In this essential guide, Dave Visel draws on expertise hard-won during his wife’s battle with lymphoma. He provides an overview of the varieties of cancer and all the basic types of treatments available. Chapters dispel common myths associated with these treatments and provide tips on nutrition and physical fitness. Visel also moves beyond the hospital to provide information and strategies to help with the emotional, practical, and financial effects of a diagnosis. Cancer patients will find the tools they need to make well-informed decisions on questions ranging from the right time to tell coworkers to whether to travel for treatment. Because medical bankruptcies affect nearly two million Americans each year, Visel devotes several chapters to financial issues. He also addresses the effects of cancer on relationships, such as how to deal with a difficult parent or whether to reconcile with an estranged spouse. In addition, Living with Cancer provides a comprehensive overview of the most useful corporate, government, and non-profit resources available. Anyone looking for help in understanding the full range of personal, professional, and legal issues associated with cancer will welcome this book. As inspiring as it is informative, it is a survival guide in the truest sense.
An arresting memoir of love and unbending religion, toxicity and disease, and one family’s desperate wait for a miracle that never came.
Kathleen Dorothy Blackburn was the oldest of five children, a twelve-year-old from Lubbock, Texas, whose evangelical family eschewed public education for homeschooling, and wove improbable scientific theories into literal interpretations of the Bible. Then her father, a former air force pilot, was diagnosed with cancer at the age of thirty-eight, and, “it was like throwing gasoline on the Holy Spirit.” Stirred by her mother, the family committed to an extreme diet and sought deliverance from equally extreme sources: a traveling tent preacher, a Malaysian holy man, a local faith-healer who led services called “Miracles on 34th Street.”
What they didn’t know at the time was that their lives were entangled with a larger, less visible environmental catastrophe. Fire-fighting foams containing carcinogenic compounds had contaminated the drinking water of every military site where her father worked. Commonly referred to as “forever chemicals,” the presence of PFAS in West Texas besieged a landscape already burdened with vanishing water, taking up residence in wells and in the bloodstreams of people who lived there. An arresting portrait of the pernicious creep of decline, and a powerful cry for environmental justice, Loose of Earth captures the desperate futility and unbending religious faith that devastated a family, leaving them waiting for a miracle that would never come.
This landmark book is published in association with the Estate Project for Artists with AIDS, a national organization that preserves art works created by artists living with HIV or lost to AIDS. Loss within Loss stands as a powerful reminder of the devastating impact of the AIDS epidemic on the arts community and as the first real survey of that devastation. Though these accounts are often intensely sad, Loss within Loss is an invigorating, sometimes even exuberant, testimony to the sheer joy of being an artist . . . and being alive.
Love and Fatigue in America records an Englishman’s decade-long journey through his newly adopted country in the company of a mystifying illness and a charismatic dog.
When he receives an unexpected invitation from an unfamiliar American university, he embraces it as a triumphant new beginning. Instead, on arrival, he is stricken with a persistent inability to stand up or think straight, and things quickly go wrong. Diagnosed with ME disease—chronic fatigue syndrome—he moves restlessly from state to state, woman to woman, and eccentric doctor to eccentric doctor, in a search for a love and a life suited to his new condition. The journey is simultaneously brave, absurd, and instructive.
Finding himself prostrate on beds and couches from Los Alamos to Albany, he hears the intimate stories offered by those he encounters—their histories, hurts, and hopes—and from these fragments an unsentimental map emerges of the inner life of a nation. Disability has shifted his interest in America from measuring its opportunities to taking the measure of its humanity. Forced to consider for himself the meaning of a healthy life and how best to nurture it, he incidentally delivers a report on the health of a country.
By turns insightful, comic, affecting, and profound, Roger King’s Love and Fatigue in America briskly compresses an illness, a nation, and an era through masterly blending of literary forms. In a work that defies categorization, and never loses its pace or poise, the debilitated narrator is, ironically, the most lively and fully awake figure in the book.
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