front cover of Illness Politics and Hashtag Activism
Illness Politics and Hashtag Activism
Lisa Diedrich
University of Minnesota Press, 2024

How illness on social media reveals the struggle for care and access against ableism and stigma

Illness Politics and Hashtag Activism explores illness and disability in action on social media, analyzing several popular hashtags as examples of how illness figures in recent U.S. politics. Lisa Diedrich shows how illness- and disability-oriented hashtags serve as portals into how and why illness and disability are sites of political struggle and how illness politics is informed by, intersects with, and sometimes stands in for sexual, racial, and class politics. She argues that illness politics is central—and profoundly important—to both mainstream and radical politics, and she investigates the dynamic intersection of media and health and health-activist practices to show the ways their confluence affects our perception and understanding of illness.

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Rebirth of the Clinic
Places and Agents in Contemporary Health Care
Cindy Patton
University of Minnesota Press, 2010
From physical location to payment processes to expectations of both patients and caregivers, nearly everything surrounding the contemporary medical clinic's central activity has changed since Michel Foucualt's Birth of the Clinic. Indebted to that work, but recognizing the gap between what the modern clinic hoped to be and what it has become, Rebirth of the Clinic explores medical practices that shed light on the fraught relationship between medical systems, practitioners, and patients.

Combining theory, history, and ethnography, the contributors to this volume ground today's clinic in a larger scheme of power relations, identifying the cultural, political, and economic pressures that frame clinical relationships, including the instrumentalist definition of health, actuarial-based medical practices, and patient self-help movements, which simultaneously hem in and create the conditions under which agents creatively change ideas of illness and treatment.

From threatened community health centers in poor African American locales to innovative nursing practices among the marginally housed citizens of Canada's poorest urban neighborhood, this volume addresses not just the who, what, where, and how of place-specific clinical practices, but also sets these local experiences against a theoretical backdrop that links them to the power of modern medicine in shaping fundamental life experiences.
 
Contributors: Christine Ceci, U of Alberta; Lisa Diedrich, Stony Brook U; Suzanne Fraser, Monash U; John Liesch, Simon Fraser U; Jenna Loyd, CUNY; Annemarie Mol, U of Amsterdam; Mary Ellen Purkis, U of Victoria.
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Treatments
Language, Politics, and the Culture of Illness
Lisa Diedrich
University of Minnesota Press, 2007

Creative expression inspired by disease has been criticized as a celebration of victimhood, unmediated personal experience, or just simply bad art. Despite debate, however, memoirs written about illness—particularly AIDS or cancer—have proliferated since the late twentieth century and occupy a highly influential place on the cultural landscape today.

In Treatments, Lisa Diedrich considers illness narratives, demonstrating that these texts not only recount and interpret symptoms but also describe illness as an event that reflects wider cultural contexts, including race, gender, class, and sexuality. Diedrich begins this theoretically rigorous analysis by offering examples of midcentury memoirs of tuberculosis. She then looks at Susan Sontag’s Illness As Metaphor, Audre Lorde’s The Cancer Journals, and Eve Kosofsky Sedgwick’s “White Glasses,” showing how these breast cancer survivors draw on feminist health practices of the 1970s and also anticipate the figure that would appear in the wake of the AIDS crisis in the 1980s—the “politicized patient.” She further reveals how narratives written by doctors Abraham Verghese and Rafael Campo about treating people with AIDS can disrupt the doctor–patient hierarchy, and she explores practices of witnessing that emerge in writing by Paul Monette and John Bayley.

Through these records of intensely personal yet universal experience, Diedrich demonstrates how language both captures and fails to capture these “scenes of loss” and how illness narratives affect the literary, medical, and cultural contexts from which they arise. Finally, by examining the ways in which the sick speak and are spoken for, she argues for an ethics of failure—the revaluation of loss as creating new possibilities for how we live and die.

Lisa Diedrich is assistant professor of women’s studies at Stony Brook University.

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