Act Up-Paris became one of the most notable protest groups in France in the mid-1990s. Founded in 1989, and following the New York model, it became a confrontational voice representing the interests of those affected by HIV through openly political activism. Action=Vie, the English-language translation of Christophe Broqua’s study of the grassroots activist branch, explains the reasons for the group’s success and sheds light on Act Up's defining features—such as its unique articulation between AIDS and gay activism.

Featuring numerous accounts by witnesses and participants, Broqua traces the history of Act Up-Paris and shows how thousands of gay men and women confronted the AIDS epidemic by mobilizing with public actions. Act Up-Paris helped shape the social definition not only of HIV-positive persons but also of sexual minorities. Broqua analyzes the changes brought about by the group, from the emergence of new treatments for HIV infection to normalizing homosexuality and a controversy involving HIV-positive writers’ remarks about unprotected sex. This rousing history ends in the mid-2000s before marriage equality and antiretroviral treatments caused Act Up-Paris to decline.

A Choice Significant University Press Titles for Undergraduates, 2005–2006 

This history of the African AIDS epidemic is a much-needed, accessibly written historical account of the most serious epidemiological catastrophe of modern times. The African AIDS Epidemic: A History answers President Thabo Mbeki’s provocative question as to why Africa has suffered this terrible epidemic.

While Mbeki attributed the causes to poverty and exploitation, others have looked to distinctive sexual systems practiced in African cultures and communities. John Iliffe stresses historical sequence. He argues that Africa has had the worst epidemic because the disease was established in the general population before anyone knew the disease existed. HIV evolved with extraordinary speed and complexity, and because that evolution took place under the eyes of modern medical research scientists, Iliffe has been able to write a history of the virus itself that is probably unique among accounts of human epidemic diseases. In giving the African experience a historical shape, Iliffe has written one of the most important books of our time.

The African experience of AIDS has taught the world much of what it knows about HIV/AIDS, and this fascinating book brings into focus many aspects of the epidemic in the longer context of massive demographic growth, urbanization, and social change in Africa during the latter half of the twentieth century. The African AIDS Epidemic: A History is a brilliant introduction to the many aspects of the epidemic and the distinctive character of the virus.

There have been few book-length engagements with the question of sexuality in Africa, let alone African homosexuality. African Intimacies simultaneously responds to the public debate on the “Africanness” of homosexuality and interrogates the meaningfulness of the terms “sexuality” and “homosexuality” outside Euro-American discourse. Speculating on cultural practices interpreted by missionaries as sodomy and resistance to colonialism, Neville Hoad begins by analyzing the 1886 Bugandan martyrs incident—the execution of thirty men in the royal court. Then, in a series of close readings, he addresses questions of race, sex, and globalization in the 1965 Wole Soyinka novel The Interpreters, examines the emblematic 1998 Lambeth conference of Anglican bishops, considers the imperial legacy in depictions of the HIV/AIDS crisis, and reveals how South African writer Phaswane Mpe’s contemporary novel Welcome to Our Hillbrow problematizes notions of African identity and cosmopolitanism.Hoad’s assessment of the historical valence of homosexuality in Africa shows how the category has served a key role in a larger story, one in which sexuality has been made in line with a vision of white Western truth, limiting an understanding of intimacy that could imagine an African universalism.Neville Hoad is assistant professor of English at the University of Texas, Austin.

AIDS Alibis tackles the cultural landscape upon which AIDS, often accompanied by poverty, drug addiction, and crime, proliferates on a global scale. Stephanie Kane layers stories of individuals and events -- from Chicago to Belize City, to cyberspace -- to illustrate the paths of HIV infection and the effects of environment, government intervention, and social mores. Linking ordinary yet kindred lives in communities around the globe, Kane challenges the assumptions underlying the use of police and courts to solve health problems.

The stories reveal the dynamics that determine how the policy decisions of white-collar health care professionals actually play out in real life. By focusing on life-changing social problems, the narratives highlight the contradictions between public health and criminal law. Look at how HIV has transformed our social consciousness, from intimate touch to institutional outreach. But, Kane argues, these changes are dwarfed by the United States's refusal to stop the war on drugs, in effect misdirecting resources and awareness.

AIDS Alibis combines empirical and interpretive methods in a path-breaking attempt to recognize the extent to which coercive institutional practices are implicated in HIV transmission patterns. Kane shows how th e virus feeds on the politics of inequality and indifference, even as it exploits the human need for intimacy and release.

Thomas Yingling was a rising star in American studies, a leading figure in gay and lesbian studies, and a prominent theorist of AIDS and cultural politics when he died in 1992. AIDS and the National Body is a brilliant excursion into the mind and heart of Yingling, author of the critically acclaimed book, Hart Crane and the Homosexual Text. Robyn Wiegman, a friend and colleague of Yingling’s, has collected in this book a selection of his critical and creative work. These previously published and unpublished essays, nonacademic prose, poetry, and letters are a powerful testimonial to the intellectual legacy left by Yingling.
Contemplating the contradictions of individual identity from within a human body adapting to and living within a collective national culture, Yingling delves into such issues as canon formation, poetic theory, and the rhetoric of the body in American popular culture. In addition to Wiegman’s illuminating introduction, the conversation is joined by four other scholars—Michael Awkward, Robert L. Caserio, Stephen Melville, and David Román—whose critical and personal responses to Yingling’s writing weigh in throughout the volume. What emerges is a collection that embodies the particular difficulties of living with AIDS, of outliving someone who has died of AIDS, and of losing prematurely an important thinker.

Do patients have the right to know their physician's HIV status?

Can a dentist refuse treatment to an HIV-positive patient?

How do educators determine whether to allow an HIV-positive child to attend school, and if they do, should the parents of other children be informed?

Should a counselor break confidentiality by disclosing to a wife that her husband is infected with HIV?

This collection of original essays carefully examines the difficult moral choices the AIDS pandemic has presented for many professionals—physicians, nurses, dentists, teachers and school administrators, business managers, psychotherapists, lawyers, clergy, journalists, and politicians. In the workplace, problems posed by HIV and AIDS have led to a reexamination of traditional codes of ethics. Providing systematic and reasoned discussions, the authors explore the moral, legal, and ethical issues involved in the reconsideration of policies, standards of conduct, and the practicality of balancing personal and professional ethics.

AIDS and Africa are indelibly linked in popular consciousness, but despite widespread awareness of the epidemic, much of the story remains hidden beneath a superficial focus on condoms, sex workers, and antiretrovirals. Africa gets lost in this equation, Daniel Jordan Smith argues, transformed into a mere vehicle to explain AIDS, and in AIDS Doesn’t Show Its Face, he offers a powerful reversal, using AIDS as a lens through which to view Africa.

