Act Up-Paris became one of the most notable protest groups in France in the mid-1990s. Founded in 1989, and following the New York model, it became a confrontational voice representing the interests of those affected by HIV through openly political activism. Action=Vie, the English-language translation of Christophe Broqua’s study of the grassroots activist branch, explains the reasons for the group’s success and sheds light on Act Up's defining features—such as its unique articulation between AIDS and gay activism.
Featuring numerous accounts by witnesses and participants, Broqua traces the history of Act Up-Paris and shows how thousands of gay men and women confronted the AIDS epidemic by mobilizing with public actions. Act Up-Paris helped shape the social definition not only of HIV-positive persons but also of sexual minorities. Broqua analyzes the changes brought about by the group, from the emergence of new treatments for HIV infection to normalizing homosexuality and a controversy involving HIV-positive writers’ remarks about unprotected sex. This rousing history ends in the mid-2000s before marriage equality and antiretroviral treatments caused Act Up-Paris to decline.
A Choice Significant University Press Titles for Undergraduates, 2005–2006
This history of the African AIDS epidemic is a much-needed, accessibly written historical account of the most serious epidemiological catastrophe of modern times. The African AIDS Epidemic: A History answers President Thabo Mbeki’s provocative question as to why Africa has suffered this terrible epidemic.
While Mbeki attributed the causes to poverty and exploitation, others have looked to distinctive sexual systems practiced in African cultures and communities. John Iliffe stresses historical sequence. He argues that Africa has had the worst epidemic because the disease was established in the general population before anyone knew the disease existed. HIV evolved with extraordinary speed and complexity, and because that evolution took place under the eyes of modern medical research scientists, Iliffe has been able to write a history of the virus itself that is probably unique among accounts of human epidemic diseases. In giving the African experience a historical shape, Iliffe has written one of the most important books of our time.
The African experience of AIDS has taught the world much of what it knows about HIV/AIDS, and this fascinating book brings into focus many aspects of the epidemic in the longer context of massive demographic growth, urbanization, and social change in Africa during the latter half of the twentieth century. The African AIDS Epidemic: A History is a brilliant introduction to the many aspects of the epidemic and the distinctive character of the virus.
Lucid and compellingly written, Patricia Siplon has immersed herself in the history and ongoing firestorms of how AIDS policies are influenced, fought over, and enacted in the United States. AIDS and the Policy Struggle in the United States is equally as engrossing and as revealing in its own way as And the Band Played On. With an initial chapter that clearly follows the tangled historical string from the first realizations of a medical emergency to today's overwhelming worldwide epidemical crisis, she goes on to look at how medical treatments have changed and grown; how blood policies were formed; how value-based debates raged and continue to rage over prevention; how communities developed to first respond to the crisis, and later organized to fight for health care; and finally-now that AIDS is recognized for the global crisis it is-how foreign policy is being shaped.
Invaluable for activists and anyone involved in fighting for the humane treatment of people with HIV/AIDS around the world, this is also an important and insightful guide to the how and what of public policy as it is fashioned out of the clay of U.S. democratic institutions.
AIDS is unquestionably the most serious threat to public health in this century--yet how effective has the United States been in coping with this deadly disease? This sobering analysis of the first five years of the AIDS epidemic reveals the failure of traditional approaches in recognizing and managing this health emergency; it is an extremely unsettling probe into what makes the nation ill equipped to handle a crisis of the magnitude of the one that now confronts us.
Sandra Panem pays particular attention to the Public Health Service, within which the vast majority of biomedical research and public health services are organized, including the Centers for Disease Control and the National Institutes of Health. We learn in dismaying detail how shortcomings in communication within and among the many layers of the health establishment delayed management of the crisis.
She also investigates other problems that surface during a health emergency, involving issues such as federal budgeting, partisan politics, bureaucratic bungles, educating the public, the complications of policymaking, and the vexing role of the press. Panem makes specific recommendations for a centrally coordinated federal response to health emergencies, including the creation of a national health emergency plan.
Do patients have the right to know their physician's HIV status?
Can a dentist refuse treatment to an HIV-positive patient?
