Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
Virginia Tibbs-Brelje Gallaudet University Press, 1986 Library of Congress PZ7.S4294Be 1986
"A 1987 Outstanding Book for Young Adults"
--University of Iowa Poll
"Gustie Blaine is 15 when she contracts meningitis. After a long recovery period during which she loses the small amount of residual hearing she had seemed to retain, Gustie tries to pick up the pieces of her life. Her parents are unrealistic and over protective; her best friend rejects her; her teachers run the gamut from being convinced Gustie cannot function in the mainstream to being supportive... through a new boyfriend who has a deaf brother and sister-in-law, and through Gustie's visit with an understanding special education teacher to a class of predominately congenitally deaf students, readers are made aware of the tremendous range of difference among deaf and hard of hearing people, the ways in which they communicate and the technical aids available to them. Realistic and involving...[Young Adults] will identify with Gustie and her wish to belong; the book should touch them and be popular."
--School Library Journal
Virginia M. Scott is a writer. Like Gustie, the main character in her novel, Ms. Scott became deaf as an adolescent.
Years before Hitler unleashed the “Final Solution” to annihilate European Jews, he began a lesser-known campaign to eradicate the mentally ill, which facilitated the gassing and lethal injection of as many as 270,000 people and set a precedent for the mass murder of civilians. In Confronting the “Good Death” Michael Bryant analyzes the U.S. government and West German judiciary’s attempt to punish the euthanasia killers after the war.
The first author to address the impact of geopolitics on the courts’ representation of Nazi euthanasia, Bryant argues that international power relationships wreaked havoc on the prosecutions.
Drawing on primary sources, this provocative investigation of the Nazi campaign against the mentally ill and the postwar quest for justice will interest general readers and provide critical information for scholars of Holocaust studies, legal history, and human rights. Support for this publication was generously provided by the Eugene M. Kayden Fund at the University of Colorado.
Crippled Justice, the first comprehensive intellectual history of disability policy in the workplace from World War II to the present, explains why American employers and judges, despite the Americans with Disabilities Act, have been so resistant to accommodating the disabled in the workplace. Ruth O'Brien traces the origins of this resistance to the postwar disability policies inspired by physicians and psychoanalysts that were based on the notion that disabled people should accommodate society rather than having society accommodate them.
O'Brien shows how the remnants of postwar cultural values bogged down the rights-oriented policy in the 1970s and how they continue to permeate judicial interpretations of provisions under the Americans with Disabilities Act. In effect, O'Brien argues, these decisions have created a lose/lose situation for the very people the act was meant to protect. Covering developments up to the present, Crippled Justice is an eye-opening story of government officials and influential experts, and how our legislative and judicial institutions have responded to them.
Cultural Locations of Disability
Sharon L. Snyder and David T. Mitchell University of Chicago Press, 2006 Library of Congress HV1568.S69 2006 | Dewey Decimal 305.908
In Cultural Locations of Disability, Sharon L. Snyder and David T. Mitchell trace how disabled people came to be viewed as biologically deviant. The eugenics era pioneered techniques that managed "defectives" through the application of therapies, invasive case histories, and acute surveillance techniques, turning disabled persons into subjects for a readily available research pool. In its pursuit of normalization, eugenics implemented disability regulations that included charity systems, marriage laws, sterilization, institutionalization, and even extermination. Enacted in enclosed disability locations, these practices ultimately resulted in expectations of segregation from the mainstream, leaving today's disability politics to focus on reintegration, visibility, inclusion, and the right of meaningful public participation.
Snyder and Mitchell reveal cracks in the social production of human variation as aberrancy. From our modern obsessions with tidiness and cleanliness to our desire to attain perfect bodies, notions of disabilities as examples of human insufficiency proliferate. These disability practices infuse more general modes of social obedience at work today. Consequently, this important study explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self.
