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The Last of His Mind
A Year in the Shadow of Alzheimer’s
John Thorndike
Ohio University Press, 2011
NEW EDITIONS AVAILABLE: Paperback ISBN 978–0804012362 / Electronic ISBN 978–0804041201 Joe Thorndike was managing editor of Life at the height of its popularity immediately following World War II. He was the founder of American Heritage and Horizon magazines, the author of three books, and the editor of a dozen more. But at age 92, in the space of six months he stopped reading or writing or carrying on detailed conversations. He could no longer tell time or make a phone call. He was convinced that the governor of Massachusetts had come to visit and was in the refrigerator. Five million Americans suffer from Alzheimer’s, and like many of them, Joe Thorndike’s one great desire was to remain in his own house. To honor his wish, his son John left his own home and moved into his father’s upstairs bedroom on Cape Cod. For a year, in a house filled with file cabinets, photos, and letters, John explored his father’s mind, his parents’ divorce, and his mother’s secrets. The Last of His Mind is the bittersweet account of a son’s final year with his father, and a candid portrait of an implacable disease. It’s the ordeal of Alzheimer’s that draws father and son close, closer than they have been since John was a boy. At the end, when Joe’s heart stops beating, John’s hand is on his chest, and a story of painful decline has become a portrait of deep family ties, caregiving, and love.
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Life with a Superhero
Raising Michael Who Has Down Syndrome
Kathryn U. Hulings
University of North Texas Press, 2013

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Limping through Life
A Farm Boy’s Polio Memoir
Jerry Apps
Wisconsin Historical Society Press, 2013
Limping through Life
A Farm Boy’s Polio Memoir

Jerry Apps

“Families throughout the United States lived in fear of polio throughout the late 1940s and early 1950s, and now the disease had come to our farm. I can still remember that short winter day and the chilly night when I first showed symptoms. My life would never be the same.”
—from the Introduction

Polio was epidemic in the United States starting in 1916. By the 1930s, quarantines and school closings were becoming common, as isolation was one of the only ways to fight the disease. The Sauk vaccine was not available until 1955; in that year, Wisconsin’s Fox River valley had more polio cases per capita than anywhere in the United States. In his most personal book, Jerry Apps, who contracted polio at age twelve, reveals how the disease affected him physically and emotionally, profoundly influencing his education, military service, and family life and setting him on the path to becoming a professional writer.
A hardworking farm kid who loved playing softball, young Jerry Apps would have to make many adjustments and meet many challenges after that winter night he was stricken with a debilitating, sometimes fatal illness. In Limping through Life he explores the ways his world changed after polio and pays tribute to those family members, teachers, and friends who helped him along the way.
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Living in the Lightning
A Cancer Journal
Robins, Natalie
Rutgers University Press, 1999
November 27, 1995: Late this afternoon I was diagnosed with cancer. I learned that I had a form of non-Hodgkin's lymphoma called 'malt,' for mucous-associated lymphoid tissue.' My oncologist, J. Gregory Mears, M.D., said that mine 'was not a bad story,' because my tumors were 'indolent,' slow-growing. Not a bad story? Doesn't just about everyone know that non-Hodgkin's Lymphoma is incurable? I have incurable cancer." So begins Natalie Robin's journal, first serialized in Self magazine, now compiled and expanded in Living in the Lightning. Robins writes frankly, with grace and realism, of her personal journey of learning to live with cancer. Her candid observations, reactions, and emotions throughout her diagnosis and treatment hit home, as she asks questions all of us might when faced with such appalling news:
* How should I tell my mother?
* Will my husband remarry after I die?
* What should I wear to chemotherapy?
* What would happen if I jumped off the table during radiation treatment?
* Can I ever forget I have cancer? Robins's warm and sincerely uplifting portrait of quiet courage will give encouragement to the millions of people with cancer, and the millions more who love them.
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Living With Cancer
A Practical Guide
Visel, Dave
Rutgers University Press, 2006

In this essential guide, Dave Visel draws on expertise hard-won during his wife’s battle with lymphoma. He provides an overview of the varieties of cancer and all the basic types of treatments available. Chapters dispel common myths associated with these treatments and provide tips on nutrition and physical fitness. Visel also moves beyond the hospital to provide information and strategies to help with the emotional, practical, and financial effects of a diagnosis. Cancer patients will find the tools they need to make well-informed decisions on questions ranging from the right time to tell coworkers to whether to travel for treatment.  Because medical bankruptcies affect nearly two million Americans each year, Visel devotes several chapters to financial issues.  He also addresses the effects of cancer on relationships, such as how to deal with a difficult parent or whether to reconcile with an estranged spouse. In addition, Living with Cancer provides a comprehensive overview of the most useful corporate, government, and non-profit resources available. Anyone looking for help in understanding the full range of personal, professional, and legal issues associated with cancer will welcome this book. As inspiring as it is informative, it is a survival guide in the truest sense.