How do educators determine whether to allow an HIV-positive child to attend school, and if they do, should the parents of other children be informed?
Should a counselor break confidentiality by disclosing to a wife that her husband is infected with HIV?
This collection of original essays carefully examines the difficult moral choices the AIDS pandemic has presented for many professionals—physicians, nurses, dentists, teachers and school administrators, business managers, psychotherapists, lawyers, clergy, journalists, and politicians. In the workplace, problems posed by HIV and AIDS have led to a reexamination of traditional codes of ethics. Providing systematic and reasoned discussions, the authors explore the moral, legal, and ethical issues involved in the reconsideration of policies, standards of conduct, and the practicality of balancing personal and professional ethics.
Contributors: Albert Flores, Joan C. Callahan, Jill Powell, Kenneth Kipnis, Al Gini, Howard Cohen, Martin Gunderson, Joseph A. Edelheit, Michael Pritchard, Vincent J. Samar, Sohair ElBaz, William Pardue, and the editors.
The deluge of metaphors triggered in 1981 in France by the first public reports of what would turn out to be the AIDS epidemic spread with far greater speed and efficiency than the virus itself. To understand why it took France so long to react to the AIDS crisis, AIDS in French Culture analyzes the intersections of three discourses—the literary, the medical, and the political—and traces the origin of French attitudes about AIDS back to nineteenth-century anxieties about nationhood, masculinity, and sexuality.
In the ten years since the first cases of AIDS were reported, the disease has spread around the world. Every country has had to come up with policies suited to its own conditions, economy, culture, and institutions. The differences among their approaches are striking. This volume, the first international comprehensive comparison of responses to AIDS, is a unique guide to the world's most urgent public health crisis.
Sixteen leading experts in public health, social science, government, and public policy from USA, Canada, Germany, Australia, Spain, Britain, France, the Netherlands, Denmark, Sweden, and Japan candidly recount and analyze the responses of their own nations and comment on the lessons that can be drawn from each country's experience. For each country, they look critically at the tragic statistics of AIDS incidence; the circumstances of AIDS's first appearance; public health traditions of mandatory screening, contact tracing, and quarantine; attitudes toward drug abuse, homosexuality, sex education; publicity about AIDS; legal and customary protections of civil rights, minority groups, medical confidentiality; access to health care and insurance; and the interplay of formal and informal interest groups in shaping policy. The spectrum of AIDS policy ranges from severe "contain-and-control" programs to much more liberal plans based on education, cooperation, and inclusion.
No matter what policy a nation has constructed to deal with AIDS, the coming decade will test how well that policy conforms to democratic ideals. By scrutinizing the responses to AIDS so far, this book aims to give countries around the world a chance to learn from each others' mistakes and triumphs. It will be essential reading for all students and professionals in public health and public policy.
The impact of the AIDS pandemic on health systems and entire societies in the 1990s will be much more severe than it was in the last decade; up-to-date information about the disease is now crucial. Yet even though readers are deluged by technical publications and popularizations, no single book tracks, on an annual basis, the evolution of the pandemic, its effects, and the worldwide response.
To fill this gap, Jonathan Mann, founding director of the World Health Organization's Global Progam on AIDS and currently director of the International AIDS Center at Harvard University, has assembled a team of experts to produce an unprecedented document for our time. AIDS in the World will synthesize the best possible information, data, and thinking about AIDS into a volume that is destined to become a landmark publication. AIDS in the World will provide a vital guide to rekindling the worldwide assault on AIDS. To ensure that AIDS in the World 1992 is both timely and authoritative, the editors have enlisted the support of an extensive team of researchers, specialists, scientists, writers, and experts to provide a solid basis for new and original thinking on a wide range of topics.
This book reviews the status of the disease, including numbers of AIDS cases and deaths; AIDS and HIV prevalence; mortality rates; links between other infections and HlV breakthroughs in biomedical, clinical, and behavioral areas; prevention and care; legislation and human rights issues; and economic and demographic aspects. AIDS in the World 1992 provides a global assessment for where we are now and where we are headed; it spotlights critical issues and highlights communities and countries that may be especially vulnerable to the dissemination of HIV. With publication scheduled before the VIIIth International Conference on AIDS in July 1992, this work will be indispensable for governments, policymakers, scientists, health care workers, and journalists around the world who will rely on this book to make the crucial decisions of this decade and the next.