The Deaf Heart: A Novel
Willy Conley Gallaudet University Press, 2015 Library of Congress PS3603.O536D43 2015 | Dewey Decimal 813.6
Told through a series of quirky, irreverent short stories and letters home during the early 1980s, The Deaf Heart chronicles a year in the life of Dempsey “Max” McCall, a Deaf biomedical photography resident at a teaching hospital on the island of Galveston, Texas. Max strives to become certified as a Registered Biological Photographer while straddling the deaf and hearing worlds. He befriends Reynaldo, an impoverished Deaf Mexican, and they go on a number of unusual escapades around the island.
At the hospital, Max has to contend with hearing doctors, nurses, scientists, and teachers. While struggling through the rigors of his residency and running into bad luck in meeting women, Max discovers an ally in his hearing housemate Zag, a fellow resident who is also vying for certification. Toward the end of his residency, Max meets Maddy, a Deaf woman who helps bring balance to his life.
Author Willy Conley’s stories, some humorous, some poignant, reveal Max’s struggles and triumphs as he attempts to succeed in the hearing world while at the same time navigating the multicultural and linguistic diversity within the Deaf world.
In topics ranging from industrial accident prevention before and during Stalin's industrialization drive to the long and complex history of the Soviet “science” called defectology, the essays in this collection chronicle the responses of the state and society to a variety of disabled groups and disabilities. Also included, in addition to the editors, are Julie Brown, Vera Dunham, David Joravsky, Janet Knox and Alex Kozulin, Stephen and Ethel Dunn, Bernice Madison, Paul Raymond, and Mark Field.
This unusual and provocative collection brings to light a dimension of Soviet history and policy rarely explored.
"Freedom and Justice for all" is a phrase that can have a hollow ring for many members of the disability community in the United States. Jacqueline Vaughn Switzer gives us a comprehensive introduction to and overview of U.S. disability policy in all facets of society, including education, the workplace, and social integration. Disabled Rights provides an interdisciplinary approach to the history and politics of the disability rights movement and assesses the creation and implementation, successes and failures of the 1990 Americans with Disabilities Act (ADA) by federal, state and local governments.
Disabled Rights explains how people with disabilities have been treated from a social, legal, and political perspective in the United States. With an objective and straightforward approach, Switzer identifies the programs and laws that have been enacted in the past fifty years and how they have affected the lives of people with disabilities. She raises questions about Congressional intent in passing the ADA, the evolution and fragmentation of the disability rights movement, and the current status of disabled people in the U.S.
Illustrating the shift of disability issues from a medical focus to civil rights, the author clearly defines the contemporary role of persons with disabilities in American culture, and comprehensively outlines the public and private programs designed to integrate disabled persons into society. She covers the law's provisions as they apply to private organizations and businesses and concludes with the most up-to-date coverage of recent Supreme Court decisions-especially since the 2000-2002 terms-that have profoundly influenced the implementation of the ADA and other disability policies.
For activists as well as scholars, students, and practitioners in public policy and public administration, Switzer has written a compassionate, yet powerful book that demands attention from everyone interested in the battle for disability rights and equality in the United States.
In North America, immigration has never been about immigration. That was true in the early twentieth century when anti-immigrant rhetoric led to draconian crackdowns on the movement of bodies, and it is true today as new measures seek to construct migrants as dangerous and undesirable. This premise forms the crux of Jay Timothy Dolmage’s new book Disabled Upon Arrival: Eugenics, Immigration, and the Construction of Race and Disability, a compelling examination of the spaces, technologies, and discourses of immigration restriction during the peak period of North American immigration in the early twentieth century.
Through careful archival research and consideration of the larger ideologies of racialization and xenophobia, Disabled Upon Arrival links anti-immigration rhetoric to eugenics—the flawed “science” of controlling human population based on racist and ableist ideas about bodily values. Dolmage casts an enlightening perspective on immigration restriction, showing how eugenic ideas about the value of bodies have never really gone away and revealing how such ideas and attitudes continue to cast groups and individuals as disabled upon arrival.
