A SCHOLARLY BOOK REPOSITORY
In Beyond a Western Bioethics, physicians Angeles Tan Alora and Josephine M. Lumitao join eight other contributors to provide a comprehensive exploration of bioethical issues outside of the dominant American and western European model. Using the Philippines as a case study, they address how a developing country's economy, religion, and culture affect the bioethical landscape for doctors, patients, families, and the society as a whole.
American principles of medical ethics assume the primacy of individual autonomy, the importance of truth-telling, and secular standards of justice and morality. In the Philippines, these standards are often at odds with a culture in which family relationships take precedence over individualism, and ideas of community, friendship, and religion can deeply influence personal behavior. Pervasive poverty further complicates the equation. Contributors move from a general discussion of the moral vision informing health care decisions in the Philippines to an exploration of a wide range of specific cases: family planning, care of the elderly, organ transplants, death and dying, medical research, AIDS care, doctor-patient relationships, informed consent, and the allocation of scarce health-care resources.
Written for both students and professionals, the book provides a much-needed perspective on how medical ethics are practiced in a developing nation, and it successfully challenges the wisdom of global bioethical standards that do not account for local cultural and economic differences.
Bioethics and the Human Goods offers students and general readers a brief introduction to bioethics from a “natural law” philosophical perspective. This perspective, which traces its origins to classical antiquity, has profoundly shaped Western ethics and law and is enjoying an exciting renaissance. While compatible with much in the ethical thought of the great religions, it is grounded in reason, not religion. In contrast to the currently dominant bioethical theories of utilitarianism and principlism, the natural law approach offers an understanding of human flourishing grounded in basic human goods, including life, health, friendship, and knowledge, and in the wrongness of intentionally turning against, or neglecting, these goods.
The book is divided into two sections: Foundations and Issues. Foundations sketches a natural law understanding of the important ethical principles of autonomy, non-maleficence, beneficence, and justice and explores different understandings of “personhood” and whether human embryos are persons. Issues applies a natural law perspective to some of the most controversial debates in contemporary bioethics at the beginning and end of life: research on human embryos, abortion, infanticide, euthanasia, the withdrawal of tube-feeding from patients in a “persistent vegetative state,” and the definition of death. The text is completed by appendices featuring personal statements by Alfonso Gómez-Lobo on the status of the human embryo and on the definition and determination of death.
The original essays in this volume use qualitative research methods to expose the multiple contexts within which the problems of bioethics arise, are defined and debated, and ultimately resolved. In a provocative concluding essay, one contributor asks his fellow ethnographers to reflect on the ethical problems of ethnography.
Technology is a process and a body of knowledge as much as a collection of artifacts. Biology is no different—and we are just beginning to comprehend the challenges inherent in the next stage of biology as a human technology. It is this critical moment, with its wide-ranging implications, that Robert Carlson considers in Biology Is Technology. He offers a uniquely informed perspective on the endeavors that contribute to current progress in this area—the science of biological systems and the technology used to manipulate them.
In a number of case studies, Carlson demonstrates that the development of new mathematical, computational, and laboratory tools will facilitate the engineering of biological artifacts—up to and including organisms and ecosystems. Exploring how this will happen, with reference to past technological advances, he explains how objects are constructed virtually, tested using sophisticated mathematical models, and finally constructed in the real world.
Such rapid increases in the power, availability, and application of biotechnology raise obvious questions about who gets to use it, and to what end. Carlson’s thoughtful analysis offers rare insight into our choices about how to develop biological technologies and how these choices will determine the pace and effectiveness of innovation as a public good.
In 2006 anthropologists Paul Rabinow and Gaymon Bennett set out to rethink the role that human sciences play in biological research, creating the Human Practices division of the Synthetic Biology Engineering Research Center—a facility established to create design standards for the engineering of new enzymes, genetic circuits, cells, and other biological entities—to formulate a new approach to the ethical, security, and philosophical considerations of controversial biological work. They sought not simply to act as watchdogs but to integrate the biosciences with their own discipline in a more fundamentally interdependent way, inventing a new, dynamic, and experimental anthropology that they could bring to bear on the center’s biological research.
