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13 books match the query 'Institutional care'

cover of A Home of Another Kind: One Chicago Orphanage and the Tangle of Child Welfare

A Home of Another Kind

One Chicago Orphanage and the Tangle of Child Welfare

Kenneth Cmiel

University of Chicago Press, 1995

In the most comprehensive account ever written of an American orphanage, an institution about which even its many new advocates and experts know little, Kenneth Cmiel exposes America's changing attitudes toward child welfare.

The book begins with the fascinating history of the Chicago Nursery and Half-Orphan Asylum from 1860 through 1984, when it became a full-time research institute. Founded by a group of wealthy volunteers, the asylum was a Protestant institution for Protestant children—one of dozens around the country designed as places where single parents could leave their children if they were temporarily unable to care for them.

But the asylum, which later became known as Chapin Hall, changed dramatically over the years as it tried to respond to changing policies, priorities, regulations, and theories concerning child welfare. Cmiel offers a vivid portrait of how these changes affected the day-to-day realities of group living. How did the kind of care given to the children change? What did the staff and management hope to accomplish? How did they define "family"? Who were the children who lived in the asylum? What brought them there? What were their needs? How did outside forces change what went on inside Chapin Hall?

This is much more than a richly detailed account of one institution. Cmiel shatters a number of popular myths about orphanages. Few realize that almost all children living in nineteenth-century orphanages had at least one living parent. And the austere living conditions so characteristic of the orphanage were prompted as much by health concerns as by strict Victorian morals.
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cover of American Eldercide: How It Happened, How to Prevent It

American Eldercide

How It Happened, How to Prevent It

Margaret Morganroth Gullette

University of Chicago Press, 2024

A bracing spotlight on the avoidable causes of the COVID-19 Eldercide in the United States.

Twenty percent of the Americans who have died of COVID since 2020 have been older and disabled adults residing in nursing homes—even though they make up fewer than 1 percent of the US population. Something about this catastrophic loss of life in government-monitored facilities has never added up.

Until now. In American Eldercide, activist and scholar Margaret Morganroth Gullette investigates this tragic public health crisis with a passionate voice and razor-sharp attention to detail, showing us that nothing about it was inevitable. By unpacking the decisions that led to discrimination against nursing home residents, revealing how governments, doctors, and media reinforced ageist or ableist biases, and collecting the previously little-heard voices of the residents who survived, Gullette helps us understand the workings of what she persuasively calls an eldercide.

Gullette argues that it was our collective indifference, fueled by the heightened ageism of the COVID-19 era, that prematurely killed this vulnerable population. Compounding that deadly indifference is our own panic about aging and a social bias in favor of youth-based decisions about lifesaving care. The compassion this country failed to muster for the residents of our nursing facilities motivated Gullette to pen an act of remembrance, issuing a call for pro-aging changes in policy and culture that would improve long-term care for everyone.

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cover of An Invincible Spirit: The Story of Don Fulk

An Invincible Spirit

The Story of Don Fulk

Don Fulk, as signed to Janet Allen

Gallaudet University Press, 2019

“Don taught us how to be a real independent living center. Nothing was easy; every issue that came up on the road to Don’s independence was a challenge and a struggle, but the experience pushed us and we learned from it. We were not going to let Don down; all of us were committed to Don’s freedom and independence.”
—Kathleen Kleinman, Executive Director, TRPIL (Transitional Paths to Independent Living)
 
Profoundly deafened as an infant, Don Fulk didn’t learn his name or go to school until the age of ten. When he was eighteen years old and a budding superstar on his football and basketball teams, he broke his neck in a swimming accident, and became paralyzed. After his injury, he was confined to a bed in his parents’ home for eight years, unable to move and barely able to communicate. After his family could no longer care for him, he spent nine years in a nursing home where he suffered from abuse and neglect.