Drawing on twenty years of fieldwork in Nigeria, Smith tells a story of dramatic social changes, ones implicated in the same inequalities that also factor into local perceptions about AIDS—inequalities of gender, generation, and social class. Nigerians, he shows, view both social inequality and the presence of AIDS in moral terms, as kinds of ethical failure. Mixing ethnographies that describe everyday life with pointed analyses of public health interventions, he demonstrates just how powerful these paired anxieties—medical and social—are, and how the world might better alleviate them through a more sensitive understanding of their relationship.

The deluge of metaphors triggered in 1981 in France by the first public reports of what would turn out to be the AIDS epidemic spread with far greater speed and efficiency than the virus itself. To understand why it took France so long to react to the AIDS crisis, AIDS in French Culture analyzes the intersections of three discourses—the literary, the medical, and the political—and traces the origin of French attitudes about AIDS back to nineteenth-century anxieties about nationhood, masculinity, and sexuality.

In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, “AIDS is South Africa’s new apartheid.”

In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu’s assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg’s squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.

We see it all the time: organizations strive to persuade the public to change beliefs or behavior through expensive, expansive media campaigns. Designers painstakingly craft clear, resonant, and culturally sensitive messaging that will motivate people to buy a product, support a cause, vote for a candidate, or take active steps to improve their health. But once these campaigns leave the controlled environments of focus groups, advertising agencies, and stakeholder meetings to circulate, the public interprets and distorts the campaigns in ways their designers never intended or dreamed. In Best Laid Plans, Terence E. McDonnell explains why these attempts at mass persuasion often fail so badly.
            McDonnell argues that these well-designed campaigns are undergoing “cultural entropy”: the process through which the intended meanings and uses of cultural objects fracture into alternative meanings, new practices, failed interactions, and blatant disregard. Using AIDS media campaigns in Accra, Ghana, as its central case study, the book walks readers through best-practice, evidence-based media campaigns that fall totally flat. Female condoms are turned into bracelets, AIDS posters become home decorations, red ribbons fade into pink under the sun—to name a few failures. These damaging cultural misfires are not random. Rather, McDonnell makes the case that these disruptions are patterned, widespread, and inevitable—indicative of a broader process of cultural entropy.

Last year, more African Americans were reported with AIDS than any other racial or ethnic group. And while African Americans make up only 13 percent of the U.S. population, they account for more than 55 percent of all newly diagnosed HIV infections. These alarming developments have caused reactions ranging from profound grief to extreme anger in African-American communities, yet the organized political reaction has remained remarkably restrained.

The Boundaries of Blackness is the first full-scale exploration of the social, political, and cultural impact of AIDS on the African-American community. Informed by interviews with activists, ministers, public officials, and people with AIDS, Cathy Cohen unflinchingly brings to light how the epidemic fractured, rather than united, the black community. She traces how the disease separated blacks along different fault lines and analyzes the ensuing struggles and debates.

More broadly, Cohen analyzes how other cross-cutting issues—of class, gender, and sexuality—challenge accepted ideas of who belongs in the community. Such issues, she predicts, will increasingly occupy the political agendas of black organizations and institutions and can lead to either greater inclusiveness or further divisiveness.

The Boundaries of Blackness, by examining the response of a changing community to an issue laced with stigma, has much to teach us about oppression, resistance, and marginalization. It also offers valuable insight into how the politics of the African-American community—and other marginal groups—will evolve in the twenty-first century.

In recent years, the economy of the Caribbean has become almost completely dependent on international tourism. And today one of the chief ways that foreign visitors there seek pleasure is through prostitution. While much has been written on the female sex workers who service these tourists, Caribbean Pleasure Industry shifts the focus onto the men. Drawing on his groundbreaking ethnographic research in the Dominican Republic, Mark Padilla discovers a complex world where the global political and economic impact of tourism has led to shifting sexual identities, growing economic pressures, and new challenges for HIV prevention. In fluid prose, Padilla analyzes men who have sex with male tourists, yet identify themselves as “normal” heterosexual men and struggle to maintain this status within their relationships with wives and girlfriends. Padilla’s exceptional ability to describe the experiences of these men will interest anthropologists, but his examination of bisexuality and tourism as much-neglected factors in the HIV/AIDS epidemic makes this book essential to anyone concerned with health and sexuality in the Caribbean or beyond.

This anthology offers readers an array of viewpoints on the use of literature to confront AIDS as a social, literary, and medical phenomenon. A substantial annotated bibliography allows readers to pursue other fictional, biographical, poetic, and dramatic works on AIDS, ss well as criticism and analysis of AIDS writing.
 

In Cooking Data Cal Biruk offers an ethnographic account of research into the demographics of HIV and AIDS in Malawi to rethink the production of quantitative health data. While research practices are often understood within a clean/dirty binary, Biruk shows that data are never clean; rather, they are always “cooked” during their production and inevitably entangled with the lives of those who produce them. Examining how the relationships among fieldworkers, supervisors, respondents, and foreign demographers shape data, Biruk examines the ways in which units of information—such as survey questions and numbers written onto questionnaires by fieldworkers—acquire value as statistics that go on to shape national AIDS policy. Her approach illustrates how on-the-ground dynamics and research cultures mediate the production of global health statistics in ways that impact local economies and formulations of power and expertise.

The HIV/AIDS epidemic in Africa has defined the childhoods of an entire generation. Over the past twenty years, international NGOs and charities have devoted immense attention to the millions of African children orphaned by the disease. But in Crying for Our Elders, anthropologist Kristen E. Cheney argues that these humanitarian groups have misread the ‘orphan crisis’. She explains how the global humanitarian focus on orphanhood often elides the social and political circumstances that actually present the greatest adversity to vulnerable children—in effect deepening the crisis and thereby affecting children’s lives as irrevocably as HIV/AIDS itself.
 
Through ethnographic fieldwork and collaborative research with children in Uganda, Cheney traces how the “best interest” principle that governs children’s’ rights can stigmatize orphans and leave children in the post-antiretroviral era even more vulnerable to exploitation. She details the dramatic effects this has on traditional family support and child protection and stresses child empowerment over pity. Crying for Our Elders advances current discussions on humanitarianism, children’s studies, orphanhood, and kinship. By exploring the unique experience of AIDS orphanhood through the eyes of children, caregivers, and policymakers, Cheney shows that despite the extreme challenges of growing up in the era of HIV/AIDS, the post-ARV generation still holds out hope for the future.