In recent years, the economy of the Caribbean has become almost completely dependent on international tourism. And today one of the chief ways that foreign visitors there seek pleasure is through prostitution. While much has been written on the female sex workers who service these tourists, Caribbean Pleasure Industry shifts the focus onto the men. Drawing on his groundbreaking ethnographic research in the Dominican Republic, Mark Padilla discovers a complex world where the global political and economic impact of tourism has led to shifting sexual identities, growing economic pressures, and new challenges for HIV prevention. In fluid prose, Padilla analyzes men who have sex with male tourists, yet identify themselves as “normal” heterosexual men and struggle to maintain this status within their relationships with wives and girlfriends. Padilla’s exceptional ability to describe the experiences of these men will interest anthropologists, but his examination of bisexuality and tourism as much-neglected factors in the HIV/AIDS epidemic makes this book essential to anyone concerned with health and sexuality in the Caribbean or beyond.
How global health practices can end up reorganizing practices of care for the people and communities they seek to serve
Commodities of Care examines the unanticipated effects of global health interventions, ideas, and practices as they unfold in communities of men who have sex with men (MSM) in China. Targeted for the scaling-up of HIV testing, Elsa L. Fan examines how the impact of this initiative has transformed these men from subjects of care into commodities of care: through the use of performance-based financing tied to HIV testing, MSM have become a source of economic and political capital.
In ethnographic detail, Fan shows how this particular program, ushered in by global health donors, became the prevailing strategy to control the epidemic in China in the late 2000s. Fan examines the implementation of MSM testing and its effects among these men, arguing that the intervention produced new markets of men, driven by the push to meet testing metrics.
Fan shows how men who have sex with men in China came to see themselves as part of a global “MSM” category, adopting new selfhoods and socialities inextricably tied to HIV and to testing. Wider trends in global health programming have shaped national public health responses in China and, this book reveals, have radically altered the ways health, disease, and care are addressed.
From reviews of Campo's previous poetry:
“Extraordinary meditations on illness and the healing power of words.”—Lambda Literary Foundation
“Read Campo to enter the bloodstream of a man who, with a haunting clarity of vision, shares his memories, his anguish, his healing love.”—Cortney Davis, Literature and Medicine
“Riveting, provocative, and refreshing—[this volume] is a gift to the clinician who is trying to re-invoke in his or her students the humility, compassion, and deep caring that brought us all into medicine in the first place.”—Dr. Sandra L. Bertman, Annals of Internal Medicine
“[Campo] listens to the sounds the body makes, but what he hears is poetry.”—Zoë Ingalls, Chronicle of Higher Education
“Powerful and accessible.”—Jonathan Jackson, Washington Blade
“Bemused, indelible, and heartbreaking.”—Marilyn Hacker, Out
“[Campo’s] private corral of disparate words twist, torque, collide with gorgeous creative imperative.”—Nomi Eve, Independent Weekly
"The HIV+ men incarcerated in Limestone Prison's Dorm 16 were put there to be forgotten. Not only do Benjamin Fleury-Steiner and Carla Crowder bring these men to life, Fleury-Steiner and Crowder also insist on placing these men in the middle of critical conversations about health policy, mass incarceration, and race. Dense with firsthand accounts, Dying Inside is a nimble, far-ranging and unblinking look at the cruelty inherent in our current penal policies."
---Lisa Kung, Director, Southern Center for Human Rights
"The looming prison health crisis, documented here at its extreme, is a shocking stain on American values and a clear opportunity to rethink our carceral approach to security."
---Jonathan Simon, University of California, Berkeley
"Dying Inside is a riveting account of a health crisis in a hidden prison facility."
---Michael Musheno, San Francisco State University, and coauthor of Deployed
"This fresh and original study should prick all of our consciences about the horrific consequences of the massive carceral state the United States has built over the last three decades."