Yet through a life marred by isolation and frustration, Fulk endured with strength, humor, and grace. He never gave up pursuing his dreams for independence and self-worth, and improving the lives of others. He fought a system that was unfair and discriminatory, and helped pave the way for people with disabilities to live independently. Don Fulk signed his story to author Janet Allen, describing his difficult home life, the incredible friends who changed his life, and his dramatic escape from an abusive nursing home. An Invincible Spirit is a story of hope, empowerment, and the battles people with disabilities have fought—and continue to fight—to improve the quality of their lives.
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cover of Capturing Labor: A History of Unfree Work in the Southwest

Capturing Labor

A History of Unfree Work in the Southwest

Edited by Jessica R. Pliley and John Mckiernan-González

University of Texas Press, 2026

A collection of essays grappling with the many, often overlooked, forms of unfree labor in the West.

When Americans think of unfree labor—coerced, extracted from workers unable to freely enter and exit contracts—what comes to mind is Black slavery and peonage in the South. But other forms of unfree labor also built the United States. Collecting a diverse range of sharply argued historical essays, Capturing Labor shares the story of unfree labor in the Southwest, affecting mainly Indigenous people, Mexican Americans, and people of color.

In Texas and elsewhere, state agents developed various methods for directing the movement of workers, seizing their time, and controlling the products of their efforts. Case studies highlight the detention during World War I of Indigenous children and unaccompanied women, who were placed in boarding schools, fined, and obligated to work off the resulting debt. Other essays expose authorities forcing workers to break strikes and jailing Americans who supported labor uprisings in rural Mexico and the United States. Prisons and asylums supplied coerced agricultural workers and musicians who were never compensated for their labor or by the labels that took their recordings.

Editors Jessica Pliley and John Mckiernan-González contend that unfree labor continues to shape American life, and is all around us today. Understanding its history aids us in recognizing and bringing attention to the grim realities of the present.

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cover of Child Care in Black and White: Working Parents and the History of Orphanages

Child Care in Black and White

Working Parents and the History of Orphanages

Jessie B. Ramey

University of Illinois Press, 2013

This innovative study examines the development of institutional childcare from 1878 to 1929, based on a comparison of two "sister" orphanages in Pittsburgh: the all-white United Presbyterian Orphan's Home and the all-black Home for Colored Children. Drawing on quantitative analysis of the records of more than 1,500 children living at the two orphanages, as well as census data, city logs, and contemporary social science surveys, this study raises new questions about the role of childcare in constructing and perpetrating social inequality in the United States.
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cover of Decarcerating Disability: Deinstitutionalization and Prison Abolition

Decarcerating Disability

Deinstitutionalization and Prison Abolition

Liat Ben-Moshe

University of Minnesota Press, 2020

This vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration

 

Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.

Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration—antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. 

Decarcerating Disability’s rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.

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cover of Emotionally Disturbed: A History of Caring for America's Troubled Children

Emotionally Disturbed

A History of Caring for America's Troubled Children

Deborah Blythe Doroshow

University of Chicago Press, 2019

Before the 1940s, children in the United States with severe emotional difficulties would have had few options for care. The first option was usually a child guidance clinic within the community, but they might also have been placed in a state mental hospital or asylum, an institution for the so-called feebleminded, or a training school for delinquent children. Starting in the 1930s, however, more specialized institutions began to open all over the country. Staff members at these residential treatment centers shared a commitment to helping children who could not be managed at home. They adopted an integrated approach to treatment, employing talk therapy, schooling, and other activities in the context of a therapeutic environment.
 
Emotionally Disturbed is the first work to examine not only the history of residential treatment but also the history of seriously mentally ill children in the United States. As residential treatment centers emerged as new spaces with a fresh therapeutic perspective, a new kind of person became visible—the emotionally disturbed child. Residential treatment centers and the people who worked there built physical and conceptual structures that identified a population of children who were alike in distinctive ways. Emotional disturbance became a diagnosis, a policy problem, and a statement about the troubled state of postwar society. But in the late twentieth century, Americans went from pouring private and public funds into the care of troubled children to abandoning them almost completely. Charting the decline of residential treatment centers in favor of domestic care–based models in the 1980s and 1990s, this history is a must-read for those wishing to understand how our current child mental health system came to be.
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cover of Imagined Orphans: Poor Families, Child Welfare, and Contested Citizenship in London

