Each day of working parenthood is a rollercoaster of success and failure. My child ate a carrot! Then spit it out on the dog. I got to work on time! But there is a mystery stain on my dress shirt and this Tide stick is definitely making it worse. Also yes, that was “Baby Shark” I was humming while accidentally unmuted on the Zoom call, and no, I am not going to be able to sew an octopus costume from scratch by Friday. Please tell me there is something available at Target. 

As a parent, we live through levels of both joy and sorrow that we didn’t even know existed before. And we wonder—is it only me? Am I alone in this? In Parenting on the Frontlines, we explore both the lighter and heavier sides of working parenthood. The stories shared here are written by healthcare workers at Michigan Medicine, but all caregivers will find pieces to which they can relate. Most importantly, we want you to know that you are not alone on your journey, no matter where it takes you. 

For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.

            The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.

            Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.

            The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.

            Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

The 1950s and 1960s were years of shifting values and social changes that did not sit well with many citizens of Richmond, Virginia, and in particular with one conservative family, a staunchly southern mother and father and their two daughters.  A powerful evocation of time and place, this memoir—a gifted poet's first book of prose—is the story of an inquisitive and sensitive young woman's coming of age and a deeply moving recounting of her reconciliation later in life with the family she left behind.

Returning us to a Cold War world marked by divisions of race, gender, wealth, and class, The Prodigal Daughter is an exploration of difference, the powerful wedge that separates individuals within a social milieu and within a family. Echoing the biblical Prodigal Son, Margaret Gibson's memoir is less concerned with the years of excess away from home than with the seeds of division sown in this family's early years.  Hers is the story of a mother proud to be a Lady, a Southerner, and a Christian; of two daughters trapped by their mother's power; and of their father's breakdown under social and family expectations.

Slow to rebel, young Margaret finally flees the world of manners and custom—which she deems poor substitutes for right thought and right action in the face of the Civil Rights movement and the Vietnam War—and abandons her fundamentalist upbringing.  In a defiant gesture that proves prophetic, she once signed a postcard home "The Prodigal."  After years of being the distant, absent daughter, she finds herself returning home to meet the needs of her stroke-crippled younger sister and her incapacitated parents.

In this tale of homecoming and forgiveness, death and dying, Gibson recounts how she overcame her long indifference to a sister she had thought different from herself, recognizing the strengths of the bonds that both hold us and set us free. Interweaving astute social observations on social pressures, race relations, sibling rivalry, adolescent angst, and more, The Prodigal Daughter is a startlingly honest portrayal of one family in one southern city and the story of all too many families across America.