---Marie Gottschalk, University of Pennsylvania, and author of The Prison and the Gallows
"An important, bold, and humanitarian book."
---Alison Liebling, University of Cambridge
"Fleury-Steiner makes a compelling case that inmate health care in America's prisons and jails has reached the point of catastrophe."
---Sharon Dolovich, University of California, Los Angeles
"Fleury-Steiner's persuasive argument not only exposes the sins of commission and omission on prison cellblocks, but also does an excellent job of showing how these problems are the natural result of our nation's shortsighted and punitive criminal justice policy."
---Allen Hornblum, Temple University, and author of Sentenced to Science
Dying Inside brings the reader face-to-face with the nightmarish conditions inside Limestone Prison's Dorm 16---the segregated HIV ward. Here, patients chained to beds share their space with insects and vermin in the filthy, drafty rooms, and contagious diseases spread like wildfire through a population with untreated---or poorly managed at best---HIV.
While Dorm 16 is a particularly horrific human rights tragedy, it is also a symptom of a disease afflicting the entire U.S. prison system. In recent decades, prison populations have exploded as Americans made mass incarceration the solution to crime, drugs, and other social problems even as privatization of prison services, especially health care, resulted in an overcrowded, underfunded system in which the most marginalized members of our society slowly wither from what the author calls "lethal abandonment."
This eye-opening account of one prison's failed health-care standards is a wake-up call, asking us to examine how we treat our forgotten citizens and compelling us to rethink the American prison system in this increasingly punitive age.
In the first decade of the AIDS epidemic, New York City was struck like no other. By the early nineties, it was struggling with more known cases than the next forty most infected cities, including San Francisco, combined.
Fighting for Our Lives is the first comprehensive social history of New York's AIDS community-a diverse array of people that included not only gay men, but also African Americans, Haitians, Latinos, intravenous drug users, substance abuse professionals, elite supporters, and researchers. Looking back over twenty-five years, Susan Chambré focuses on the ways that these disparate groups formed networks of people and organizations that-both together and separately-supported persons with AIDS, reduced transmission, funded research, and in the process, gave a face to an epidemic that for many years, whether because of indifference, homophobia, or inefficiency, received little attention from government or health care professionals.
Beyond the limits of New York City, and even AIDS, this case study also shows how any epidemic provides a context for observing how societies respond to events that expose the inadequacies of their existing social and institutional arrangements. By drawing attention to the major faults of New York's (and America's) response to a major social and health crisis at the end of the twentieth century, the book urges more effective and sensitive actions-both governmental and civil-in the future.
A long-awaited look at responses to the AIDS epidemic in relation to globalization
As AIDS began to appear around the "global village" in the early 1980s, the closeness brought by new technologies no longer promised wondrous cultural exchange; instead it made possible the transmission of a frightening new kind of disease. International scientific institutions and news organizations quickly constructed a "place" for AIDS in the global imaginary: from the heart of Africa and gay bathhouses in San Francisco to the back streets of Southeast Asia and poverty-stricken neighborhoods in the United States. Such simplistic accounts helped recycle racist ideas about Africans and Asians, intensified homophobic visions of irresponsible gay sexuality, and ignored the scientific and human reality of local experiences of the epidemic.
In Globalizing AIDS, pioneering cultural critic Cindy Patton looks at the complex interaction between modern science, media coverage, and local activism during the first decade of the epidemic. Patton's critique of both the production of scientific credibility and the implementation of public health policy at the local level offers a bold reevaluation of how we think about AIDS and an innovative approach to the reality of the disease.A deep examination of how new, legalistic norms affected the trajectory of global HIV care and altered the practice of medicine.
HIV emerged in the world at a time when medicine and healthcare were undergoing two major transformations: globalization and a turn toward legally inflected, rule-based ways of doing things. It accelerated both trends. While pestilence and disease are generally considered the domain of biological sciences and medicine, social arrangements—and law in particular—are also crucial.
