front cover of Dangerous Diagnostics
Dangerous Diagnostics
The Social Power of Biological Information
Dorothy Nelkin and Laurence Tancredi
University of Chicago Press, 1994
Dangerous Diagnostics is a powerful study of the pervasiveness of diagnostic testing and the potential it offers institutions to classify, categorize, and ultimately control individuals. Nelkin and Tancredi explore the ethical, social, and legal implications of cutting-edge technologies that can lead to new forms of discrimination in the name of standardized, objective measurements. They caution against the creation of an underclass deemed unemployable, untrainable, or uninsurable by such diagnostic tests.
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front cover of Saving Babies?
Saving Babies?
The Consequences of Newborn Genetic Screening
Stefan Timmermans and Mara Buchbinder
University of Chicago Press, 2012
It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives—inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In Saving Babies?, Stefan Timmermans and Mara Buchbinder evaluate the consequences and benefits of state-mandated newborn screening—and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology.
 
Drawing on observations and interviews with families, doctors, and policy actors, Timmermans and Buchbinder have given us the first ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns. Ideal for scholars of medicine, public health, and public policy, this book is destined to become a classic in its field.
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Testing Baby
The Transformation of Newborn Screening, Parenting, and Policymaking
Grob, Rachel
Rutgers University Press, 2011

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized.

Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.

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front cover of A Woman's Concise Guide to Common Medical Tests
A Woman's Concise Guide to Common Medical Tests
Moore, M.D., Michele C
Rutgers University Press, 2005

Every year, millions of healthy women undergo a variety of screening tests without understanding why or the meaning of the outcome. If you are among those women, overwhelmed by information and baffled by results, this is the book you've been waiting for. In straightforward, personable prose, A Woman's Concise Guide to Common Medical Tests surveys a wide variety of standard tests commonly suggested by doctors.

Using the recommendations of the U.S. Preventative Health Services Task Force as a starting point, physicians Michele C. Moore and Caroline M. de Costa describe and explain screening tests for STDs and other communicable diseases, diabetes, thyroid disease, bone loss, various genetic tests, pregnancy, and cancer (including breast, colon, and skin). A section on common blood tests demystifies the numerical results that can be virtually impossible to interpret for women outside the medical profession. The authors detail what is considered "normal" as well as what's not-to help women make sense of their results.

As practicing physicians, both authors have fielded patients' questions about standard screening tests and understand what women should know but often feel afraid to ask about. For each test, there is an explanation of why it may be ordered, how it is done, what sort of preparation may be involved, and what risks may be incurred.

As the health-care industry continues to evolve, the amount of medical information available to women about their health can be overwhelming and confusing. Without being encyclopedic or intimidating, A Woman's Concise Guide to Common Medical Tests offers all the facts you need about screening tests, all in one place.

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