A major new work from one of America's most acclaimed younger poets, Rafael Campo's Diva appears at the intersection of confession and confinement, hyperbole and humility. In his masterful third collection, Campo explores further the epic themes of his Cuban heritage and America's newness, his work as a doctor caring for AIDS patients and his identity as a gay man.
At once relishing and resisting the poetic traditions of formal English verse, Diva showcases Campo moving deftly between received forms and free verse. In each poem the sound of words is transformed into the highest of arts, the act of performance into the exercise of power, and the most profound abjection into the sweet promise of divinity. Culminating with his new and daring translations of Federico García Lorca's sonetos—the great Spanish poet's most homoerotically explicit and formally accomplished poems—Campo's music instills in the reader an exalted understanding of beauty, suffering, and, ultimately, the human capacity for empathy.

From reviews of Campo's previous poetry:
“Extraordinary meditations on illness and the healing power of words.”—Lambda Literary Foundation

“Read Campo to enter the bloodstream of a man who, with a haunting clarity of vision, shares his memories, his anguish, his healing love.”—Cortney Davis, Literature and Medicine

“Riveting, provocative, and refreshing—[this volume] is a gift to the clinician who is trying to re-invoke in his or her students the humility, compassion, and deep caring that brought us all into medicine in the first place.”—Dr. Sandra L. Bertman, Annals of Internal Medicine

“[Campo] listens to the sounds the body makes, but what he hears is poetry.”—Zoë Ingalls, Chronicle of Higher Education

“Powerful and accessible.”—Jonathan Jackson, Washington Blade

“Bemused, indelible, and heartbreaking.”—Marilyn Hacker, Out

“[Campo’s] private corral of disparate words twist, torque, collide with gorgeous creative imperative.”—Nomi Eve, Independent Weekly

"The HIV+ men incarcerated in Limestone Prison's Dorm 16 were put there to be forgotten. Not only do Benjamin Fleury-Steiner and Carla Crowder bring these men to life, Fleury-Steiner and Crowder also insist on placing these men in the middle of critical conversations about health policy, mass incarceration, and race. Dense with firsthand accounts, Dying Inside is a nimble, far-ranging and unblinking look at the cruelty inherent in our current penal policies."
---Lisa Kung, Director, Southern Center for Human Rights

"The looming prison health crisis, documented here at its extreme, is a shocking stain on American values and a clear opportunity to rethink our carceral approach to security."
---Jonathan Simon, University of California, Berkeley

"Dying Inside is a riveting account of a health crisis in a hidden prison facility."
---Michael Musheno, San Francisco State University, and coauthor of Deployed

"This fresh and original study should prick all of our consciences about the horrific consequences of the massive carceral state the United States has built over the last three decades."
---Marie Gottschalk, University of Pennsylvania, and author of The Prison and the Gallows

"An important, bold, and humanitarian book."
---Alison Liebling, University of Cambridge

"Fleury-Steiner makes a compelling case that inmate health care in America's prisons and jails has reached the point of catastrophe."
---Sharon Dolovich, University of California, Los Angeles

"Fleury-Steiner's persuasive argument not only exposes the sins of commission and omission on prison cellblocks, but also does an excellent job of showing how these problems are the natural result of our nation's shortsighted and punitive criminal justice policy."
---Allen Hornblum, Temple University, and author of Sentenced to Science

Dying Inside brings the reader face-to-face with the nightmarish conditions inside Limestone Prison's Dorm 16---the segregated HIV ward. Here, patients chained to beds share their space with insects and vermin in the filthy, drafty rooms, and contagious diseases spread like wildfire through a population with untreated---or poorly managed at best---HIV.

While Dorm 16 is a particularly horrific human rights tragedy, it is also a symptom of a disease afflicting the entire U.S. prison system. In recent decades, prison populations have exploded as Americans made mass incarceration the solution to crime, drugs, and other social problems even as privatization of prison services, especially health care, resulted in an overcrowded, underfunded system in which the most marginalized members of our society slowly wither from what the author calls "lethal abandonment."

This eye-opening account of one prison's failed health-care standards is a wake-up call, asking us to examine how we treat our forgotten citizens and compelling us to rethink the American prison system in this increasingly punitive age.

The HIV epidemic in Bolivia has received little attention on a global scale in light of the country’s low HIV prevalence rate. However, by profiling the largest city in this land-locked Latin American country, Carina Heckert shows how global health-funded HIV care programs at times clash with local realities, which can have catastrophic effects for people living with HIV who must rely on global health resources to survive. These ethnographic insights, as a result, can be applied to AIDS programs across the globe.
 
In Fault Lines of Care, Heckert provides a detailed examination of the effects of global health and governmental policy decisions on the everyday lives of people living with HIV in Santa Cruz. She focuses on the gendered dynamics that play a role in the development and implementation of HIV care programs and shows how decisions made from above impact what happens on the ground.  

In the first decade of the AIDS epidemic, New York City was struck like no other. By the early nineties, it was struggling with more known cases than the next forty most infected cities, including San Francisco, combined.

Fighting for Our Lives is the first comprehensive social history of New York's AIDS community-a diverse array of people that included not only gay men, but also African Americans, Haitians, Latinos, intravenous drug users, substance abuse professionals, elite supporters, and researchers. Looking back over twenty-five years, Susan Chambré focuses on the ways that these disparate groups formed networks of people and organizations that-both together and separately-supported persons with AIDS, reduced transmission, funded research, and in the process, gave a face to an epidemic that for many years, whether because of indifference, homophobia, or inefficiency, received little attention from government or health care professionals.

Beyond the limits of New York City, and even AIDS, this case study also shows how any epidemic provides a context for observing how societies respond to events that expose the inadequacies of their existing social and institutional arrangements. By drawing attention to the major faults of New York's (and America's) response to a major social and health crisis at the end of the twentieth century, the book urges more effective and sensitive actions-both governmental and civil-in the future.

The incandescent African American writer Gary Fisher was completely unpublished when he died of AIDS in 1994 at the age of 32. This volume, which includes all of Fisher’s stories and a generous selection from his journals, notebooks, and poems, will introduce readers to a tender, graphic, extravagant, and unswervingly incisive talent. In Fisher’s writings the razor-sharp rage is equalled only by the enveloping sweetness; the raw eroticism by a dazzling writerly elegance. Evocations of a haunting and mobile childhood are mixed in Fisher’s stories with an X-ray view of the racialized sexual vernaculars of gay San Francisco; while the journals braid together the narratives of sexual exploration and discovery, a joyous and deepening vocation as a writer, a growing intimacy with death, and an engagement with racial problematics that becomes ever more gravely and probingly imaginative.