The Americans with Disabilities Act (ADA) of 1990 was intended to send a clear message to society that discrimination on the basis of disability is unacceptable. As with most civil rights laws, the courts were given primary responsibility for implementing disability rights policy.
Mezey argues that the act has not fulfilled its potential primarily because of the judiciary's "disabling interpretations" in adjudicating ADA claims. In the decade of litigation following the enactment of the ADA, judicial interpretation of the law has largely constricted the parameters of disability rights and excluded large numbers of claimants from the reach of the law. The Supreme Court has not interpreted the act broadly, as was intended by Congress, and this method of decision making was for the most part mirrored by the courts below. The high court's rulings to expand state sovereign immunity and insulate states from liability in damage suits has also caused claimants to become enmeshed in litigation and has encouraged defendants to challenge other laws affecting disability rights. Despite the law's strong civil rights rhetoric, disability rights remain an imperfectly realized goal.
Presenting thirteen essays, editors James C. Wilson and Cynthia Lewiecki-Wilson unite the fields of disability studies and rhetoric to examine connections between disability, education, language, and cultural practices. Bringing together theoretical and analytical perspectives from rhetorical studies and disability studies, these essays extend both the field of rhetoric and the newer field of disability studies.
The contributors span a range of academic fields including English, education, history, and sociology. Several contributors are themselves disabled or have disabled family members. While some essays included in this volume analyze the ways that representations of disability construct identity and attitudes toward the disabled, other essays use disability as a critical modality to rethink economic theory, educational practices, and everyday interactions. Among the disabilities discussed within these contexts are various physical disabilities, mental illness, learning disabilities, deafness, blindness, and diseases such as multiple sclerosis and AIDS.
The Americans with Disabilities Act of 1990 (ADA) was heralded by its congressional sponsors as an "emancipation proclamation" for people with disabilities and as the most important civil rights legislation passed in a generation. Employment, Disability, and the Americans with Disabilities Act offers a meticulously documented assessment of what has occurred since the ADA's enactment. In reasoned, empirically based articles, contributors from law, health policy, government, and business reveal the unsoundness of charges from the right that the ADA will bankrupt industry and assumptions on the left that the ADA will prove ineffective in helping those with disabilities enter and remain in the workforce.
The Fisher King: A Novel
Anthony Powell University of Chicago Press, 2004 Library of Congress PR6031.O74F57 2004 | Dewey Decimal 823.912
Aboard the Alecto, prolific romance author Valentine Beals ruminates on the ship's most seemingly incongruous couple: a graceful, ethereal, virginal dancer named Barberina Rookwood and her lover, Saul Henchman, a crippled, emasculated war hero and photographer. Fancifully, Beals imagines Henchman to be the reembodiment of one of the most mysterious Arthurian legends, the Fisher King—the maimed and impotent ruler of a barren country of whom Perceval failed to ask the right questions. A myth with many permutations—and a blurred borderland between them—the Fisher King legend dovetails the various explanations Powell offers from his competing narrators as to why a talented young dancer would forsake her art to care for a feeble older man.
Ostensibly a novel about gossip on a cruise ship, The Fisher King is much more: a highly stylized narrative infused with Greek mythology, legend, and satire.
Foucault and the Government of Disability considers the continued relevance of Foucault to disability studies, as well as the growing significance of disability studies to understandings of Foucault. A decade ago, this international collection provocatively responded to Foucault’s call to question what is regarded as natural, inevitable, ethical, and liberating. The book’s contributors draw on Foucault to scrutinize a range of widely endorsed practices and ideas surrounding disability, including rehabilitation, community care, impairment, normality and abnormality, inclusion, prevention, accommodation, and special education. In this revised and expanded edition, four new essays extend and elaborate the lines of inquiry by problematizing (to use Foucault’s term) the epistemological, political, and ethical character of the supercrip, the racialized war on autism, the performativity of intellectual disability, and the potent mixture of neoliberalism and biopolitics in the context of physician-assisted suicide.
