BiblioVault - Books about Disease & Health Issues

Technopharmacology

Joshua Neves

University of Minnesota Press, 2022

Exploring networked technologies and bioeconomy and their links to biotechnologies, pharmacology, and pharmaceuticals

Being on social media, having pornography or an internet addiction, consciousness hacking, and mundane smartness initiatives are practices embodied in a similar manner to the swallowing of a pill. Such close relations of media technologies to pharmaceuticals and pharmacology is the focus of this book. Technopharmacology is a modest call to expand media theoretical inquiry by attending to the biological, neurological, and pharmacological dimensions of media and centers on emergent affinities between big data and big pharma.

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Testing Fate

Tay-Sachs Disease and the Right to Be Responsible

Shelley Z. Reuter

University of Minnesota Press, 2016

In today’s world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make “responsible” medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-à-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups. Tay-Sachs, an autosomal recessive disorder, is a case in point—with origins in the period of Eastern European Jewish immigration to the United States and United Kingdom that spanned the late nineteenth and early twentieth centuries, it has a long and fraught history as a marker of Jewish racial difference.

In Testing Fate, Shelley Z. Reuter asks: Can the biocitizen, especially one historically defined as a racialized and pathologized Other, be said to be exercising authentic, free choice in deciding whether to undertake genetic screening? Drawing on a range of historical and contemporary examples—doctors’ medical reports of Tay-Sachs since the first case was documented in 1881, the medical field’s construction of Tay-Sachs as a disease of Jewish immigrants, YouTube videos of children with Tay-Sachs that frame the disease as tragic disability avoidable through a simple genetic test, and medical malpractice suits since the test for the disease became available—Reuter shows that true agency in genetic decision-making can be exercised only from a place of cultural inclusion. Choice in this context is in fact a kind of unfreedom—a moral duty to act that is not really agency at all.

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Therapeutic Revolutions

Medicine, Psychiatry, and American Culture, 1945-1970

Halliwell, Martin

Rutgers University Press, 2014

Therapeutic Revolutions examines the evolving relationship between American medicine, psychiatry, and culture from World War II to the dawn of the 1970s. In this richly layered intellectual history, Martin Halliwell ranges from national politics, public reports, and healthcare debates to the ways in which film, literature, and the mass media provided cultural channels for shaping and challenging preconceptions about health and illness.

Beginning with a discussion of the profound impact of World War II and the Cold War on mental health, Halliwell moves from the influence of work, family, and growing up in the Eisenhower years to the critique of institutional practice and the search for alternative therapeutic communities during the 1960s. Blending a discussion of such influential postwar thinkers as Erich Fromm, William Menninger, Erving Goffman, Erik Erikson, and Herbert Marcuse with perceptive readings of a range of cultural text that illuminate mental health issues--among them Spellbound, Shock Corridor, Revolutionary Road, and I Never Promised You a Rose Garden--this compelling study argues that the postwar therapeutic revolutions closely interlink contrasting discourses of authority and liberation.

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Therapy Tech

The Digital Transformation of Mental Healthcare

Emma Bedor Hiland

University of Minnesota Press, 2021

A pointed look at the state of tech-based mental healthcare and what we must do to change it

Proponents of technology trumpet it as the solution to the massive increase in the mental distress that confronts our nation. They herald the arrival of algorithms, intelligent chatbots, smartphone applications, telemental healthcare services, and more—but are these technological fixes really as good as they seem? In Therapy Tech, Emma Bedor Hiland presents the first comprehensive study of how technology has transformed mental healthcare, showing that this revolution can’t deliver what it promises.

Far from providing a solution, technological mental healthcare perpetuates preexisting disparities while relying on the same failed focus on personal responsibility that has let us down before. Through vivid, in-depth case studies, Therapy Tech reveals these problems, covering issues including psychosurveillance on websites like Facebook and 7 Cups of Tea, shortcomings of popular AI “doctors on demand” like Woebot, Wysa, and Joy, and even how therapists are being conscripted into the gig economy.

Featuring a vital coda that brings Therapy Tech up to date for the COVID era, this book is the first to give readers a large-scale analysis of mental health technologies and the cultural changes they have enabled. Both a sobering dissection of the current state of mental health and a necessary warning of where things are headed, Therapy Tech makes an important assertion about how to help those in need of mental health services today.