A uniquely intimate, unflinching testimony of the experience of a young, African American gay man in the AIDS emergency, Gary in Your Pocket includes an introduction by Don Belton that describes Fisher’s achievement in the context of other work by Black gay men such as Marlon Riggs and Essex Hemphill, and a biographical afterword by Eve Kosofsky Sedgwick.

A long-awaited look at responses to the AIDS epidemic in relation to globalization

As AIDS began to appear around the "global village" in the early 1980s, the closeness brought by new technologies no longer promised wondrous cultural exchange; instead it made possible the transmission of a frightening new kind of disease. International scientific institutions and news organizations quickly constructed a "place" for AIDS in the global imaginary: from the heart of Africa and gay bathhouses in San Francisco to the back streets of Southeast Asia and poverty-stricken neighborhoods in the United States. Such simplistic accounts helped recycle racist ideas about Africans and Asians, intensified homophobic visions of irresponsible gay sexuality, and ignored the scientific and human reality of local experiences of the epidemic.

In Globalizing AIDS, pioneering cultural critic Cindy Patton looks at the complex interaction between modern science, media coverage, and local activism during the first decade of the epidemic. Patton's critique of both the production of scientific credibility and the implementation of public health policy at the local level offers a bold reevaluation of how we think about AIDS and an innovative approach to the reality of the disease.

Heterosexual Africa? The History of an Idea from the Age of Exploration to the Age of AIDS builds from Marc Epprecht’s previous book, Hungochani (which focuses explicitly on same-sex desire in southern Africa), to explore the historical processes by which a singular, heterosexual identity for Africa was constructed—by anthropologists, ethnopsychologists, colonial officials, African elites, and most recently, health care workers seeking to address the HIV/AIDS pandemic. This is an eloquently written, accessible book, based on a rich and diverse range of sources, that will find enthusiastic audiences in classrooms and in the general public.

Epprecht argues that Africans, just like people all over the world, have always had a range of sexualities and sexual identities. Over the course of the last two centuries, however, African societies south of the Sahara have come to be viewed as singularly heterosexual. Epprecht carefully traces the many routes by which this singularity, this heteronormativity, became a dominant culture. In telling a fascinating story that will surely generate lively debate, Epprecht makes his project speak to a range of literatures—queer theory, the new imperial history, African social history, queer and women’s studies, and biomedical literature on the HIV/AIDS pandemic. He does this with a light enough hand that his story is not bogged down by endless references to particular debates.

Heterosexual Africa? aims to understand an enduring stereotype about Africa and Africans. It asks how Africa came to be defined as a “homosexual-free zone” during the colonial era, and how this idea not only survived the transition to independence but flourished under conditions of globalization and early panicky responses to HIV/AIDS.

This first extensive study of the practice of blood transfusion in Africa traces the history of one of the most important therapies in modern medicine from the period of colonial rule to independence and the AIDS epidemic. The introduction of transfusion held great promise for improving health, but like most new medical practices, transfusion needed to be adapted to the needs of sub-Saharan Africa, for which there was no analogous treatment in traditional African medicine.

This otherwise beneficent medical procedure also created a “royal road” for microorganisms, and thus played a central part in the emergence of human immune viruses in epidemic form. As with more developed health care systems, blood transfusion practices in sub-Saharan Africa were incapable of detecting the emergence of HIV. As a result, given the wide use of transfusion, it became an important pathway for the initial spread of AIDS. Yet African health officials were not without means to understand and respond to the new danger, thanks to forty years of experience and a framework of appreciating long-standing health risks. The response to this risk, detailed in this book, yields important insight into the history of epidemics and HIV/AIDS.

Drawing on research from colonial-era governments, European Red Cross societies, independent African governments, and directly from health officers themselves, this book is the only historical study of the practice of blood transfusion in Africa.

WINNER, 2017 RACHEL CARSON PRIZE, SOCIETY FOR THE SOCIAL STUDIES OF SCIENCE

In 2002, Sierra Leone emerged from a decadelong civil war. Seeking international attention and development aid, its government faced a dilemma. Though devastated by conflict, Sierra Leone had a low prevalence of HIV. However, like most African countries, it stood to benefit from a large influx of foreign funds specifically targeted at HIV/AIDS prevention and care.

What Adia Benton chronicles in this ethnographically rich and often moving book is how one war-ravaged nation reoriented itself as a country suffering from HIV at the expense of other, more pressing health concerns. During her fieldwork in the capital, Freetown, a city of one million people, at least thirty NGOs administered internationally funded programs that included HIV/AIDS prevention and care. Benton probes why HIV exceptionalism—the idea that HIV is an exceptional disease requiring an exceptional response—continues to guide approaches to the epidemic worldwide and especially in Africa, even in low-prevalence settings.

In the fourth decade since the emergence of HIV/AIDS, many today are questioning whether the effort and money spent on this health crisis has in fact helped or exacerbated the problem. HIV Exceptionalism does this and more, asking, what are the unanticipated consequences that HIV/AIDS development programs engender?

Hospital Time is a memoir about friendship, family, and caregiving in the age of AIDS. Amy Hoffman, a writer, lesbian activist, and former editor of Gay Community News, chronicles with fury and unflinching honesty her experience serving as primary caretaker for her friend and colleague, Mike Riegle, who died from AIDS-related complications in 1992. Hoffman neither idealizes nor deifies Riegle, whom she portrays as a brilliant man, devoted prison rights activist, and very difficult friend.
Hoffman became central to Riegle’s caregiving when he asked her to be his health-care proxy, and although she willingly chose to do this, she explores her conflicting feelings about herself in this role and about her involvement with Riegle and his grueling struggle with hospitalization, illness, and, finally, death. She tells of the waves of grief that echoed throughout her life, awakening memories of other losses, entering her dreams and fantasies, and altering her relationships with friends, family, and even total strangers.
Hoffman’s memoir gives voice to the psychological and emotional havoc AIDS creates for those in the difficult role of caring for the terminally ill and it gives recognition to the role that lesbians continue to play in the AIDS emergency. A foreword by Urvashi Vaid, former executive director of the National Gay and Lesbian Task Force, offers a meditation on the politics of AIDS and the role of family in the lives of lesbians and gay men.