“[A]n important, prescient, and necessary contribution…a kind of litmus test for the efficacy of Foucault’s concepts in the study of disability, concepts that lead to a refusal of the biological essentialism implied in the disability/impairment binary.”
“Tremain has done an exceptional job at organizing and procuring important, rigorously argued, and entertaining essays…. This book should be a mandatory read for anyone interested in contemporary philosophical debates surrounding the experience of disability."
—Essays in Philosophy
“A beautiful exploration of how Foucault’s analytics of power and genealogies of discursive knowledges can open up new avenues for thinking critically about phenomena that many of us take to be inevitable and thus new ways of resisting and possibly at times redirecting the forces that shape our lives. Every scholar, every person with an interest in Foucault or in political theory generally, needs to read this book.”
—Ladelle McWhorter, University of Richmond
Foucault and the Government of Disability is the first book-length investigation of the relevance and importance of the ideas of Michel Foucault to the field of disability studies-and vice versa. Over the last thirty years, politicized conceptions of disability have precipitated significant social change, including the landmark Americans with Disabilities Act in 1990, the redesign of urban landscapes, the appearance of closed-captioning on televisions, and the growing recognition that disabled people constitute a marginalized and disenfranchised constituency.
The provocative essays in this volume respond to Foucault's call to question what is regarded as natural, inevitable, ethical, and liberating, while they challenge established understandings of Foucault's analyses and offer fresh approaches to his work. The book's roster of distinguished international contributors represents a broad range of disciplines and perspectives, making this a timely and necessary addition to the burgeoning field of disability studies.
As a young, deaf Jewish woman living in a small town in Michigan in 1942, Sandra Horowitz felt deeply frustrated by her limited prospects. Even though she had just graduated from junior college, she knew that she had two strikes against her in fulfilling her dream to become a veterinarian. Better to marry Jacob Winter, her parents urged her, a deaf Jewish man who made a good living. Then, Sandra met Rudy Townsend, a hearing soldier on leave before shipping out to the war in Europe.
In just four days, both Sandra and Rudy’s worlds were turned upside down. Sandra’s parents feared him for being hearing and a Gentile, while Rudy’s parents expressed openly their bias against her ethnic background and her deafness. Even so, Sandra and Rudy soon realized that they had fallen in love, deeply and passionately. As they shared the brief time they had together, they learned about each other’s dreams for the future — Sandra’s desire to be a vet and Rudy’s determination to serve in Congress. Then, Rudy had to leave for the war.
Philip Zazove’s novel Four Days in Michigan captures perfectly the power of irrepressible love between two individuals from opposite backgrounds. The struggles they encounter in an era when such differences were never more sharply drawn also reveal great detail about deaf and hearing life. Despite all, their triumph comes ultimately because of their long-lasting individual respect and love.
"An excellent case study of the enactment and implementation of Section 504...this book will interest students of the American public policy-making processes as well as those with a special interest in civil rights and disability policy."
Now that curb cuts, braille elevator buttons, and closed caption television are commonplace, many people assume that disabled people are now full participants in American society. This book tells a rather different story. It tells how America's disabled mobilized to effect sweeping changes in public policy, not once but twice, and it suggests that the struggle is not yet over.
The first edition of From Good Will to Civil Rights traced the changes in federal disability policy, focusing on the development and implementation of Section 504 of the Rehabilitation Act of 1973. Richard K. Scotch's extensive interviews with policymakers, leaders of the disability rights movement, and other advocates, supplemented the sketchy official history of the legislation with the detailed, behind-the-scenes story, illuminating the role of the disability rights movement in shaping Section 504. Charting the shifts in policy and activist agendas through the 1990s, this new edition surveys the effects and disappointments associated with the Americans with Disabilities Act, passed in 1990, in the context of the continuing movement to secure full civil rights for disabled people.
"This analysis...is almost certain to become a classic work in the literature that will eventually emerge in this field."