Imagined Orphans

Poor Families, Child Welfare, and Contested Citizenship in London

Murdoch, Lydia

Rutgers University Press, 2006

With his dirty, tattered clothes and hollowed-out face, Oliver Twist is the enduring symbol of the young indigent spilling out of orphanages and haunting the streets of late-nineteenth-century London. Although poor children were often portrayed as real-life Oliver Twists—either orphaned or abandoned by unworthy parents—they in fact frequently maintained contact and were eventually reunited with their families.

In Imagined Orphans, Lydia Murdoch focuses on this discrepancy between the representation and the reality of children’s experiences within welfare institutions—a discrepancy that she argues stems from conflicts over middle- and working-class notions of citizenship that arose in the 1870s and persisted until the First World War. Reformers’ efforts to depict poor children as either orphaned or endangered by abusive or “no-good” parents fed upon the poor’s increasing exclusion from the Victorian social body. Reformers used the public’s growing distrust and pitiless attitude toward poor adults to increase charity and state aid to the children.

With a critical eye to social issues of the period, Murdoch urges readers to reconsider the complex situations of families living in poverty. While reformers’ motivations seem well intentioned, she shows how their methods solidified the public’s antipoor sentiment and justified a minimalist welfare state that engendered a cycle of poverty. As they worked to fashion model citizens, reformers’ efforts to protect and care for children took on an increasingly imperial cast that would continue into the twentieth century.

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cover of Managing Madness: Weyburn Mental Hospital and the Transformation of Psychiatric Care in Canada

Managing Madness

Weyburn Mental Hospital and the Transformation of Psychiatric Care in Canada

Erika Dyck

University of Manitoba Press, 2017

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cover of Missing Pieces: A Chronicle Of Living With A Disability

Missing Pieces

A Chronicle Of Living With A Disability

Kenneth Zola

Temple University Press, 2003

The personal odyssey of a man with a disability, this passionate book tries to tell as well as analyze what it is like to have a disability in a world that values vigor and health. Zola writes, "Missing Pieces is an unraveling of a social problem in the manner of Black Like Me. Like its author, I, too, am a trained social observer, but for me 'passing' was not an issue. For I already have the stigmata of the disabled—the braces, the limp, the cane—though I have spent much of my life denying their existence." The author started out in the role of a social scientist on a seven-day excursion to acquaint himself with an extraordinary experiment in living—Het Dorp, one of the few places in the world designed to promote "the optimum happiness" of those with severe physical disabilities. Neither a medial center nor a nursing home, Het Dorp is a village in the western-most part of the Netherlands. What began as a sociological attempt to describe this unusual setting became, through the author's growing awareness, what can only be called a socio-autobiography. Resuming his prior dependence on a wheelchair, the author experienced his own transformation from someone who is "normal" and "valid" to someone who is "invalid." The routine of Het Dorp became his: he lived in an architecturally modified home, visited the workshops, and shared meals, social events, conversation, and perceptions with the remarkably diverse residents. The author confronts some rarely discussed issues—the self-image of a person with a chronic disability, how one fills one's time, how one deals with authority and dependence, and love and sex. Missing Pieces offers striking insights into an aspect of the human condition shared by nearly 30 million Americans. It is must-read for the general reader, as well as for the rehabilitation counselor, social worker, or social scientist.
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cover of Protected Children, Regulated Mothers: Gender and the "Gypsy Question" in State Care in Postwar Hungary, 1949–1956