Drawing on years of research in HIV clinics in the United States, Thailand, South Africa, and Uganda, Governing the Global Clinic examines how growing norms of legalized accountability have altered the work of healthcare systems and how the effects of legalization vary across different national contexts. A key feature of legalism is universalistic language, but, in practice, rules are usually imported from richer countries (especially the United States) to poorer ones that have less adequate infrastructure and fewer resources with which to implement them. Challenging readers to reconsider the impulse to use law to organize and govern social life, Governing the Global Clinic poses difficult questions: When do rules solve problems, and when do they create new problems? When do rules become decoupled from ethics, and when do they lead to deeper moral commitments? When do rules reduce inequality? And when do they reflect, reproduce, and even amplify inequality?
Heterosexual Africa? The History of an Idea from the Age of Exploration to the Age of AIDS builds from Marc Epprecht’s previous book, Hungochani (which focuses explicitly on same-sex desire in southern Africa), to explore the historical processes by which a singular, heterosexual identity for Africa was constructed—by anthropologists, ethnopsychologists, colonial officials, African elites, and most recently, health care workers seeking to address the HIV/AIDS pandemic. This is an eloquently written, accessible book, based on a rich and diverse range of sources, that will find enthusiastic audiences in classrooms and in the general public.
Epprecht argues that Africans, just like people all over the world, have always had a range of sexualities and sexual identities. Over the course of the last two centuries, however, African societies south of the Sahara have come to be viewed as singularly heterosexual. Epprecht carefully traces the many routes by which this singularity, this heteronormativity, became a dominant culture. In telling a fascinating story that will surely generate lively debate, Epprecht makes his project speak to a range of literatures—queer theory, the new imperial history, African social history, queer and women’s studies, and biomedical literature on the HIV/AIDS pandemic. He does this with a light enough hand that his story is not bogged down by endless references to particular debates.
Heterosexual Africa? aims to understand an enduring stereotype about Africa and Africans. It asks how Africa came to be defined as a “homosexual-free zone” during the colonial era, and how this idea not only survived the transition to independence but flourished under conditions of globalization and early panicky responses to HIV/AIDS.
This first extensive study of the practice of blood transfusion in Africa traces the history of one of the most important therapies in modern medicine from the period of colonial rule to independence and the AIDS epidemic. The introduction of transfusion held great promise for improving health, but like most new medical practices, transfusion needed to be adapted to the needs of sub-Saharan Africa, for which there was no analogous treatment in traditional African medicine.
This otherwise beneficent medical procedure also created a “royal road” for microorganisms, and thus played a central part in the emergence of human immune viruses in epidemic form. As with more developed health care systems, blood transfusion practices in sub-Saharan Africa were incapable of detecting the emergence of HIV. As a result, given the wide use of transfusion, it became an important pathway for the initial spread of AIDS. Yet African health officials were not without means to understand and respond to the new danger, thanks to forty years of experience and a framework of appreciating long-standing health risks. The response to this risk, detailed in this book, yields important insight into the history of epidemics and HIV/AIDS.
Drawing on research from colonial-era governments, European Red Cross societies, independent African governments, and directly from health officers themselves, this book is the only historical study of the practice of blood transfusion in Africa.
WINNER, 2017 RACHEL CARSON PRIZE, SOCIETY FOR THE SOCIAL STUDIES OF SCIENCE
In 2002, Sierra Leone emerged from a decadelong civil war. Seeking international attention and development aid, its government faced a dilemma. Though devastated by conflict, Sierra Leone had a low prevalence of HIV. However, like most African countries, it stood to benefit from a large influx of foreign funds specifically targeted at HIV/AIDS prevention and care.
What Adia Benton chronicles in this ethnographically rich and often moving book is how one war-ravaged nation reoriented itself as a country suffering from HIV at the expense of other, more pressing health concerns. During her fieldwork in the capital, Freetown, a city of one million people, at least thirty NGOs administered internationally funded programs that included HIV/AIDS prevention and care. Benton probes why HIV exceptionalism—the idea that HIV is an exceptional disease requiring an exceptional response—continues to guide approaches to the epidemic worldwide and especially in Africa, even in low-prevalence settings.