Paula A. Treichler has become a singularly important voice among the significant theorists on the AIDS crisis. Dissecting the cultural politics surrounding representations of HIV and AIDS, her work has altered the field of cultural studies by establishing medicine as a legitimate focus for cultural analysis. How to Have Theory in an Epidemic is a comprehensive collection of Treichler’s related writings, including revised and updated essays from the 1980s and 1990s that present a sustained argument about the AIDS epidemic from a uniquely knowledgeable and interdisciplinary standpoint.
“AIDS is more than an epidemic disease,” Treichler writes, “it is an epidemic of meanings.” Exploring how such meanings originate, proliferate, and take hold, her essays investigate how certain interpretations of the epidemic dominate while others are obscured. They also suggest ways to understand and choose between overlapping or competing discourses. In her coverage of roughly fifteen years of the AIDS epidemic, Treichler addresses a range of key issues, from biomedical discourse and theories of pathogenesis to the mainstream media’s depictions of the crisis in both developed and developing countries. She also examines representations of women and AIDS, treatment issues, and the role of activism in shaping the politics of the epidemic. Linking the AIDS tragedy to a uniquely broad spectrum of contemporary theory and culture, this collection concludes with an essay on the continued importance of theoretical thought for untangling the sociocultural phenomena of AIDS—and for tackling the disease itself.
With an exhaustive bibliography of critical and theoretical writings on HIV and AIDS, this long-awaited volume will be essential to all those invested in studying the course of AIDS, its devastating medical effects, and its massive impact on contemporary culture. It should become a standard text in university courses dealing with AIDS in biomedicine, sociology, anthropology, gay and lesbian studies, women’s studies, and cultural and media studies.

The HIV/AIDS epidemic has been a major catastrophe for gay communities. In less than two decades, the disease has profoundly changed the lives of gay men and lesbians. Not just a biological and viral agent, HIV has become an opportunistic social invader, reshaping communities and the distribution of wealth, altering the social careers of gay professionals and the patterns of entry into gay and lesbian life, and giving birth to groups like ACT UP and Queer Nation.

The distinguished contributors to this volume discuss the ways HIV/AIDS has changed collective and individual identities, as well as lives, of gay men and lesbians, and how these alterations have changed our perceptions of the epidemic. They cover such topics as the impact of the epidemic on small towns, cultural barriers to AIDS prevention, gay youth and intergenerational relations, and the roles of lesbians in AIDS organizations. This collection provides compelling insights into the new communities among gay men and lesbians and the new kinds of identities and relationships that are emerging from the social and cultural ferment engendered by HIV/AIDS.

Contributors include Barry D. Adam, Lourdes Arguelles, Rafael Miguel Diaz, John H. Gagnon, Gilbert Herdt, Gregory M. Herek, Nan D. Hunter, Peter M. Nardi, John L. Peterson, Anne Rivero, Gayle S. Rubin, Beth E. Schneider, and Nancy E. Stoller.

For gay men who are HIV-negative in a community devastated by AIDS, survival may be a matter of grief, guilt, anxiety, and isolation. In the Shadow of the Epidemic is a passionate and intimate look at the emotional and psychological impact of AIDS on the lives of the survivors of the epidemic, those who must face on a regular basis the death of friends and, in some cases, the decimation of their communities. Drawing upon his own experience as a clinical psychologist and a decade-long involvement with AIDS/HIV issues, Walt Odets explores the largely unrecognized matters of denial, depression, and identity that mark the experience of uninfected gay men.
Odets calls attention to the dire need to address issues that are affecting HIV-negative individuals—from concerns about sexuality and relations with those who are HIV-positive to universal questions about the nature and meaning of survival in the midst of disease. He argues that such action, while explicitly not directing attention away from the needs of those with AIDS, is essential to the human and biological well-being of gay communities. In the immensely powerful firsthand words of gay men living in a semiprivate holocaust, the need for a broader, compassionate approach to all of the AIDS epidemic’s victims becomes clear. In the Shadow of the Epidemic is a pathbreaking first step toward meeting that need.

When an artist dies we face two great losses: the person and the work he did not live to do. Loss within Loss  is a moving collaboration by some of America's most eloquent writers, who supply wry, raging, sorrowful, and buoyant accounts of artist friends and lovers struck down by AIDS. These essayists include Maya Angelou, Alan Gurganus, Brad Gooch, John Berendt, Craig Lucas, Robert Rosenblum, and eighteen others. Many of the subjects of the essays were already prominent—James Merrill, Paul Monette, David Wojnarowicz—but many others died young, before they were able to fulfil the promise of their lives and art. Loss within Loss spans all of the arts and includes portraits of choreographers, painters, poets, actors, playwrights, sculptors, editors, composers, and architects.

This landmark book is published in association with the Estate Project for Artists with AIDS, a national organization that preserves art works created by artists living with HIV or lost to AIDS. Loss within Loss stands as a powerful reminder of the devastating impact of the AIDS epidemic on the arts community and as the first real survey of that devastation. Though these accounts are often intensely sad, Loss within Loss is an invigorating, sometimes even exuberant, testimony to the sheer joy of being an artist . . . and being alive.

While much is known about prostitution and sex work from studies of female sex workers and their customers, relatively little is known about men who sell sex, either to women or other men. Particularly poorly understood are their motivations for doing so, the circumstances in which the sale of sex occurs, the meanings attached to the acts by both sex worker and client, and the HIV-related risks involved.

Each chapter, written by a national expert, is based on months and even years of interviews with male sex workers, including young boys and elderly men in some countries. The workers discuss why they do the work, what it is like, and what their behavior means to them. For example, those who have regular sex with men often strenuously affirm their heterosexuality, though there is considerable variety in their attitudes.

Each chapter relates the experiences of the male sex workers to the political economy of their neighborhood and assesses the implications of their work for HIV transmission and the AIDS epidemic. The researchers and the sex workers discuss the value of different kinds of health promotion interventions.

The Night Is Young takes us past the stereotypes of macho hombres and dark-eyed señoritas to reveal the complex nature of sexuality in modern-day Mexico. Drawing on field research conducted in Guadalajara, Mexico's second-largest city, Héctor Carrillo shows how modernization, globalization, and other social changes have affected a wide range of hetero- and homosexual practices and identities.

Carrillo finds that young Mexicans today grapple in a variety of ways with two competing tendencies. On the one hand, many seek to challenge traditional ideas and values they find limiting. But they also want to maintain a sense of Mexico's cultural distinctiveness, especially in relation to the United States. For example, while Mexicans are well aware of the dangers of unprotected sex, they may also prize the surrender to sexual passion, even in casual sexual encounters—an attitude which stems from the strong values placed on collective life, spontaneity, and an openness toward intimacy. Because these expectations contrast sharply with messages about individuality, planning, and overt negotiation commonly promoted in global public health efforts, Carrillo argues that they demand a new approach to AIDS prevention education in Mexico.

A Mexican native, Carrillo has written an exceptionally insightful and accessible study of the relations among sexuality, social change, and AIDS prevention in Mexico. Anyone concerned with the changing place of sexuality in a modern and increasingly globalized world will profit greatly from The Night Is Young.

