 2018
When theater and related forms of live performance explore the borderlands labeled animal and autism, they both reflect and affect their audiences’ understanding of what it means to be human. Affect, Animals, and Autists maps connections across  performances that question the borders of the human whose neurodiverse experiences have been shaped by the diagnostic label of autism, and animal-human performance relationships that dispute and blur anthropocentric edges.

By analyzing specific structures of affect with the vocabulary of emotions, Marla Carlson builds upon the conception of affect articulated by psychologist Silvan Tomkins. The book treats a diverse selection of live performance and archival video and analyzes the ways in which they affect their audiences. The range of performances includes commercially successful productions such as The Curious Incident of the Dog in the Night-Time, War Horse, and The Lion King as well as to the more avant-garde and experimental theater created by Robert Wilson and Christopher Knowles, Back to Back Theatre, Elevator Repair Service, Pig Iron Theatre, and performance artist Deke Weaver.
[more]

front cover of Aquamarine Blue 5
Aquamarine Blue 5
Personal Stories of College Students with Autism
Dawn Prince-Hughes
Ohio University Press, 2002

Rated Outstanding by the American Association of School Libraries

This is the first book to be written by autistic college students about the challenges they face. Aquamarine Blue 5 details the struggle of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole.

Dawn Prince-Hughes presents an array of writings by students who have been diagnosed with Asperger’s Syndrome or High-Functioning Autism, showing their unique ways of looking at and solving problems. In their own words, they portray how their divergent thinking skills could be put to great use if they were given an opportunity. Many such students never get the chance because the same sensitivity that gives them these insights makes the flicker of fluorescent lights and the sound of chalk on the board unbearable For simple—and easily remedied—reasons, we lose these students, who are as gifted as they are challenged.

Aquamarine Blue 5 is a showcase of the strength and resilient character of individuals with Asperger’s Syndrome. It will be an invaluable resource for those touched by this syndrome, their friends and families, and school administrators.

[more]

front cover of Autism and Gender
Autism and Gender
From Refrigerator Mothers to Computer Geeks
Jordynn Jack
University of Illinois Press, 2014
The reasons behind the increase in autism diagnoses have become hotly contested in the media as well as within the medical, scholarly, and autistic communities. Jordynn Jack suggests the proliferating number of discussions point to autism as a rhetorical phenomenon that engenders attempts to persuade through arguments, appeals to emotions, and representational strategies.
 
In Autism and Gender: From Refrigerator Mothers to Computer Geeks, Jack focuses on the ways gender influences popular discussion and understanding of autism's causes and effects. She identifies gendered theories like the “refrigerator mother” theory, for example, which blames emotionally distant mothers for autism, and the “extreme male brain” theory, which links autism to the modes of systematic thinking found in male computer geeks. Jack's analysis reveals how people employ such highly gendered theories to craft rhetorical narratives around stock characters--fix-it dads, heroic mother warriors rescuing children from autism--that advocate for ends beyond the story itself while also allowing the storyteller to gain authority, understand the disorder, and take part in debates.
 
Autism and Gender reveals the ways we build narratives around controversial topics while offering new insights into the ways rhetorical inquiry can and does contribute to conversations about gender and disability.
[more]

front cover of Autistic Intelligence
Autistic Intelligence
Interaction, Individuality, and the Challenges of Diagnosis
Douglas W. Maynard and Jason Turowetz
University of Chicago Press, 2022
An examination of diagnostic processes that questions how we can better understand autism as a category and the unique forms of intelligence it glosses.
 
As autism has grown in prevalence, so too have our attempts to make sense of it. From placing unfounded blame on vaccines to seeking a genetic cause, Americans have struggled to understand what autism is and where it comes from. Amidst these efforts, however, a key aspect of autism has been largely overlooked: the diagnostic process itself. That process is the central focus of Autistic Intelligence. The authors ask us to question the norms by which we measure autistic behavior, to probe how that behavior can be considered sensible rather than disordered, and to explore how we can better appreciate the individuality of those who receive the diagnosis.
 
Drawing on hundreds of hours of video recordings and ethnographic observations at a clinic where professionals evaluated children for autism, the authors’ analysis of interactions among clinicians, parents, and children demystifies the categories, tools, and practices involved in the diagnostic process. Autistic Intelligence shows that autism is not a stable category; it is the outcome of complex interactional processes involving professionals, children, families, and facets of the social and clinical environments they inhabit. The authors suggest that diagnosis, in addition to carefully classifying children, also can highlight or include unique and particular contributions those with autism potentially can make to the world around us.
 
[more]

logo for Rutgers University Press
Becoming an Expert Caregiver
How Structural Flaws Shape Autism Carework and Community
Cara A. Chiaraluce
Rutgers University Press, 2025
“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that.  But the rest of the world doesn’t.”  These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today.  This book features the voices of 50 primary caregivers of autistic and neurodivergent children who illuminate the process through which lay women become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society.  The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.”
 
Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and healthcare, and subverting ableist cultural norms.  Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children.  These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place. 
 
 
[more]

front cover of A Grotesque Animal
A Grotesque Animal
Amy Lee Lillard
University of Iowa Press, 2024
At the age of forty-three, Amy Lee Lillard learned she was autistic. She learned she was part of a community of unseen women who fell through the gaps due to medical bias and social stereotypes.

A Grotesque Animal explores the making, unmaking, and making again of a woman with an undiagnosed disorder. How did a working-­ class background and a deep-rooted Midwest culture of silence lead to hiding in plain sight for decades? How did sexuality and anger hide the roots of trauma among the women in her family? And what does it mean to be a queer, disabled, aging woman, a descendent of wild but tamed mothers and a survivor of the things patriarchy inflicts?

Through wide-ranging styles and a combination of personal storytelling and cultural analysis, Lillard dissects anger, sexuality, autistic masking, bodies, punk, and female annihilation to create a new picture of modern women.
 
[more]

logo for American Library Association
Library Services for Youth with Autism Spectrum Disorders
Lesley S. J. Farmer
American Library Association, 2013

front cover of The Minor Gesture
The Minor Gesture
Erin Manning
Duke University Press, 2016
In this wide-ranging and probing book Erin Manning extends her previous inquiries into the politics of movement to the concept of the minor gesture. The minor gesture, although it may pass almost unperceived, transforms the field of relations. More than a chance variation, less than a volition, it requires rethinking common assumptions about human agency and political action. To embrace the minor gesture's power to fashion relations, its capacity to open new modes of experience and manners of expression, is to challenge the ways in which the neurotypical image of the human devalues alternative ways of being moved by and moving through the world—in particular what Manning terms "autistic perception." Drawing on Deleuze and Guattari's schizoanalysis and Whitehead's speculative pragmatism, Manning's far-reaching analyses range from fashion to depression to the writings of autistics, in each case affirming the neurodiversity of the minor and the alternative politics it gestures toward.
 
[more]


Send via email Share on Facebook Share on Twitter