Results by title
137 books match the query 'Patients' and 22 start with t
The Accidental Teacher
Life Lessons from My Silent SonAnnie Lubliner Lehmann
University of Michigan Press, 2009
"Jonah Lehmann is an accidental teacher of others, including his family and friends. This personal and touching account of Jonah's life is enlightening, especially to those coming to terms with similar challenges with autism and other cognitive disabilities. It was written with love to support research on autism, and I recommend it to anyone and everyone touched by those of us who are different."
---Patricia E. Kefalas Dudek, Legal Advocate for People with Disabilities
"I have never read a book about a disabled person that caught me from page one. I could not put this one down. Lehmann offers a profound perspective on living with the reality of a severely disabled child. This book will be required reading for students who take my class in Special Education Administration."
---Frances LaPlante-Sosnowsky, Associate Professor of Education at Wayne State University
"A story of the astonishing power of human love and family triumph over hardship. Lehmann's story, engaging and at times both heartbreaking and joyful, offers an intimate view of one mother's journey as she works with professionals and a blur of caregivers to assist the ever-changing needs of her son. I highly recommend it to seasoned professionals in the field of autism and students preparing for careers in special education."
---Janet E. Graetz, Assistant Professor of Human Development and Child Studies at Oakland University
A child teaches without intending to . . .
Having severe autism does not stop Annie Lehmann's son Jonah from teaching her some of life's most valuable lessons. The Accidental Teacher, a heartfelt memoir about self-discovery rather than illness, uses insight and humor to weave a tale rich with kitchen-table wisdom. It explains the realities of life with a largely nonverbal son and explores the frustrations and triumphs of the Lehmann family as Jonah grew into a young adult. This book is a must-read for anyone who has been personally touched by a major life challenge.
Annie Lubliner Lehmann, a freelance writer for more than twenty-five years, has published articles in many newspapers and magazines, including the New York Times and Detroit Free Press. She resides in Michigan with her husband and two of her three children. Her eldest son, who inspired this memoir, is now a young adult with autism who lives in a supervised home.
The Adventures of Cancer Bitch
S. L. Wisenberg
University of Iowa Press, 2009
Wisenberg’s writing has been compared to a mix of Leon Wieseltier and Fran Lebowitz, and in this book, she has Wieseltier’s erudition and Lebowitz’s self-deprecating cleverness: “If anybody ever offers you the choice between suffering and depression, take the suffering. And I don't mean physical suffering. I mean emotional suffering. I am hereby endorsing psychic suffering over depression.”
From The Adventures of Cancer Bitch:
I found that when you invite people to a pre-mastectomy party, they show up. Even those with small children. The kids were so young that they didn't notice that most of the food had nipples. . . . I talked to everyone—about what I'm not sure. Probably about my surgery. Everyone told me how well I looked. I felt giddy. I was going to go under, but not yet; I was going to be cut, but not yet; I was going to be bald, but not yet. As my friend who had bladder cancer says: The thing about cancer is you feel great until they start treating you for it.
The Dying President
Franklin D. Roosevelt, 1944-1945Robert H. Ferrell
University of Missouri Press, 1998
In this authoritative account, Robert H. Ferrell shows how the treatment of President Franklin D. Roosevelt's illness in 1944- 1945 was managed by none other than the president himself. Although this powerful American president knew that he suffered from cardiovascular disease, he went to great lengths to hide that fact—both from his physician and from the public. Why Roosevelt disguised the nature of his illness may be impossible to discern fully. He was a secretive man who liked to assign only parts of tasks to his assistants so that he, the president, would be the only one who knew the whole story. The presidency was his life, and he did not wish to give it up.