In the fourth decade since the emergence of HIV/AIDS, many today are questioning whether the effort and money spent on this health crisis has in fact helped or exacerbated the problem. HIV Exceptionalism does this and more, asking, what are the unanticipated consequences that HIV/AIDS development programs engender?
The AIDS epidemic soured the memory of the sexual revolution and gay liberation of the 1970s, and prominent politicians, commentators, and academics instructed gay men to forget the sexual cultures of the 1970s in order to ensure a healthy future. But without memory there can be no future, argue Christopher Castiglia and Christopher Reed in this exploration of the struggle over gay memory that marked the decades following the onset of AIDS.
Challenging many of the assumptions behind first-wave queer theory, If Memory Serves offers a new perspective on the emergence of contemporary queer culture from the suppression and repression of gay memory. Drawing on a rich archive of videos, films, television shows, novels, monuments, paintings, and sculptures created in the wake of the epidemic, the authors reveal a resistance among critics to valuing—even recognizing—the inscription of gay memory in art, literature, popular culture, and the built environment. Castiglia and Reed explore such topics as the unacknowledged ways in which the popular sitcom Will and Grace circulated gay subcultural references to awaken a desire for belonging among young viewers; the post-traumatic (un)rememberings of queer theory; and the generation of “ideality politics” in the art of Félix González-Torres, the film Chuck & Buck, and the independent video Video Remains.
Inspired by Alasdair MacIntyre’s insight that “the possession of a historical identity and the possession of a social identity coincide,” Castiglia and Reed demonstrate that memory is crafted in response to inadequacies in the present—and therefore a constructive relation to the past is essential to the imagining of a new future.
Winner of the 2015 Margaret Mead Award from the American Anthropological Association and the Society for Applied Anthropology
After Haiti’s 2010 earthquake, over half of U.S. households donated to thousands of nongovernmental organizations (NGOs) in that country. Yet we continue to hear stories of misery from Haiti. Why have NGOs failed at their mission?
Set in Haiti during the 2004 coup and aftermath and enhanced by research conducted after the 2010 earthquake, Killing with Kindness analyzes the impact of official development aid on recipient NGOs and their relationships with local communities. Written like a detective story, the book offers rich ethnographic comparisons of two Haitian women’s NGOs working in HIV/AIDS prevention, one with public funding (including USAID), the other with private European NGO partners. Mark Schuller looks at participation and autonomy, analyzing donor policies that inhibit these goals. He focuses on NGOs’ roles as intermediaries in “gluing” the contemporary world system together and shows how power works within the aid system as these intermediaries impose interpretations of unclear mandates down the chain—a process Schuller calls “trickle-down imperialism.”
This landmark book is published in association with the Estate Project for Artists with AIDS, a national organization that preserves art works created by artists living with HIV or lost to AIDS. Loss within Loss stands as a powerful reminder of the devastating impact of the AIDS epidemic on the arts community and as the first real survey of that devastation. Though these accounts are often intensely sad, Loss within Loss is an invigorating, sometimes even exuberant, testimony to the sheer joy of being an artist . . . and being alive.
The most important public health problem of our time—AIDS—is also the most shrouded in myth and misinformation. To bring the facts out of the shadows of fear and hysteria, the first edition of Mobilizing against AIDS was published in 1986. This new edition, nearly double the size of the first, interprets the results of the latest research on the disease and possible methods of treatment.
For the foreseeable future the vast majority of AIDS cases will occur among groups that have already experienced major losses: homosexual and bisexual men, intravenous drug abusers, people who received blood or blood products before techniques were developed to safeguard the blood supply, heterosexual partners of those at recognized risk of HIV infection, and infants born to infected mothers. Mobilizing against AIDS examines new data on the growth of the epidemic within these groups, as well as on successful and failed attempts to stop the spread of the disease. In addition, it explores the growing problem of AIDS among the urban poor.
This new edition also presents up to date information on how the disease affects the body, including damage to immune cells, bone marrow cells, skin cells, and cells of the cervix and colon. It contains additional discussions of treatment (particularly drug therapy and prospects for a vaccine) and a searching examination of the implications of societal and individual stress caused by the epidemic. In summarizing the events that have taken place in the last few years, Eve K. Nichols has worked closely with the Institute of Medicine, National Academy of Sciences and other key players in the battle against AIDS. Maintaining the clear and nontechnical style that has been so widely acclaimed, Nichols has forged an extraordinarily thorough synthesis that carries an authoritative stamp, ensuring that this new edition will be an indispensable resource for everyone concerned with AIDS and its treatment.