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Ties That Enable

Community Solidarity for People Living with Serious Mental Health Problems

Teresa L. Scheid

Rutgers University Press, 2021

Ties that Enable is written for students, providers, and advocates seeking to understand how best to improve mental health care – be it for themselves, their loved ones, their clients, or for the wider community. The authors integrate their knowledge of mental health care as researchers, teachers, and advocates and rely on the experiences of people living with severe mental health problems to help understand the sources of community solidarity. Communities are the primary source of social solidarity, and given the diversity of communities, solutions to the problems faced by individuals living with severe mental health problems must start with community level initiatives. “Ties that Enable” examines the role of a faith-based community group in providing a sense of place and belonging as well as reinforcing a valued social identity. The authors argue that mental health reform efforts need to move beyond a focus on individual recovery to more complex understandings of the meaning of community care. In addition, mental health care needs to move from a medical model to a social model which sees the roots of mental illness and recovery as lying in society, not the individual. It is our society’s inability to provide inclusive supportive environments which restrict the ability of individuals to recover. This book provides insights into how communities and system level reforms can promote justice and the higher ideals we aspire to as a society.

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Toward a Healthier Garden State

Beyond Cancer Clusters and COVID

Michael R. Greenberg

Rutgers University Press, 2023

While New Jersey now frequently appears near the top in listings of America’s healthiest states, this has not always been the case. The fluctuations in the state’s overall levels of health have less to do with the lifestyle choices of individual residents and more to do with broader structural issues, ranging from pollution to urban design to the consolidation of the health care industry.

This book uses the past fifty years of New Jersey history as a case study to illustrate just how much public policy decisions and other upstream factors can affect the health of a state’s citizens. It reveals how economic and racial disparities in health care were exacerbated by bad policies regarding everything from zoning to education to environmental regulation. The study further chronicles how New Jersey struggled to deal with public health crises like the AIDS epidemic and the crack epidemic. Yet it also explores how the state has developed some of the nation’s most innovative responses to public health challenges, and then provides policy suggestions for how we might build an even healthier New Jersey.

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Transformed States

Medicine, Biotechnology, and American Culture, 1990–2020

Martin Halliwell

Rutgers University Press, 2025

Transformed States offers a timely history of the politics, ethics, medical applications, and cultural representations of the biotechnological revolution, from the Human Genome Project to the COVID-19 pandemic. In exploring the entanglements of mental and physical health in an age of biotechnology, it views the post–Cold War 1990s as the horizon for understanding the intersection of technoscience and culture in the early twenty-first century.

The book draws on original research spanning the presidencies of George H. W. Bush and Joe Biden to show how the politics of science and technology shape the medical uses of biotechnology. Some of these technologies reveal fierce ideological conflicts in the arenas of cloning, reproduction, artificial intelligence, longevity, gender affirmation, vaccination and environmental health. Interweaving politics and culture, the book illustrates how these health issues are reflected in and challenged by literary and cinematic texts, from Oryx and Crake to Annihilation, and from Gattaca to Avatar.

By assessing the complex relationship between federal politics and the biomedical industry, Transformed States develops an ecological approach to public health that moves beyond tensions between state governance and private enterprise. To that end, Martin Halliwell analyzes thirty years that radically transformed American science, medicine, and policy, positioning biotechnology in dialogue with fears and fantasies about an emerging future in which health is ever more contested.

Along with the two earlier books, Therapeutic Revolutions (2013) and Voices of Mental Health (2017), Transformed States is the final volume of a landmark cultural and intellectual history of mental health in the United States, journeying from the combat zones of World War II to the global emergency of COVID-19.

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Transforming Contagion

Risky Contacts among Bodies, Disciplines, and Nations

Fahs, Breanne

Rutgers University Press, 2018

2019 Choice Outstanding Academic Title

Moving from viruses, vaccines, and copycat murder to gay panics, xenophobia, and psychopaths, Transforming Contagion energetically fuses critical humanities and social science perspectives into a boundary-smashing interdisciplinary collection on contagion. The contributors provocatively suggest contagion to be as full of possibilities for revolution and resistance as it is for the descent into madness, malice, and extensive state control. The infectious practices rooted in politics, film, psychological exchanges, social movements, the classroom, and the circulation of a literary text or meme on social media compellingly reveal patterns that emerge in those attempts to re-route, quarantine, define, or even exacerbate various contagions.