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Loose of Earth
A Memoir
Kathleen Dorothy Blackburn
University of Texas Press, 2024

An arresting memoir of love and unbending religion, toxicity and disease, and one family’s desperate wait for a miracle that never came.

Kathleen Dorothy Blackburn was the oldest of five children, a twelve-year-old from Lubbock, Texas, whose evangelical family eschewed public education for homeschooling, and wove improbable scientific theories into literal interpretations of the Bible. Then her father, a former air force pilot, was diagnosed with cancer at the age of thirty-eight, and, “it was like throwing gasoline on the Holy Spirit.” Stirred by her mother, the family committed to an extreme diet and sought deliverance from equally extreme sources: a traveling tent preacher, a Malaysian holy man, a local faith-healer who led services called “Miracles on 34th Street.”

What they didn’t know at the time was that their lives were entangled with a larger, less visible environmental catastrophe. Fire-fighting foams containing carcinogenic compounds had contaminated the drinking water of every military site where her father worked. Commonly referred to as “forever chemicals,” the presence of PFAS in West Texas besieged a landscape already burdened with vanishing water, taking up residence in wells and in the bloodstreams of people who lived there. An arresting portrait of the pernicious creep of decline, and a powerful cry for environmental justice, Loose of Earth captures the desperate futility and unbending religious faith that devastated a family, leaving them waiting for a miracle that would never come.

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Loss within Loss
Artists in the Age of AIDS
Edited by Edmund White; In Cooperation with the Estate Project for Artists with AIDS, a project of the Alliance for the Arts
University of Wisconsin Press, 2002
When an artist dies we face two great losses: the person and the work he did not live to do. Loss within Loss  is a moving collaboration by some of America's most eloquent writers, who supply wry, raging, sorrowful, and buoyant accounts of artist friends and lovers struck down by AIDS. These essayists include Maya Angelou, Alan Gurganus, Brad Gooch, John Berendt, Craig Lucas, Robert Rosenblum, and eighteen others. Many of the subjects of the essays were already prominent—James Merrill, Paul Monette, David Wojnarowicz—but many others died young, before they were able to fulfil the promise of their lives and art. Loss within Loss spans all of the arts and includes portraits of choreographers, painters, poets, actors, playwrights, sculptors, editors, composers, and architects.

This landmark book is published in association with the Estate Project for Artists with AIDS, a national organization that preserves art works created by artists living with HIV or lost to AIDS. Loss within Loss stands as a powerful reminder of the devastating impact of the AIDS epidemic on the arts community and as the first real survey of that devastation. Though these accounts are often intensely sad, Loss within Loss is an invigorating, sometimes even exuberant, testimony to the sheer joy of being an artist . . . and being alive.

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Love and Fatigue in America
Roger King
University of Wisconsin Press, 2012

Love and Fatigue in America records an Englishman’s decade-long journey through his newly adopted country in the company of a mystifying illness and a charismatic dog.
    When he receives an unexpected invitation from an unfamiliar American university, he embraces it as a triumphant new beginning. Instead, on arrival, he is stricken with a persistent inability to stand up or think straight, and things quickly go wrong. Diagnosed with ME disease—chronic fatigue syndrome—he moves restlessly from state to state, woman to woman, and eccentric doctor to eccentric doctor, in a search for a love and a life suited to his new condition. The journey is simultaneously brave, absurd, and instructive.
    Finding himself prostrate on beds and couches from Los Alamos to Albany, he hears the intimate stories offered by those he encounters—their histories, hurts, and hopes—and from these fragments an unsentimental map emerges of the inner life of a nation. Disability has shifted his interest in America from measuring its opportunities to taking the measure of its humanity. Forced to consider for himself the meaning of a healthy life and how best to nurture it, he incidentally delivers a report on the health of a country.
    By turns insightful, comic, affecting, and profound, Roger King’s Love and Fatigue in America briskly compresses an illness, a nation, and an era through masterly blending of literary forms. In a work that defies categorization, and never loses its pace or poise, the debilitated narrator is, ironically, the most lively and fully awake figure in the book.

“Remarkable. . . . [S]mart and funny. . . .[A]musing observations about everything American. . . . [T]his is not a traditional novel. . . . [T]his, as it turns out, is a brilliant perspective from which to view and write about life. . . . [G]reat reckonings unfurl in mere paragraphs.”—Jackson Newspapers.com

“As the disease drives the narrator city to city, woman to woman, and doctor to doctor, it brings into relief many of America’s follies and excesses, most notably our health-care system, which King portrayed as antiquated, bureaucratic, and inhumane. After more than fifteen years, America brings the narrator ‘not aspiration realized, nor a largeness of life fitting to its open spaces, but the nascent ability to be satisfied with less.’”—The New Yorker
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