--Harlan Hahn, Contemporary Sociology
"The best thing about Scotch's book is that it shows why, despite the broad rights language of the legislation and its regulations, Section 504 exists in a vacuum, with this country still, for the most part, unconcerned about disability rights.... Advocates should read Scotch's book... It's a good place to start on the future."
--The Disability Rag
Lyn Miller-Lachmann Northwestern University Press, 2009 Library of Congress PZ7.M6392Gri 2009
Daniel’s papá, Marcelo, used to play soccer, dance the cueca, and drive his kids to school in a beat-up green taxi—all while publishing an underground newspaper that exposed Chile’s military regime.
After papá’s arrest in 1980, Daniel’s family fled to the United States. Now Daniel has a new life, playing guitar in a rock band and dating Courtney, a minister’s daughter. He hopes to become a US citizen as soon as he turns eighteen.
When Daniel’s father is released and rejoins his family, they see what five years of prison and torture have done to him. Marcelo is partially paralyzed, haunted by nightmares, and bitter about being exiled to “Gringolandia.” Daniel worries that Courtney’s scheme to start a bilingual human rights newspaper will rake up papá’s past and drive him further into alcohol abuse and self-destruction. Daniel dreams of a real father-son relationship, but he may have to give up everything simply to save his papá’s life.
This powerful coming-of-age story portrays an immigrant teen’s struggle to reach his tortured father and find his place in the world.
This important collection of essays, originating in a 1989 conference on the disadvantaged in American health care, provides incisive commentary on U.S. health care policy and politics. Examining public responses to health crises and analyzing the political logic of the American community, this volume charts the immobility of U.S. health policy in recent years and points to its disastrous consequences for the 1990s. Focusing on the particular needs of disadvantaged groups—the elderly, children, people with AIDS, the mentally ill, the chemically dependent, the homeless, the hungry, the medically uninsured—these essays develop strong policy statements. The authors describe the growth in U.S. health care programs, from Kerr-Mills to Medicare, Medicaid, and subsequent revisions, and stress the serious omissions resulting from incremental policy expansion, both in identifying disadvantaged groups and in implementing programs. They report the weakness of the U.S. health care system compared to systems of other technologically developed countries.
Contributors. Deborah A. Stone and Theodore R. Marmor, Judith Feder, Alice Sardell, Bruce C. Vladeck, Michael Lipsky and Marc A. Thibodeau, Daniel M. Fox, William E. McAuliffe, M. Gregg Bloche and Francine Cournos, Lawrence D. Brown, James A. Morrone
This comprehensive volume examines the facts, characters, and events that shaped this field in Western Europe, Canada, and the United States. From the first efforts to teach disabled people in early Christian and Medieval eras to such current mandates as Public Law 94-142, this study breaks new ground in assessing the development of special education as a formal discipline.
The History of Special Education presents a four-part narrative that traces its emergence in fascinating detail from 16th-century Spain through the Age of Enlightenment in 17th-century France and England to 18th-century issues in Europe and North America of placement, curriculum, and early intervention. The status of teachers in the 19th century and social trends and the movement toward integration in 20th century programs are considered as well.
In September 1955 six-year-old Mark O’Brien moved his arms and legs for the last time. He came out of a coma to find himself enclosed from the neck down in an iron lung, the machine in which he would live for much of the rest of his life.
For the first time in paperback, How I Became a Human Being is O’Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O’Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O’Brien crafts a narrative that is as rich and vivid as the life he led.
In the Netherlands, employers are responsible for integrating disabled people into the workforce. Employers in Denmark, however, can dismiss workers with health problems, leaving the public authorities to bear the responsibility of ensuring disabled people's participation in the workforce. In Search of Effective Disability Policy combines micro-level empirical analysis with a macro-level approach to examine the potentials of these two contrasting policies. Høgelund presents a thorough and detailed investigation into how to develop an effective disability policy, and his conclusion productively compares the virtues and drawbacks of each national policy.