Once Upon a Virus explores how contemporary, or "urban," legends are indicators of culturally complex attitudes toward health and illness.

Tracing the rich tradition of AIDS legends in relation to current scholarship on belief, Diane Goldstein shows how such stories not only articulate widespread perceptions of risk, health care, and health policy, they also influence official and scientific approaches to the disease and its management. Notions that appear in narratives of who gets AIDS, how and why, are indicators of broad issues involving health beliefs, concerns, and needs.

In Para-States and Medical Science, P. Wenzel Geissler and the contributors examine how medicine and public health in Africa have been transformed as a result of economic and political liberalization and globalization, intertwined with epidemiological and technological changes. The resulting fragmented medical science landscape is shaped and sustained by transnational flows of expertise and resources. NGOs, universities, pharmaceutical companies and other nonstate actors now play a significant role in medical research and treatment. But as the contributors to this volume argue, these groups have not supplanted the primacy of the nation-state in Africa. Although not necessarily stable or responsive, national governments remain crucial in medical care, both as employers of health care professionals and as sources of regulation, access, and – albeit sometimes counterintuitively - trust for their people. “The state” has morphed into the “para-state” — not a monolithic and predictable source of sovereignty and governance, but a shifting, and at times ephemeral, figure.  Tracing the emergence of the “global health” paradigm in Africa in the treatment of HIV, malaria, and leprosy, this book challenges familiar notions of African statehood as weak or illegitimate by elaborating complex new frameworks of governmentality that can be simultaneously functioning and dysfunctional.

Contributors. Uli Beisel, Didier Fassin, P. Wenzel Geissler, Rene Gerrets, Ann Kelly, Guillaume Lachenal, John Manton, Lotte Meinert, Vinh-Kim Nguyen, Branwyn Poleykett, Susan Reynolds Whyte
 

Now an award-winning documentary feature film

The search for a “patient zero”—popularly understood to be the first person infected in an epidemic—has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder.

McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

Since recording its first AIDS cases in 1983, Tanzania has reported nearly 90,000 more to the World Health Organization—more than any other country in Africa. As AIDS spread, the devastating syndrome came to be known simply as ugonjwa huo: "that disease."

The AIDS epidemic has forced Africans to reflect upon the meaning of traditional ideas and practices related to sexuality and fertility, and upon modernity and biomedicine. In A Plague of Paradoxes, anthropologist Philip Setel observes Tanzania's Chagga people and their attempts to cope with and understand AIDS—the latest in a series of crises over which they feel they have little, if any, control.

Timely and well-researched, A Plague of Paradoxes is an extended case study of the most serious epidemic of the twentieth century and the cultural circumstances out of which it emerged. It is a unique book that brings together anthropology, demography, and epidemiology to explain how a particular community in Africa experiences AIDS.

A frightening new plague. A medical mystery. A pioneering immunologist. In A Plague on All Our Houses, Dr. Bruce J. Hillman dissects the war of egos, money, academic power, and Hollywood clout that advanced AIDS research even as it compromised the career of the scientist who discovered the disease. At the beginning of the worldwide epidemic soon to be known as AIDS, Dr. Michael Gottlieb was a young immunologist new to the faculty of UCLA Medical Center. In 1981 he was brought in to consult on a battery of unusual cases: four formerly healthy gay men presenting with persistent fever, weight loss, and highly unusual infections. Other physicians around the country had noted similar clusters of symptoms, but it was Gottlieb who first realized that these patients had a new and deadly disease. He also identified the defect in their immune system that allowed the disease to flourish. He published his findings in a now-iconic lead article in the New England Journal of Medicine—an impressive achievement for such a young scientist—and quickly became the focal point of a whirlwind of panic, envy, desperation, and distrust that played out against a glittering Hollywood backdrop. Courted by the media, the gay community, and the entertainment industry, Gottlieb emerged as the medical face of the terrifying new epidemic when he became personal physician to Rock Hudson, the first celebrity AIDS patient. With Elizabeth Taylor he cofounded the charitable foundation amfAR, which advanced public awareness of AIDS and raised vast sums for research, even as it struggled against political resistance that began with the Reagan administration and trickled down through sedimentary layers of bureaucracy. Far from supporting him, the UCLA medical establishment reacted with dismay to Gottlieb’s early work on AIDS, believing it would tarnish the reputation of the Medical Center. Denied promotion and tenure in 1987, Gottlieb left UCLA for private practice just as the National Institutes of Health awarded the institution a $10 million grant for work he had pioneered there. In the thirty-five years since the discovery of AIDS, research, prevention, and clinical care have advanced to the point that the disease is no longer the death sentence it once was. Gottlieb’s seminal article is now regarded by the New England Journal of Medicine as one of the most significant publications of its two-hundred-year history. A Plague on All Our Houses offers a ringside seat to one of the most important medical discoveries and controversies of our time.

An updated edition of this essential work.

Since its initial publication, Policing Desire has proved to be an unparalleled analysis of “the cacophony of voices which sounds through every institution of our society on the subject of AIDS.” For the third edition Simon Watney has provided a new preface, a compelling new concluding essay, and a directory for AIDS information that includes electronic resources.

“A far-reaching analysis of images of AIDS and homosexuality in the media. . . . In Policing Desire, Simon Watney called the media on its own game, and the media actually changed its coverage of AIDS and queer issues.” Voice Literary Supplement“Simon Watney’s Policing Desire is essential reading for anyone who wants to press the question of how the media represents AIDS . . . it will stand as a great work of criticism written from the trenches.” New York Native“A landmark work in AIDS analysis because of the combination of emotional urgency and analytical insight that it manifests.” American Book ReviewWinner of the Gustavus Myers Prize for the Study of Human RightsISBN 0-8166-3024-0 Cloth $39.95xx CUSAISBN 0-8166-3025-9 Paper $16.95x CUSA000 pages 0 x 0 MarchMedia Studies/Social TheoryPolicing DesirePornography, AIDS and the MediaThird EditionSimon WatneyAn updated edition of this essential work. Since its initial publication, Policing Desire has proved to be an unparalleled analysis of “the cacophony of voices which sounds through every institution of our society on the subject of AIDS.” For the third edition Simon Watney has provided a new preface, a compelling new concluding essay, and a directory for AIDS information that includes electronic resources.“A far-reaching analysis of images of AIDS and homosexuality in the media. . . . In Policing Desire, Simon Watney called the media on its own game, and the media actually changed its coverage of AIDS and queer issues.” Voice Literary Supplement“Simon Watney’s Policing Desire is essential reading for anyone who wants to press the question of how the media represents AIDS . . . it will stand as a great work of criticism written from the trenches.” New York Native“A landmark work in AIDS analysis because of the combination of emotional urgency and analytical insight that it manifests.” American Book ReviewSimon Watney is the director of the Red Hot AIDS Charitable Trust, which distributes funds internationally for HIV/AIDS prevention and education. Watney lives in London, England.