Designing Human Practices is a detailed account of this anthropological experiment and, ultimately, its rejection. It provides new insights into the possibilities and limitations of collaboration, and diagnoses the micro-politics which effectively constrained the potential for mutual scientific flourishing. Synthesizing multiple disciplines, including biology, genetics, anthropology, and philosophy, alongside a thorough examination of funding entities such as the National Science Foundation, Designing Human Practices pushes the social study of science into new and provocative territory, utilizing a real-world experience as a springboard for timely reflections on how the human and life sciences can and should transform each other.
• What are the different rhetorical strategies employed by writers, artists, filmmakers, and activists to react to the degradation of life and climate change?
• How are urban movements using environmental issues to resist corporate privatization of the commons?
• What is the shape of Spanish debates on reproductive rights and biotechnology?
• What is the symbolic significance of the bullfighting debate and other human/animal issues in today's political turmoil in Spain?
Hispanic Issues Series
Nicholas Spadaccini, Editor-in-Chief
Hispanic Issues Online
hispanicissues.umn.edu/online_main.html
The 1970s and 1980s were a tumultuous period in US history. In tandem with a dramatic political shift to the right, evangelicalism also entered the public discourse as a distinct religious movement and was immediately besieged by cultural appropriations and internal fragmentations. Americans in general and evangelicals in particular grappled with issues and ideas such as feminism, abortion, birth control, and restructuring traditional roles for women and the family. During this time, there was a surge in readership for evangelical periodicals such as Christianity Today, Moody Monthly, Eternity, and Post-Americans/Sojourners as well as the feminist newsletter Daughters of Sarah.
While each of these magazines—and other publications and media—contributed to and participated in the overall dissemination of evangelical ideology, they also had their own outlooks and political leanings concerning hot-button issues. In Evangelical News: Politics, Gender, and Bioethics in Conservative Christian Magazines of the 1970s and 1980s, Anja-Maria Bassimir presents a nuanced view of evangelicalism in the late twentieth century through the lens of the movement’s own media.
Bassimir argues that community can be produced in discourse, especially when shared rhetoric, concepts, and perspectives signal belonging. To accomplish this, Evangelical News traces the emergence of evangelical social and political awareness in the 1970s to the height of its power as a political program. The chapters investigate such topics as how evangelicals reenvisioned gender norms and relations in light of the feminist movement, the use of childhood as a symbol of unspoiled innocence, and the place of evangelicals as political actors.
Van Rensselaer Potter created and defined the term "bioethics" in 1970, to describe a new philosophy that sought to integrate biology, ecology, medicine, and human values. Bioethics is often linked to environmental ethics and stands in sharp contrast to biomedical ethics. Because of this confusion (and appropriation of the term in medicine), Potter chose to use the term "Global Bioethics" in 1988. Potter's definition of bioethics from Global Bioethics is, "Biology combined with diverse humanistic knowledge forging a science that sets a system of medical and environmental priorities for acceptable survival."
The term bioethics was first used in the early 1970s by biologists who were concerned about ethical implications of genetic and ecological interventions, but was soon applied to all aspects of biomedical ethics, including health care delivery, research, and public policy. Its literature draws from disciplines as varied as clinical medicine and nursing, scientific research, theology and philosophy, law, and the social sciences—each with its own distinctive vocabulary and expressions.
A Handbook of Bioethics Terms is a handy and concise glossary-style reference featuring over 400 entries on the significant terms, expressions, titles, and court cases that are most important to the field. Most entries are cross-referenced, making this handbook a valuable addition to the bookshelves of undergraduate and graduate students in health care ethics, physicians and nurses, members of institutional ethics committees and review boards, and others interested in bioethics.