Because of the Americans with Disabilities Act and the enormous market of aging adults coping with impairments, disability has become an important issue for all businesses. The Inclusive Corporation is the first book to address comprehensively this issue of disability as it relates to all of the areas critical to effective business management.
The Inclusive Corporation succinctly presents disability-related information and resources that business managers need, and does so in a way that is highly readable and easy to use. The book is respectful and understanding of business requirements, while at the same time conveying a comprehensive knowledge of disability issues.
Matters of legal compliance, social responsibility, recruitment, diversity, employee supervision, customer service, product design and marketing — all are dealt with in The Inclusive Corporation. The result of the author's many years of experience working with businesses to improve their ability to include disabled people both as customers and employees, The Inclusive Corporation will be welcomed by people with disabilities and by business professionals nationwide.
With America on the brink of the largest number of older adults and persons with disabilities in the country’s history, the deceleration in housing production during the first decade of the twenty-first century, and a continued reliance on conventional housing policies and practices, a perfect storm has emerged in the housing industry. The lack of fit between the existing housing stock and the needs of the U.S. population is growing pronounced. Just as housing needed to be retooled at the end of WWII, the American housing industry is in dire need of change today. The South—with its high rates of poverty, older residents, residents with disabilities, extensive rural areas, and out-of-date housing policies and practices—serves as a “canary in the coal mine” for the impending, nationwide housing crisis. Just Below the Line discusses how reworking the policies and practices of the housing industry in the South can serve as a model for the rest of the nation in meeting the physical and social needs of persons with disabilities and aging boomers. Policy makers, designers, builders, realtors, advocates, and housing consumers will be able to use this book to promote the production of equitable housing nationwide.
Published in collaboration with the Fay Jones School of Architecture.
Few people these days would oppose making the public realm of space, social services and jobs accessible to women and men with disabilities. But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them?
Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice?
Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.
An intersectional study of New Testament and noncanonical literature
Anna Rebecca Solevåg explores how nonnormative bodies are presented in early Christian literature through the lens of disability studies. In a number of case studies, Solevåg shows how early Christians struggled to come to terms with issues relating to body, health, and dis/ability in the gospel stories, apocryphal narratives, Pauline letters, and patristic expositions. Solevåg uses the concepts of narrative prosthesis, gaze and stare, stigma, monster theory, and crip theory to examine early Christian material to reveal the multiple, polyphonous, contradictory ways in which nonnormative bodies appear.
Case studies that reveal a variety of understandings, attitudes, medical frameworks, and taxonomies for how disabled bodies were interpreted
A methodology that uses disability as an analytical tool that contributes insights about cultural categories, ideas of otherness, and social groups’ access to or lack of power
An intersectional perspective drawing on feminist, gender, queer, race, class, and postcolonial studies
This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse.
Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people.
With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.
After World War II, the United States underwent a massive cultural transformation that was vividly realized in the development and widespread use of new medical technologies. Plastic surgery, wonder drugs, artificial organs, and prosthetics inspired Americans to believe in a new age of modern medical miracles. The nationalistic pride that flourished in postwar society, meanwhile, encouraged many Americans to put tremendous faith in the power of medicine to rehabilitate and otherwise transform the lives and bodies of the disabled and those considered abnormal. Replaceable You revisits this heady era in American history to consider how these medical technologies and procedures were used to advance the politics of conformity during the 1950s.
In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of “debility”—bodily injury and social exclusion brought on by economic and political factors—to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.
Rights of Inclusion provides an innovative, accessible perspective on how civil rights legislation affects the lives of ordinary Americans. Based on eye-opening and deeply moving interviews with intended beneficiaries of the Americans with Disabilities Act (ADA), David M. Engel and Frank W. Munger argue for a radically new understanding of rights-one that focuses on their role in everyday lives rather than in formal legal claims.