The president's duplicity, though not easily measurable, had a critical effect on his performance. Placed on a four-hour-a-day schedule by his physicians, Roosevelt could apply very little time to his presidential duties. He took long vacations in South Carolina, Warm Springs, the Catoctin Mountains, and Hyde Park, as well as lengthy journeys to Hawaii, Canada, and Yalta. Important decisions were delayed or poorly made. America's policy toward Germany was temporarily abandoned in favor of the so-called Morgenthau Plan, which proposed the "pastoralization" of Germany, turning the industrial heart of Europe into farmland. Roosevelt nearly ruined the choice of Senator Harry S. Truman as his running mate in 1944 by wavering in the days prior to the party's national convention. He negotiated an agreement with Winston Churchill on sharing postwar development of nuclear weapons but failed to let the State Department know. And, in perhaps the most profoundly unwise decision, Roosevelt accepted a fourth term when he could not possibly survive it.
In his final year, a year in which he faced crucial responsibility regarding World War II and American foreign policy, Franklin D. Roosevelt failed to serve the nation as a healthy president would have. Reading like a mystery story, The Dying President clears up many of the myths and misunderstandings that have surrounded Roosevelt's last year, finally revealing the truth about this missing chapter in FDR's life.
The Early Poetry of Robert Graves
The Goddess BeckonsBy Frank L. Kersnowski
University of Texas Press, 2002
Like many men of his generation, poet Robert Graves was indelibly marked by his experience of trench warfare in World War I. The horrific battles in which he fought and his guilt over surviving when so many perished left Graves shell-shocked and disoriented, desperately seeking a way to bridge the rupture between his conventional upbringing and the uncertainties of postwar British society.
In this study of Graves's early poetry, Frank Kersnowski explores how his war neurosis opened a door into the unconscious for Graves and led him to reject the essential components of the Western idea of reality—reason and predictability. In particular, Kersnowski traces the emergence in Graves's early poems of a figure he later called "The White Goddess," a being at once terrifying and glorious, who sustains life and inspires poetry. Drawing on interviews with Graves's family, as well as unpublished correspondence and drafts of poems, Kersnowski argues that Graves actually experienced the White Goddess as a real being and that his life as a poet was driven by the purpose of celebrating and explaining this deity and her matriarchy.
The Emotional Journey of the Alzheimer's Family
Robert B. Santulli and Kesstan Blandin
Dartmouth College Press, 2015
The Family Silver
A Memoir of Depression and InheritanceSharon O'Brien
University of Chicago Press, 2004
A compassionate and engaging writer, O'Brien uses the biographer's methods to understand her family history, weaving the scattered pieces of the past—her mother's memo books, her father's reading journal, family photographs, tombstones, dance cards, hospital records, the family silver—into a compelling narrative. In the lives of her Irish-American relatives she finds that the American values of upward mobility, progress, and the pressure to achieve sparked both desire and depression, following her family through generations, across the sea, from the Irish famine of the 1840s to Harvard Yard in the late 1960s.
"Many people who write stories of depression or other chronic illnesses tell tales of recovery in the upward-mobility sense, the 'once I was ill, but now I am well' formula that we may find appealing, but doesn't match the messiness of our lives," she writes. "Mine is not such a tale. But it is a recovery tale in another sense—a story of salvage, of rescuing stories from silence." Told with humor and honesty, O'Brien's story will captivate all readers who want to know how they, and their families, have been shaped by the past.
The Flowers Along the Way
A MemoirClaudia Castro Luna
Northwestern University Press, 2026
Passionately demonstrating the dormant trauma of political violence and the redemption waiting beyond it
From El Salvador’s lush countryside to the streets of Oakland, California, a young mother wrestles with the intersecting forces of memory, history, and language in order to chart a new path for herself and her growing family. Fleeing political unrest and civil war violence in El Salvador, fourteen-year-old Claudia Castro Luna arrived in the United States with her family in 1981. Two decades later, holding her two-year-old and pregnant with her second child, she survives a public shooting by hiding behind shrubs in front of her house in Oakland. This event unleashes disorienting and traumatic memories, plunging her into a journey of discovery as she grapples with PTSD, recovers family stories, and begins to make sense of all that was torn asunder within her by the experiences of war and emigration. Beauty, longing, fear, and joy entwine in this powerful story of love, self-determination, and the search for home.