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Transnational Aging and Reconfigurations of Kin Work

Dossa, Parin

Rutgers University Press, 2017

Transnational Aging and Reconfigurations of Kin Work documents the social and material contributions of older persons to their families in settings shaped by migration, their everyday lives in domestic and community spaces, and in the context of intergenerational relationships and diasporas. Much of this work is oriented toward supporting, connecting, and maintaining kin members and kin relationships—the work that enables a family to reproduce and regenerate itself across generations and across the globe.

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Transplanting Care

Shifting Commitments in Health and Care in the United States

Heinemann, Laura L.

Rutgers University Press, 2016

The sudden call, the race to the hospital, the high-stakes operation—the drama of transplant surgery is well known. But what happens before and after the surgery? In Transplanting Care, Laura L. Heinemann examines the daily lives of midwestern organ transplant patients and those who care for them, from pretransplant preparations through to the long posttransplant recovery.

Heinemann points out that as efforts to control healthcare costs gain urgency—and as new surgical techniques, drug therapies, and home medical equipment advance—most of the transplant process now takes place at home, among kin. Indeed, the transplant system effectively depends on unpaid care labor, typically provided by spouses, parents, siblings, and others. Drawing on scores of interviews with patients, relatives, and healthcare professionals, Heinemann follows a variety of patients and loved ones as they undertake this uncertain and strenuous “transplant journey.” She also shows how these home-based caregiving efforts take place within the larger economic and political context of a paucity of resources for patients and caregivers, who ultimately must surmount numerous obstacles. The author concludes that the many snags encountered by transplant patients and loved ones make a clear case for more comprehensive health and social policy that treats care as a necessarily shared public responsibility.

An illuminating look at the long transplant journey, Transplanting Care also offers broader insight into how we handle infirmity in America—and how we might do a better job of doing so.

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Trauma and Recovery on War's Border

A Guide for Global Health Workers

Edited by Kathleen Allden and Nancy Murakami

Dartmouth College Press, 2015

An increasing number of students and professionals are choosing to travel the globe to engage with the realities of trauma and human suffering through mental health aid. But in the field of global mental health, good intentions are not enough to ensure good training, development, and care. The risk of harm is real when outsiders deliver mental health aid in culturally inappropriate and otherwise naïve ways. This book, based on the experiences of the co-editors and their colleagues at Burma Border Projects (BBP), a nonprofit organization dedicated to the mental health and psychosocial well-being of the displaced people of Burma, sets out global mental health theory allied with local perspectives, experiences, real-life challenges, strengths, and best practices. Topics include assessment and intervention protocols, vulnerable groups and the special challenges they present, and supervision and evaluation programs. An introduction by the editors establishes the political and health contexts for the volume. Written in a style appropriate for academic audiences and lay readers, this book will serve as a fundamental text for clinicians, interns, volunteers, and researchers who work in regions of the world that have suffered the violence of war, forced displacement, human rights violations, poverty, and oppression.

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Twenty Years of Life

Why the Poor Die Earlier and How to Challenge Inequity

Suzanne Bohan

Island Press, 2018

In Twenty Years of Life, Suzanne Bohan exposes the disturbing flip side of the American dream: your health is largely determined by your zip code. The strain of living in a poor neighborhood, with sub-par schools, lack of parks, fear of violence, few to no healthy food options, and the stress of unpaid bills is literally taking years off people’s lives. The difference in life expectancy between wealthy and distressed neighborhoods can be as much as twenty years.

Bohan chronicles a bold experiment to challenge this inequity. The California Endowment, one of the nation’s largest health foundations, is upending the old-school, top-down charity model and investing $1 billion over ten years to help distressed communities advocate for their own interests. This new approach to community change draws on the latent political power of residents and is driving reform both locally and in the state’s legislative chambers. If it can work in fourteen of California’s most challenging and diverse communities, it has the potential to work anywhere in the country.

Bohan introduces us to former street shooters with official government jobs; kids who convinced their city council members to build skate parks; students and parents who demanded fairer school discipline policies to keep kids in the classroom; urban farmers who pushed for permits to produce and sell their food; and a Native American tribe that revived its traditional forest management practices. Told with compassion and insight, their stories will fundamentally change how we think about the root causes of disease and the prospects for healing.

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