A sampling of terms from the handbook: AbortionDNR (Do Not Resuscitate)Eugenics Gene therapy Living will Natural lawPrimum non nocere Single-payer systemSurrogate consent Schiavo case
Sample Definitions:
Formalism: In ethical theory, a type of deontology in which an action is judged to be right if it is in accord with a moral rule, and wrong if it violates a moral rule.
Xenograft: Organ or tissue transplanted from one individual to another individual of another species. (See Transplantation, organ and tissue)
What, exactly, does it mean to be human? It is an age-old question, one for which theology, philosophy, science, and medicine have all provided different answers. But though a unified response to the question can no longer be taken for granted, how we answer it frames the wide range of different norms, principles, values, and intuitions that characterize today's bioethical discussions. If we don't know what it means to be human, how can we judge whether biomedical sciences threaten or enhance our humanity?
This fundamental question, however, receives little attention in the study of bioethics. In a field consumed with the promises and perils of new medical discoveries, emerging technologies, and unprecedented social change, current conversations about bioethics focus primarily on questions of harm and benefit, patient autonomy, and equality of health care distribution. Prevailing models of medical ethics emphasize human capacity for self-control and self-determination, rarely considering such inescapable dimensions of the human condition as disability, loss, and suffering, community and dignity, all of which make it difficult for us to be truly independent.
In Health and Human Flourishing, contributors from a wide range of disciplines mine the intersection of the secular and the religious, the medical and the moral, to unearth the ethical and clinical implications of these facets of human existence. Their aim is a richer bioethics, one that takes into account the roles of vulnerability, dignity, integrity, and relationality in human affliction as well as human thriving. Including an examination of how a theological anthropology—a theological understanding of what it means to be a human being—can help us better understand health care, social policy, and science, this thought-provoking anthology will inspire much-needed conversation among philosophers, theologians, and health care professionals.
The biological revolution, with its attendant technological powers to alter nature and human nature, demands fundamental and cautionary reflection on questions of the highest ethical importance. In this thoughtful book on contemporary issues in bioethics, Stephen G. Post explores nine major topics ranging from birth and adolescence to aging and death. Using an interdisciplinary approach, Post clearly illuminates the issues, probes the ethical alternatives, and examines the cultural changes that shape current presuppositions about the right and good. This book will be of interest to scholars in bioethics, philosophy, and religious studies; health-care professionals; and the general reader concerned with these pressing questions of life and death.
Leavened with compassion, common sense, and a readable style, this introduction to complicated bioethical issues from both Jewish and Catholic perspectives is as informative as it is undaunting. Aaron Mackler takes the reader through methodology in Roman Catholic moral theology and compares and contrasts it with methodology as it is practiced in Jewish ethics. He then skillfully wends his way through many topics foremost on the contemporary ethical agenda for both Jewish and Catholic ethicists: euthanasia and assisted suicide, end-of-life decisions, abortion, in vitro fertilization, and the ever-growing problem of justice regarding access to health care and medical resources. A concluding chapter summarizes general tendencies in the comparison of the two traditions, and addresses the significance of convergence and divergence between these traditions for moral thinkers within each faith community, and generally in western democracies such as the United States.
As Mackler overviews these issues, he points out the divergences and the commonalities between the two traditions—clarifying each position and outlining the structure of thinking that supports them. At the heart of both Catholic and Jewish perspectives on bioethics is a life-affirming core, and while there may be differences in the "why" of those ethical divergences, and in the "how" each arrived at varying—or the same—conclusions, both traditions, in the words of James McCartney as quoted in the introduction, "are guided by the principle that life is precious; that we are bidden to preserve and guard our health; that we are bidden to intervene in nature to raise the human estate; and that our lives are not our own, but are part of the legacy bequeathed to us by the Creator." This book has been carefully crafted in that spirit.
While the American legal system has played an important role in shaping the field of bioethics, Law and Bioethics is the first book on the subject designed to be accessible to readers with little or no legal background. Detailing how the legal analysis of an issue in bioethics often differs from the "ethical" analysis, the book covers such topics as abortion, surrogacy, cloning, informed consent, malpractice, refusal of care, and organ transplantation.