Protected Children, Regulated Mothers

Gender and the "Gypsy Question" in State Care in Postwar Hungary, 1949–1956

Eszter Varsa

Central European University Press, 2021

Protected Children, Regulated Mothers examines child protection in Stalinist Hungary as a part of twentieth-century East Central, Eastern, and Southeastern European history. Across the communist bloc, the prewar foster care system was increasingly replaced after 1945 by institutionalization in residential homes. This shift was often interpreted as a further attempt to establish totalitarian control. However, this study—based on hundreds of children's case files and interviews with institution leaders, teachers, and people formerly in state care—provides a new perspective. Rather than being merely a tool of political repression, state care in postwar Hungary was often shaped by the efforts of policy actors and educators to address the myriad of problems engendered by the social and economic transformations that emerged after World War II. This response built on, rather than broke with, earlier models of reform and reformatory education. Yet child protection went beyond safeguarding and educating children; it also focused on parents, particularly lone mothers, regulating not only their entrance to paid work but also their sexuality. In so doing, children's homes both reinforced and changed existing cultural and social patterns, whether about gendered division of work or the assimilation of minorities. Indeed, a major finding of the book is that state socialist child protection continued a centuries-long national project of seeking a “solution to the Gypsy question,” rooted in efforts to eliminate the perceived “workshyness” of Roma.

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cover of The Girls and Boys of Belchertown: A Social History of the Belchertown State School for the Feeble-Minded

The Girls and Boys of Belchertown

A Social History of the Belchertown State School for the Feeble-Minded

Robert Hornick

University of Massachusetts Press, 2012

During much of the twentieth century, people labeled “feeble-minded,” “mentally deficient,” and “mentally retarded” were often confined in large, publicly funded, residential institutions located on the edges of small towns and villages some distance from major population centers. At the peak of their development in the late 1960s, these institutions—frequently called “schools” or “homes”—housed 190,000 men, women, and children in the United States.

The Girls and Boys of Belchertown offers the first detailed history of an American public institution for intellectually disabled persons. Robert Hornick recounts the story of the Belchertown State School in Belchertown, Massachusetts, from its beginnings in the 1920s to its closure in the 1990s following a scandalous exposé and unprecedented court case that put the institution under direct supervision of a federal judge. He draws on personal interviews, private letters, and other unpublished sources as well as local newspapers, long out-of-print materials, and government reports to re-create what it was like to live and work at the school. More broadly, he gauges the impact of changing social attitudes toward intellectual disability and examines the relationship that developed over time between the school and the town where it was located.

What emerges is a candid and complex portrait of the Belchertown State School that neither vilifies those in charge nor excuses the injustices perpetrated on its residents, but makes clear that despite the court-ordered reforms of its final decades, the institution needed to be closed.

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cover of The Last Asylum: A Memoir of Madness in Our Times

The Last Asylum

A Memoir of Madness in Our Times

Barbara Taylor

University of Chicago Press, 2015

In the late 1970s, Barbara Taylor, then an acclaimed young historian, began to suffer from severe anxiety. In the years that followed, Taylor’s world contracted around her illness. Eventually, her struggles were severe enough to lead to her admission to what had once been England’s largest psychiatric institution, the infamous Friern Mental Hospital in North London.

The Last Asylum is Taylor’s breathtakingly blunt and brave account of those years. In it, Taylor draws not only on her experience as a historian, but also, more importantly, on her own lived history at Friern— once known as the Colney Hatch Lunatic Asylum and today the site of a luxury apartment complex. Taylor was admitted to Friern in July 1988, not long before England’s asylum system began to undergo dramatic change: in a development that was mirrored in America, the 1990s saw the old asylums shuttered, their patients left to plot courses through a perpetually overcrowded and underfunded system of community care. But Taylor contends that the emptying of the asylums also marked a bigger loss, a loss of community. She credits her own recovery to the help of a steadfast psychoanalyst and a loyal circle of friends— from Magda, Taylor’s manic-depressive roommate, to Fiona, who shares tips for navigating the system and stories of her boyfriend, the “Spaceman,” and his regular journeys to Saturn. The forging of that network of support and trust was crucial to Taylor’s recovery, offering a respite from the “stranded, homeless feelings” she and others found in the outside world.

A vivid picture of mental health treatment at a moment of epochal change, The Last Asylum is also a moving meditation on Taylor’s own experience, as well as that of millions of others who struggle with mental illness.
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