Although all sixty interviewees had experienced discrimination, none had filed a formal protest or lawsuit. Nevertheless, civil rights played a crucial role in their lives. Rights improved their self-image, enhanced their career aspirations, and altered the perceptions and assumptions of their employers and coworkers-in effect producing more inclusive institutional arrangements. Focusing on these long-term life histories, Engel and Munger incisively show how rights and identity affect one another over time and how that interaction ultimately determines the success of laws such as the ADA.
In 1959, seventeen-year-old Gary Presley was standing in line, wearing his favorite cowboy boots and waiting for his final inoculation of Salk vaccine. Seven days later, a bad headache caused him to skip basketball practice, tell his dad that he was too ill to feed the calves, and walk from barn to bed with shaky, dizzying steps. He never walked again. By the next day, burning with the fever of polio, he was fastened into the claustrophobic cocoon of the iron lung that would be his home for the next three months. Set among the hardscrabble world of the Missouri Ozarks, sizzling with sarcasm and acerbic wit, his memoir tells the story of his journey from the iron lung to life in a wheelchair.
Presley is no wheelchair hero, no inspiring figure preaching patience and gratitude. An army brat turned farm kid, newly arrived in a conservative rural community, he was immobilized before he could take the next step toward adulthood. Prevented, literally, from taking that next step, he became cranky and crabby, anxious and alienated, a rolling responsibility crippled not just by polio but by anger and depression, “a crip all over, starting with the brain.” Slowly, however, despite the limitations of navigating in a world before the Americans with Disabilities Act, he builds an independent life.
Now, almost fifty years later, having worn out wheelchair after wheelchair, survived post-polio syndrome, and married the woman of his dreams, Gary has redefined himself as Gimp, more ready to act out than to speak up, ironic, perceptive, still cranky and intolerant but more accepting, more able to find joy in his family and his newfound religion. Despite the fact that he detests pity, can spot condescension from miles away, and refuses to play the role of noble victim, he writes in a way that elicits sympathy and understanding and laughter. By giving his readers the unromantic truth about life in a wheelchair, he escapes stereotypes about people with disabilities and moves toward a place where every individual is irreplaceable.
Laura Greene Gallaudet University Press, 1989 Library of Congress HV2476.G735 1990 | Dewey Decimal 419
Written for young adults, Sign-Me-Fine introduces American Sign Language (ASL) and emphasizes how its structure differs from English. Young readers will learn grammatically correct ASL sentences, sign games, and the full beauty of ASL in poetry and music.
The burgeoning field of disability studies has recently emerged within the humanities and social sciences and, as a result, disability is no longer seen as the biological condition of an individual body but as a complex product of social, political, environmental, and biological discourses. The groundbreaking essays of This Abled Body engage biblical studies in conversation with the wider field of disability studies. They explore the use of the conceptual category “disability” in biblical and Near Eastern texts and examine how conceptions of disability become a means of narrating, interpreting, and organizing human life. Employing diverse approaches to biblical criticism, scholars explore methodological issues and specific texts related to physical and cognitive disabilities. Responses to the essays by established disability activists and academics working in the social sciences and humanities conclude the volume. The contributors are Martin Albl, Hector Avalos, Bruce C. Birch, Carole R. Fontaine, Thomas Hentrich, Nicole Kelley, Janet Lees, Sarah J. Melcher, David Mitchell, Jeremy Schipper, Sharon Snyder, Holly Joan Toensing, Neal H. Walls, and Kerry H. Wynn.
This book is one of the first to examine medieval Spanish canonical works for their portrayals of disability in relationship to theological teachings, legal precepts, and medical knowledge. Connie L. Scarborough shows that physical impairments were seen differently through each lens. Theology at times taught that the disabled were "marked by God," their sins rendered on their bodies; at other times, they were viewed as important objects of Christian charity. The disabled often suffered legal restrictions, allowing them to be viewed with other distinctive groups, such as the ill or the poor. And from a medical point of view, a miraculous cure could be seen as evidence of divine intervention. This book explores all these perspectives through medieval Spain's miracle narratives, hagiographies, didactic tales, and epic poetry.