Structured like a legal casebook, Law and Bioethics includes the text of almost all the landmark cases that have shaped bioethics. Jerry Menikoff offers commentary on each of these cases, as well as a lucid introduction to the U.S. legal system, explaining federalism and underlying common law concepts. Students and professionals in medicine and public health, as well as specialists in bioethics, will find the book a valuable resource.
The National Institutes of Health and the National Science Foundation together fund more than $40 billon of research annually in the United States and around the globe. These large public expenditures come with strings, including a complex set of laws and guidelines that regulate how scientists may use NIH and NSF funds, how federally funded research may be conducted, and who may have access to or own the product of the research.
Until now, researchers have had little instruction on the nature of these laws and how they work. But now, with Robert P. Charrow’s Law in the Laboratory, they have a readable and entertaining introduction to the major ethical and legal considerations pertaining to research under the aegis of federal science funding. For any academic whose position is grant funded, or for any faculty involved in securing grants, this book will be an essential reference manual. And for those who want to learn how federal legislation and regulations affect laboratory research, Charrow’s primer will shed light on the often obscured intersection of government and science.
An authoritative introduction to bioethics, Life Choices examines a comprehensive range of ethical questions and brings together some of the most probing and instructive essays published in the field.
Some of the articles are classics in the literature of bioethics, while others address current issues. Topics include moral decision making, abortion, euthanasia and assisted suicide, life-sustaining technologies, organ transplantation, reproductive technologies, and the allocation of health care resources.
This second edition features new sections on the goals and allocation of medicine and on the cloning of human beings. It also includes new articles on genetics, the duty to die, and ethical theory.
Written by the foremost authorities in bioethics, Life Choices provides a comprehensive introduction to the field. Instructors who have used the first edition as a text will welcome this new, updated edition. Scholars and health care practitioners will find it useful as a valuable reference on a wide range of bioethical issues.
Drawing on archival materials of twentieth-century biology; little-known works of fiction and science fiction; and twentieth- and twenty-first century U.S. and U.K. government reports by the National Institutes of Health, the Parliamentary Advisory Group on the Ethics of Xenotransplantation, and the President’s Council on Bioethics, she examines a number of biomedical changes as each was portrayed by scientists, social scientists, and authors of fiction and poetry. Among the scientific developments she considers are the cultured cell, the hybrid embryo, the engineered intrauterine fetus, the child treated with human growth hormone, the process of organ transplantation, and the elderly person rejuvenated by hormone replacement therapy or other artificial means. Squier shows that in the midst of new phenomena such as these, literature helps us imagine new ways of living. It allows us to reflect on the possibilities and perils of our liminal lives.
In his provocative book The Next Social Contract, Wayne Gabardi rigorously considers the fate of animals in the twenty-first century. He claims that if we are to address the challenges raised by the Anthropocene—the period where nonhuman beings tend to be mere extras, often subsumed under the umbrella notion of “nature”—we need to radically rethink our basic ethical outlook and develop a new, “more-than-human” social contract.
Gabardi’s wide-ranging and multidisciplinary analysis focuses on four principal battlegrounds of animal biopolitics in the twenty first century: the extinction of wild animals, the crisis of oceanic animals, industrialized farm animals and the future of industrial agribusiness, and the situation of contact-zone animals moving into human-occupied habitats.
In his recasting of the social contract, Gabardi envisions a culture shift in human-animal relations toward posthumanism that features the ethical and political prioritization of animal life so it is on par with that of human well-being.
To demonstrate this, Parthasarathy takes readers through a particularly fierce and prolonged set of controversies over patents on life forms linked to important advances in biology and agriculture and potentially life-saving medicines. Comparing battles over patents on animals, human embryonic stem cells, human genes, and plants in the United States and Europe, she shows how political culture, ideology, and history shape patent system politics. Clashes over whose voices and which values matter in the patent system, as well as what counts as knowledge and whose expertise is important, look quite different in these two places. And through these debates, the United States and Europe are developing very different approaches to patent and innovation governance. Not just the first comprehensive look at the controversies swirling around biotechnology patents, Patent Politics is also the first in-depth analysis of the political underpinnings and implications of modern patent systems, and provides a timely analysis of how we can reform these systems around the world to maximize the public interest.