The Guardian Poplar
A Memoir of Deep Roots, Journey, and RediscoveryChase Nebeker Peterson
University of Utah Press, 2012
When Barney Clark received the Jarvik-7 artificial heart in 1983 and Cold Fusion came under fire in 1989, Chase Peterson, as the University of Utah president, was inevitably pulled into these campus events. While these episodes may be the best known in Peterson’s professional history, they are certainly not the only stories that make his autobiography worth reading.
The Guardian Poplar tells of a man who grew up in small-town Utah and carried his pioneer and Mormon heritage to a New England prep school and later to Harvard. He then returned to Utah as a doctor, but unexpectedly found himself back at Harvard as its dean of admissions, handling issues such as the Vietnam War and racial and gender reform. The book explains how Peterson’s home state recruited him back to become an administrator at the University of Utah and how he would eventually become the university president, taking on new issues and challenges. Peterson recounts these years by drawing on anecdotes that recall the people he served and the moments that brought his life meaning.
This autobiography is a compelling account of how Peterson has managed to balance family and career, handle the tensions that have arisen between his faith and his scientific training, and remain solid in the face of his newest challenge—cancer. The book’s engaging prose and honest reflections are sure to intrigue and inspire readers who know the man well, as well as those readers who simply want to know a man who can be described as dedicated, faithful, hardworking, and hopeful about the future.
“When I first met Chase Peterson as a Harvard freshman—along with our joint friend and brother David Evans—something deeply touched me. It was not only his sincere smile and open embrace but also a sense that here was a kind and courageous man comfortable in his own skin, secure in who he was yet eager to encounter new persons, new experiences, and new challenges. . . . He was from Utah but in New England, a Mormon in old Harvard, and a medical doctor in the deanship of admissions. Little did I know that his journey would enhance and enrich my own—owing to his critical allegiance to his family, his faith, his friends, and to his citizenship of country and world. His prophetic witness at Harvard in the turbulent ‘60s and ‘70s, his promotion of black priesthood in the Mormon church, his support of antiapartheid protests in the ‘80s, and his steadfast defense of academic freedom in the Cold Fusion controversy in the early ‘90s all express his quiet and humble effort to be true to himself—a self grounded in, but
not limited by, a rich Mormon tradition.”—from the foreword by Cornel West
The Handholder's Handbook
A Guide for Caregivers of People with Alzheimer's or Other DementiasTeitel, Rosette
Rutgers University Press, 2001
The Hoarders
Material Deviance in Modern American CultureScott Herring
University of Chicago Press, 2014
In The Hoarders, Scott Herring provides an in-depth examination of how modern hoarders came into being, from their onset in the late 1930s to the present day. He finds that both the idea of organization and the role of the clutterologist are deeply ingrained in our culture, and that there is a fine line between clutter and deviance in America. Herring introduces us to Jill, whose countertops are piled high with decaying food and whose cabinets are overrun with purchases, while the fly strips hanging from her ceiling are arguably more fly than strip. When Jill spots a decomposing pumpkin about to be jettisoned, she stops, seeing in the rotting, squalid vegetable a special treasure. “I’ve never seen one quite like this before,” she says, and looks to see if any seeds remain. It is from moments like these that Herring builds his questions: What counts as an acceptable material life—and who decides? Is hoarding some sort of inherent deviation of the mind, or a recent historical phenomenon grounded in changing material cultures? Herring opts for the latter, explaining that hoarders attract attention not because they are mentally ill but because they challenge normal modes of material relations. Piled high with detailed and, at times, disturbing descriptions of uncleanliness, The Hoarders delivers a sweeping and fascinating history of hoarding that will cause us all to reconsider how we view these accumulators of clutter.