Since the mid-1980s, Simon Watney has been one of the leading voices in the international field of HIV/AIDS education. His monthly column on AIDS in Britain’s Gay Times is the longest-running column of its kind in Europe, and he is actively involved in HIV/AIDS issues in the United States. His work constitutes a unique dialogue between European and American perspectives on the epidemic. Practices of Freedom brings together for the first time Watney’s pioneering writings on topics ranging from gay men’s Safer Sex education to racist coverage of AIDS in Africa in the international media, from the ethics of clinical drug trials to governmental policies concerning AIDS.
Watney’s voice—neither neutral nor detached—is that of an active and influential participant in the fight against AIDS. He offers a unique view of the ways in which gay men working in community-based organizations have attempted to provide reliable and up-to-date services and information regarding AIDS treatment and health. A leader in insisting on gay men’s entitlements to education, care, and services, Watney was among the first to challenge the "de-gaying" of AIDS service organizations in the late eighties. He also devotes his attention to HIV/AIDS prevention work, research and treatment issues, and the wider cultural politics of the disease, including the role of language, television, and cinema. His analysis of the epidemic as it has unfolded provides a history of many of the major medical and political debates that have defined the course and extent of the crisis.
Practices of Freedom demonstrates the failure of national institutions, from the government to the press, to understand and effectively fight this epidemic, and directs attention to the most urgent needs in American and international AIDS work. It will be an important primary resource, particularly in the United States, where effective community-based HIV/AIDS education tragically has often been neglected.

Approximately 70% of the global total of people living with HIV/AIDS in 2016 were in sub-Saharan Africa. After delayed governmental responses, the media has been consistently deployed as an essential tool for prevention. But HIV prevention campaigns reflect multiple conflicting and shifting agendas that encompass far more than the imparting of information about how to limit the spread of the virus. In Prevention: Gender, Sexuality, HIV, and the Media in Côte d’Ivoire, Christine Cynn draws from postcolonial, queer, and feminist film and media studies to critique global HIV prevention efforts and how they attempt to reshape gendered sexualities and notions of family in line with the rationality of neoliberalism.
More specifically, Cynn argues that through the bolstering of normative conceptions of gendered sexualities and families, HIV prevention media campaigns seek to actively create proper subjects, a goal corresponding with nation-building projects and reproducing their terms of belonging. During periods of increasingly virulent political and economic struggles in Côte d’Ivoire, such HIV prevention messages have lent support to lender- and state-mandated structural adjustment policies and to the exclusionary logic that casts some—such as those suffering from AIDS-related illnesses, those labeled as “homosexual,” sex workers, intravenous drug users, and the HIV-positive child—as implicitly unassimilable to the community and nation. Deeply interdisciplinary, Prevention brings to light new forms of exclusion and expands scholarship on gender and sexual normativities as it intersects with that on public health, neoliberalism, and film and media.
 

The Republic of Therapy tells the story of the global response to the HIV epidemic from the perspective of community organizers, activists, and people living with HIV in West Africa. Drawing on his experiences as a physician and anthropologist in Burkina Faso and Côte d’Ivoire, Vinh-Kim Nguyen focuses on the period between 1994, when effective antiretroviral treatments for HIV were discovered, and 2000, when the global health community acknowledged a right to treatment, making the drugs more available. During the intervening years, when antiretrovirals were scarce in Africa, triage decisions were made determining who would receive lifesaving treatment. Nguyen explains how those decisions altered social relations in West Africa. In 1994, anxious to “break the silence” and “put a face to the epidemic,” international agencies unwittingly created a market in which stories about being HIV positive could be bartered for access to limited medical resources. Being able to talk about oneself became a matter of life or death. Tracing the cultural and political logic of triage back to colonial classification systems, Nguyen shows how it persists in contemporary attempts to design, fund, and implement mass treatment programs in the developing world. He argues that as an enactment of decisions about who may live, triage constitutes a partial, mobile form of sovereignty: what might be called therapeutic sovereignty.

During the first decade of this millennium, many thousands of people in Uganda who otherwise would have died from AIDS got second chances at life. A massive global health intervention, the scaling up of antiretroviral therapy (ART), saved them and created a generation of people who learned to live with treatment. As clients they joined programs that offered free antiretroviral medicine and encouraged "positive living." Because ART is not a cure but a lifelong treatment regime, its consequences are far-reaching for society, families, and individuals. Drawing on personal accounts and a broad knowledge of Ugandan culture and history, the essays in this collection explore ART from the perspective of those who received second chances. Their concerns about treatment, partners, children, work, food, and bodies reveal the essential sociality of Ugandan life. The collection is based on research undertaken by a team of social scientists including both Western and African scholars.

Contributors. Phoebe Kajubi, David Kyaddondo, Lotte Meinert, Hanne O. Mogensen, Godfrey Etyang Siu, Jenipher Twebaze, Michael A. Whyte, Susan Reynolds Whyte

One of the most relevant social problems in contemporary American life is the continuing HIV epidemic in the Black population. With vivid ethnographic detail, this book brings together scholarship on the structural dimensions of the AIDS epidemic and the social construction of sexuality to assert that shifting forms of sexual stories—structural intimacies—are emerging, produced by the meeting of intimate lives and social structural patterns. These stories render such inequalities as racism, poverty, gender power disparities, sexual stigma, and discrimination as central not just to the dramatic, disproportionate spread of HIV in Black communities in the United States, but to the formation of Black sexualities.

Sonja Mackenzie elegantly argues that structural vulnerability is felt—quite literally—in the blood, in the possibilities and constraints on sexual lives, and in the rhetorics of their telling. The circulation of structural intimacies in daily life and in the political domain reflects possibilities for seeking what Mackenzie calls intimate justice at the nexus of cultural, economic, political, and moral spheres. Structural Intimacies presents a compelling case: in an era of deepening medicalization of HIV/AIDS, public health must move beyond individual-level interventions to community-level health equity frames and policy changes

In 1982, the American-born anthropologist Eric Michaels went to Australia to research the impact of television on remote aboriginal communities. Over the next five years, until his death, he became a major intellectual presence in Australia. Unbecoming is Michaels’s gritty, provocative, and intellectually powerful account of living with AIDS—a chronicle of the last year of his life as he became increasingly ill. Michaels’s diary offers a forceful and ironic rumination on the cultural phenomenon of AIDS, how it relates to his concerns as both an anthropologist and a gay man, and the failure of medical and governmental institutions to come to terms with the disease. Like the AIDS testimony of artist David Wojnarowicz and filmmaker Derek Jarman, Unbecoming provides a view of the AIDS epidemic from a distinctly new vantage point.