Playing God? asks why and explores the social forces that have led to the thinning out of public debate over human genetic engineering. John H. Evans contends that the problem lies in the structure of the debate itself. Disputes over human genetic engineering concern the means for achieving assumed ends, rather than being a healthy discussion about the ends themselves. According to Evans, this change in focus occurred as the jurisdiction over the debate shifted from scientists to bioethicists, a change which itself was caused by the rise of the bureaucratic state as the authority in such matters. The implications of this timely study are twofold. Evans not only explores how decisions about the ethics of human genetic engineering are made, but also shows how the structure of the debate has led to the technological choices we now face.
In this challenging new book, Jean Bethke Elshtain, a nationally recognized scholar in political science and philosophy, and J. Timothy Cloyd, a strong new voice in social and political science, have assembled a collection of thought-provoking essays on these issues written by some of the finest minds of our day.
As Elliott explains in his introduction, Wittgenstein’s philosophy runs against the grain of most contemporary bioethics scholarship, which all too often ignores the context in which moral problems are situated and pays little attention to narrative, ethnography, and clinical case studies in rendering bioethical judgments. Such anonymous, impersonal, rule-writing directives in which health care workers are advised how to behave is what this volume intends to counteract. Instead, contributors stress the value of focusing on the concrete particulars of moral problems and write in the spirit of Wittgenstein’s belief that philosophy should be useful. Specific topics include the concept of “good dying,” the nature of clinical decision making, the treatment of neurologically damaged patients, the moral treatment of animals, and the challenges of moral particularism.
Inspired by a philosopher who deplored “professional philosophy,” this work brings some startling insights and clarifications to contemporary ethical problems posed by the realities of modern medicine.
Contributors. Larry Churchill, David DeGrazia, Cora Diamond, James Edwards, Carl Elliott, Grant Gillett, Paul Johnston, Margaret Olivia Little, James Lindemann Nelson, Knut Erik Tranoy
Government agencies and commissions, courts, and legislatures have during the past several decades produced reports, rendered decisions, and passed laws that have both defined the fundamental issues in the field of bioethics and established ways of managing them in our society. Providing a history of these key bioethical decisions, this Source Book in Bioethics is the first and only comprehensive collection of the critical public documents in biomedical ethics, including many hard-to-find or out-of-print materials.
Covering the period from 1947 to 1995, this volume brings together core legislative documents, court briefs, and reports by professional organizations, public bodies, and governments around the world. Sections on human experimentation, care of the terminally ill, genetics, human reproduction, and emerging areas in bioethics include such pivotal works as "The Nuremberg Code," "The Tuskegee Report," and "In the Matter of Baby M," as well less readily available documents as "The Declaration of Inuyama," the Council for International Organizations of Medical Sciences statement on genetic engineering, and "The Warnock Committee Report" on reproductive technologies from the United Kingdom. Three eminent scholars in the field provide brief introductions to each document explaining the significance of these classic sources.
This historical volume will be a standard text for courses in bioethics, health policy, and death and dying, and a primary reference for anyone interested in this increasingly relevant field.
This literally "refreshing" collection is based on the notion that the future of bioethics is inseparable from its past. Seminal works provide a unique and relatively unexplored vehicle for investigating not only where bioethics began, but where it may be going as well. In this volume, a number of the pioneers in bioethics—Tom Beauchamp, Lisa Sowle Cahill, James Childress, Charles E. Curran, Patricia King, H. Tristram Engelhardt, William F. May, Edmund D. Pellegrino, Warren Reich, Robert Veatch and LeRoy Walters—reflect on their early work and how they fit into the past and future of bioethics. Coming from many disciplines, generations, and perspectives, these trailblazing authors provide a broad overview of the history and current state of the field. Invaluable to anyone with a serious interest in the development and future of bioethics, at a time when new paths into medical questions are made almost daily, The Story of Bioethics is a Baedeker beyond compare.