The Ice Bucket Challenge
Pete Frates and the Fight against ALSCasey Sherman and Dave Wedge
University Press of New England, 2017
The Joy of Politics
Surviving Cancer, a Campaign, a Pandemic, an Insurrection, and Life’s Other Unexpected CurveballsAmy Klobuchar
University of Minnesota Press, 2023
An intimate and revelatory memoir on personal challenges, political turmoil, and the state of American democracy―now in paperback with a new preface
During the past few years, as our country has faced unprecedented challenges, Senator Amy Klobuchar has been in the room where it happens―on the Senate floor for critical votes during the pandemic, at the debate podium during one of the most crucial presidential primaries in U.S. history, and in the Capitol on January 6, 2021, when insurrectionists stormed the building, interrupting the certification of the Electoral College. It was well past midnight when Klobuchar stood beside then–Vice President Pence to officially certify President Biden's victory.
In her candid, honest, and at times bitingly funny memoir, the pragmatic senator shares insider stories from these historic moments, while also inviting readers into her personal life. An underdog in the 2020 Democratic presidential primary campaign, she built surprising early momentum, only to suspend her candidacy in order to support Joe Biden. Within weeks of returning to work in the Senate, the sudden onslaught of Covid-19 hit her family directly: her husband was hospitalized for a week and spent a month in isolation. Klobuchar shares her experience facing a cancer diagnosis while her beloved father succumbs to Alzheimer's. She recounts the dramatic narrative of January 6 and how close we came to losing our democracy. And, with her signature humor, she reveals what it's like to work with some of her more . . . well, interesting . . . colleagues.
At the crux of these stories is a narrative of resilience—of personal resilience and the resilience of a nation—and, improbably, joy.
The Last of His Mind
A Year in the Shadow of Alzheimer’sJohn Thorndike
Ohio University Press, 2011
The Light That Endures
Stories of Courage, Compassion, and Resilience at Dana-Farber Cancer InstituteTodd Weissman
University of Massachusetts Press, 2026
Showing that everyday people offer the deepest, most relatable lessons in grace
Offering an intimate glimpse into the lives of individuals connected to one of the world’s foremost centers for cancer care and research, The Light That Endures reveals how ordinary people at Boston’s Dana-Farber Cancer Institute demonstrate extraordinary resilience in the face of life’s most challenging moments. Through eight captivating profiles, readers meet a world-renowned pediatric oncologist who rode on horseback at Eisenhower’s inauguration, delivered a secret message in Soviet-controlled Czechoslovakia, and hosted the future King of England; a florist-turned-nurse-turned-teacher whose life changed drastically after a chance encounter on a train; an administrator who has faced adversity his entire life, from a violent father, to confronting his own identity, to being held up at gunpoint; a teenage patient whose battle with cancer was just one of many challenges he has navigated; and a woman who, despite spending her life bringing comfort to others, wonders whether she’s been enough as she reflects after a terminal diagnosis.
These remarkable people, diverse in their backgrounds, share a common bond through cancer and Dana-Farber, that much is obvious. However, it is their quiet acts of grace and service—woven into both their professional paths and personal journeys—that more deeply unite them. Their stories reveal a deeper truth: despite hardship and loss, the arc of life bends toward goodness. Fractured childhoods, family estrangement, mental health strains, winding career paths, and the ever-present shadow of self-doubt are not just obstacles but catalysts. The individuals profiled have found hope and meaning in community and their work, shaping lives of purpose, service, and gratitude. More than a recounting of lives touched by cancer, The Light That Endures is a celebration of the profound impact of compassion and human connection. It captures the essence of Dana-Farber’s ethos, where a shared mission of care fosters an environment of empathy and hope.
The Memory Sessions
Suzanne Farrell Smith
Bucknell University Press, 2019
Published by Bucknell University Press. Distributed worldwide by Rutgers University Press.
The Mythical Bill
A Neurological MemoirJody McAuliffe
University of Iowa Press, 2013
The Patient Is an Unreliable Historian
Brody Parrish Craig
Omnidawn, 2024
The poems of Brody Parrish Craig’s new collection upends narratives around current psychiatric treatment models to focus on the lived experience of survivors and to speak toward liberation, abolition, and disability justice. Titled after the author’s own medical records, The Patient Is an Unreliable Historian questions the prevailing narrative that the medical industry knows stories of disability and madness better than those who have lived them.