As atrocity has become characteristic of modern history, testimonial writing has become a major twentieth-century genre. Untimely Interventions relates testimonial writing, or witnessing, to the cultural situation of aftermath, exploring ways in which a culture can be haunted by its own history.

There is no question that AIDS has been, and continues to be, one of the most destructive diseases of the century, taking thousands of lives, devastating communities, and exposing prejudice and bigotry. But AIDS has also been a disease of transformation—it has fueled the national gay civil rights movement, altered medical research and federal drug testing, shaken up both federal and local politics, and inspired a vast cultural outpouring. Victory Deferred, the most comprehensive account of the epidemic in more than ten years, is the history of both the destruction and transformation wrought by AIDS.

John-Manuel Andriote chronicles the impact of the disease from the coming-out revelry of the 1970s to the post-AIDS gay community of the 1990s, showing how it has changed both individual lives and national organizations. He tells the truly remarkable story of how a health crisis pushed a disjointed jumble of local activists to become a nationally visible and politically powerful civil rights movement, a full-fledged minority group challenging the authority of some of the nation's most powerful institutions. Based on hundreds of interviews with those at the forefront of the medical, political, and cultural
responses to the disease, Victory Deferred artfully blends personal narratives with institutional histories and organizational politics to show how AIDS forced gay men from their closets and ghettos into the hallways of power to lobby and into the streets to protest.

Andriote, who has been at the center of national advocacy and AIDS politics in Washington, is judicious without being uncritical, and his account of the political maturation of the gay community is one of the most stirring civil rights stories of our time.

Victory Deferred draws on hundreds of original interviews, including first-hand accounts from: Virginia Apuzzo, Reverend Carl Bean, Marcus Conant, M.D., John D'Emilio, Anthony Fauci, M.D, Fenton Johnson, Larry Kramer, Lawrence D. Mass, M.D., Armistead Maupin, Walt Odets, Torie Osborn, Eric Rofes, Urvashi Vaid, Timothy Westmoreland, and Reggie Williams.

"[Victory Deferred] is a richly textured account of the rise of the AIDS sector, that though detailed and comprehensive, reads quickly. The thematic organization of the book works especially well. The clear chronology of the events reveals how competing models of service delivery, treatment activism and private-public cooperation were subsumed into a national AIDS movement. The book should prove excellent for teaching or recreational reading."—Jose Gabilondo, Washington Post

"[A] fine history of the epidemic. . . . Andriote shines with chapters on less-covered but no less important subjects, including the multibillion-dollar 'AIDS industry' and private fund-raising groups. He brings together in one place many facts and figures heretofore unsynthesized."—Joe R. Neel, Boston Globe

"While many books have explored aspects of the impact of AIDS, Victory Deferred is among the most comprehensive. Andriote's adroit integration of the personal and the historical results is an illustrative, analytical account of the disease and its impact on the gay civil-rights movement. His depiction of the poignant struggles, heroic responses and resultant social and political gains emanating from AIDS is a perceptive document for our time—relevant to all readers, regardless of their sexual orientation."—John R. Killacky, Minneapolis Star Tribune

"[A] well-researched and nuanced portrait of the many lives on which this grave disease has wrought both destruction and transformation."—Publishers Weekly

"Andriote combines broad strokes and telling details in this engaging history of the complicated war against both disease and bigotry."—Library Journal

Delves deep into the archives that keep the history and work of AIDS activism alive
 

Serving as a vital supplement to the existing scholarship on AIDS activism of the 1980s and 1990s, ViralCultures is the first book to critically examine the archives that have helped preserve and create the legacy of those radical activities. Marika Cifor charts the efforts activists, archivists, and curators have made to document the work of AIDS activism in the United States and the infrastructure developed to maintain it, safeguarding the material for future generations to remember these social movements and to revitalize the epidemic’s past in order to remake the present and future of AIDS. 

Drawing on large institutional archives such as the New York Public Library, as well as those developed by small, community-based organizations, this work of archival ethnography details how contemporary activists, artists, and curators use these records to build on the cultural legacy of AIDS activism to challenge the conditions of injustice that continue to undergird current AIDS crises. Cifor analyzes the various power structures through which these archives are mediated, demonstrating how ideology shapes the nature of archival material and how it is accessed and used. Positioning vital nostalgia as both a critical faculty and a generative practice, this book explores the act of saving this activist past and reanimating it in the digital age. 

While many books, popular films, and major exhibitions have contributed to a necessary awareness of HIV and AIDS activism, Viral Cultures provides a crucial missing link by highlighting the powerful role of archives in making those cultural moments possible. 

Viral Frictions takes the reader along a trail of intersecting narratives to uncover how and why it is that HIV-related stigma persists in the age of treatment. Pfeiffer convincingly argues that stigma is a socially constructed process co-produced at the nexus of local, national, and global relationships and storytelling about and practices associated with HIV. Based on a decade of fieldwork in one highway trading center in Kenya, Viral Frictions offers compelling stories of stigma and discrimination as a lens for understanding broader social processes, the complexities of globalization and health, and their profound impact on the everyday social lives and relationships of people living through the ongoing HIV epidemic in sub-Saharan Africa. This highly engaging book is ideal reading for those interested in teaching and learning about intersectionality, as Pfeiffer meticulously demonstrates how HIV stigma interacts with issues of treatment, race, ethnicity, class, gender, sexuality, social change, and international aid systems.

Nongovernmental organizations (NGOs) are ubiquitous in the Global South. Often international in origin, many attempt to assist local efforts to improve the lives of people often living in or near poverty. Yet their external origins often cloud their ability to impact health or quality of life, regardless of whether volunteers are local or foreign.
By focusing on one particular type of NGO—those organized to help prevent the spread and transmission of HIV in Kenya—Megan Hershey interrogates the ways these organizations achieve (or fail to achieve) their planned outcomes. Along the way, she examines the slippery slope that is often used to define “success” based on meeting donor-set goals versus locally identified needs. She also explores the complex network of bureaucratic requirements at both the national and local levels that affect the delicate relationships NGOs have with the state. Drawing on extensive, original quantitative and qualitative research, Whose Agency serves as a much-needed case study for understanding the strengths and shortcomings of participatory development and community engagement.