Drawing on current research, this volume presents the varying reactions around the globe to the high rate of implantation. These views contrast sharply with the medical perspective of deafness overwhelmingly promoted through the media and by the cochlear implantation industry. At the same time, the contributors aim to disrupt the binaries that have long dominated the field of deafness — speech versus sign, instruction through speech and sign systems versus bilingual education, and medical intervention versus cultural membership in the Deaf community.
Surgical Consent begins and ends with the voices of Deaf people. Their articulate and, at times, raw insights clearly delineate the issues of power, positioning, and minority-majority group relations that are inherent in the dominant hearing culture’s understanding of diversity and globalization.
A pioneer in the theory of pluralistic casuistry, the idea that there are almost as many facets to moral choices as there are cases that call for choices, Baruch Brody takes issue with conventional bioethical wisdom and challenges the rigid principalism of contemporary bioethics. His views have been seen as controversial, but they are firmly held, and convincingly argued—all of which have led him to be one of the most widely discussed and highly admired bioethicists of our time. He argues for the fundamental distinction between active and passive euthanasia, for a need to reconceptualize approaches to brain death, and for the right of providers to unilaterally discontinue life support. He shows support for the waiving of the requirement of informed consent for some research, for the widespread use of animals in research, and for the use of placebos in many international clinical trials.
When it comes to morality as it is practiced in medicine, Brody makes clear that the ethical issues are never as simple as black and white—that there are myriad factors and fine nuances that can and should challenge decision making as it is commonly practiced in difficult medical cases. In this collection, delving thoughtfully and systematically into methodology, research ethics, clinical ethics, and Jewish medical ethics, he tackles thorny life-and-death questions head-on and fearlessly. He casts a light into all the corners of end-of-life decisions—a field in which he has exemplary credentials—while illuminating a new understanding of morality and ethics.
The introduction outlines Brody's approach, defines the terminology used, and contrasts his ethical positions with much of the competing literature. Taking Issue will be invaluable to students and scholars in medical ethics, bioethics, and philosophy of medicine.
A Wall Street Journal Top Ten Book of the Year
A First Things Books for Christmas Selection
Winner of the Expanded Reason Award
“This important work of moral philosophy argues that we are, first and foremost, embodied beings, and that public policy must recognize the limits and gifts that this entails.”
—Wall Street Journal
The natural limits of the human body make us vulnerable and dependent on others. Yet law and policy concerning biomedical research and the practice of medicine frequently disregard these stubborn facts. What It Means to Be Human makes the case for a new paradigm, one that better reflects the gifts and challenges of being human.
O. Carter Snead proposes a framework for public bioethics rooted in a vision of human identity and flourishing that supports those who are profoundly vulnerable and dependent—children, the disabled, and the elderly. He addresses three complex public matters: abortion, assisted reproductive technology, and end-of-life decisions. Avoiding typical dichotomies of conservative-liberal and secular-religious, Snead recasts debates within his framework of embodiment and dependence. He concludes that if the law is built on premises that reflect our lived experience, it will provide support for the vulnerable.
“This remarkable and insightful account of contemporary public bioethics and its individualist assumptions is indispensable reading for anyone with bioethical concerns.”
—Alasdair MacIntyre, author of After Virtue
“A brilliantly insightful book about how American law has enshrined individual autonomy as the highest moral good…Highly thought-provoking.”
—Francis Fukuyama, author of Identity
Renowned sociologist Charles L. Bosk has been observing medical care for thirty-five years. In What Would You Do? he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked. Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed. He questions whether promises of confidentiality and anonymity can or should be made. And he wonders if social scientists overestimate the benefits of their work while downplaying the risks.
Vital for practitioners of both the newly prominent field of bioethics and the long-established craft of ethnography, What Would You Do? will also engross anyone concerned with how our society addresses difficult health care issues.
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