Craig uses lyricism to expose the intersection of madness and criminality in contemporary American culture, moving through institutions, community spaces, and loss of kin. Through the course of the collection, the speaker turns toward irreverence and interrogation, carves out their own freedom, and challenges the script of the patient, the mad, and the “criminal.” These poems deconstruct the “patient” to set the person free.
The Political Economy of Stigma
HIV, Memoir, Medicine, and Crip PositionalitiesAlly Day
The Ohio State University Press, 2021
In The Political Economy of Stigma, Ally Day offers a compelling critique of neoliberal medical practices in the US by coupling an analysis of HIV memoir with a critical examination of narrative medicine practice. Using insights from feminist disability studies and crip theory, Day argues that stories of illness and disability—such as HIV memoirs—operate within a political economy of stigma, which she defines as the formal and informal circulation of personal illness and disability narratives that benefits some while hindering others. On the one hand, this system decreases access to appropriate medical care for those with chronic conditions by producing narratives of personal illness that frame one’s relationship to structural inequality as a result of personal failure. On the other hand, the political economy of stigma rewards those who procure such narratives and circulate them for public consumption.
The political economy of stigma is theorized from three primary research sites: a reading group with women living with HIV, a reading group with AIDS service workers, and participant observation research and critical close reading of practices in narrative medicine. Ultimately, it is the women living with HIV who provide an alternative way to understand disability and illness narratives, a practice of differential reading that can challenge stigmatizing tropes and reconceptualize the creation, reception, and circulation of patient memoir.
The Power of Two
A Twin Triumph Over Cystic FibrosisIsabel Byrnes and Anabel Stenzel
University of Missouri Press, 2007
For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.
The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.
Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.
The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.
Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
The Quiet Hero
A Life of Ryan WhiteNelson Price
Indiana Historical Society Press, 2015
The Summer of Her Baldness
A Cancer ImprovisationBy Catherine Lord
University of Texas Press, 2004
"No eyebrows. No eyelashes. When it rains the water will run straight down into my eyes," Catherine Lord wrote before her hair fell out during chemotherapy. Propelled into an involuntary performance piece occasioned by the diagnosis of breast cancer, Lord adopted the online persona of Her Baldness—an irascible, witty, polemical presence who speaks candidly about shame and fear to her listserv audience. While Lord suffers from unwanted isolation and loss of control as her treatment progresses, Her Baldness talks back to the society that stigmatizes bald women, not to mention middle-aged lesbians with a life-threatening disease.
In this irreverent and moving memoir, Lord draws on the e-mail correspondence of Her Baldness to offer an unconventional look at life with breast cancer and the societal space occupied by the seriously ill. She photographs herself and the rooms in which she negotiates her disease. She details the clash of personalities in support groups, her ambivalence about Western medicine, her struggles to maintain her relationship with her partner, and her bemusement when she is mistaken for a "sir." She uses these experiences—common to the one-in-eight women who will be diagnosed at some point with breast cancer—to illuminate larger issues of gender signifiers, sexuality, and the construction of community.
Twitch And Shout
A Touretter’s TaleLowell Handler
University of Minnesota Press, 2004
The remarkable memoir of a Touretter’s journey of self-discovery—now back in print!
Lowell Handler has Tourette’s syndrome, a disorder characterized by exaggerated facial tics, sudden jerking movements of the body and limbs, and explosive public outbursts, usually in the form of expletives and racial epithets. Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider—a social outcast. With courage and candor, he recalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behavior as a psychological aberration, and finally how, restless and despairing, he embarked on a quest for answers.In Twitch and Shout, Handler sets out, camera in hand, on a journey through less than savory parts of America. From a transvestite bar in Tampa to a flophouse in New Orleans to a community health center in New York, he meets a variety of people who, like himself, don’t conform to the standards of conventional society. With a keen eye for detail and an acute sense of humor, this memoir perfectly captures the unique and unforgettable life of a Touretter.