Combining anthropological, historical, and public health perspectives, Modernizing Medicine in Zimbabwe explores the intersection of African healing traditions and Western health development, emphasizing the role of this historical relationship in current debates about HIV/AIDS. Drawing on diverse sources including colonial records, missionary correspondence, international health policy reports, and interviews with traditional healers, anthropologist David S. Simmons demonstrates the remarkable adaptive qualities of these disparate communities as they try to meet the urgent needs of the people.
In the late 1980s, after a decade spent engaged in more routine interest-group politics, thousands of lesbians and gay men responded to the AIDS crisis by defiantly and dramatically taking to the streets. But by the early 1990s, the organization they founded, ACT UP, was no more—even as the AIDS epidemic raged on. Weaving together interviews with activists, extensive research, and reflections on the author’s time as a member of the organization, Moving Politics is the first book to chronicle the rise and fall of ACT UP, highlighting a key factor in its trajectory: emotion.
Surprisingly overlooked by many scholars of social movements, emotion, Gould argues, plays a fundamental role in political activism. From anger to hope, pride to shame, and solidarity to despair, feelings played a significant part in ACT UP’s provocative style of protest, which included raucous demonstrations, die-ins, and other kinds of street theater. Detailing the movement’s public triumphs and private setbacks, Moving Politics is the definitive account of ACT UP’s origin, development, and decline as well as a searching look at the role of emotion in contentious politics.
The real story behind the Nushawn Williams case: media distortions, judicial contortions, ruined lives
In the fall of 1997, public authorities in Chautauqua County, New York, were granted an exception to the state’s HIV confidentiality law—and released Nushawn Williams’s name and picture to the press, deeming him a “public health threat,” the source of a “near epidemic” of HIV transmission. Williams, who is HIV-positive, had unprotected sex with many young women and girls and infected at least nine of them.
In Notorious H.I.V. Thomas Shevory sorts through the ensuing media panic and legal imbroglio to tell the story behind the Nushawn Williams case. Through media reports, legal documents, and interviews with many of the participants—including Williams, who eventually pled guilty to reckless endangerment and statutory rape charges and is currently serving time in a maximum security prison in New York—Shevory exposes the significant exaggerations, misunderstandings, and distortions that riddled the Williams case from the start. He contends that Williams’s portrayal as an “AIDS monster” served political purposes; specifically, representations of Williams helped to foster the passage of HIV-transmission statutes, resulting in criminalizing a public health problem in a virtually unprecedented fashion.Notorious H.I.V. also traces the impact of such high-profile cases on communities. Shevory provides a nuanced portrait of the hard economic and cultural realities of Jamestown, New York, and, drawing on Williams’s narratives, of the life of a lower-level drug dealer in a small upstate city. His work shows how media coverage robs individuals like Williams of their humanity, creating a pervasive atmosphere of threat that warps the integrity and fairness of the criminal justice and penal system.Once Upon a Virus explores how contemporary, or "urban," legends are indicators of culturally complex attitudes toward health and illness.
Tracing the rich tradition of AIDS legends in relation to current scholarship on belief, Diane Goldstein shows how such stories not only articulate widespread perceptions of risk, health care, and health policy, they also influence official and scientific approaches to the disease and its management. Notions that appear in narratives of who gets AIDS, how and why, are indicators of broad issues involving health beliefs, concerns, and needs.
An updated edition of this essential work.
Since its initial publication, Policing Desire has proved to be an unparalleled analysis of “the cacophony of voices which sounds through every institution of our society on the subject of AIDS.” For the third edition Simon Watney has provided a new preface, a compelling new concluding essay, and a directory for AIDS information that includes electronic resources.
“A far-reaching analysis of images of AIDS and homosexuality in the media. . . . In Policing Desire, Simon Watney called the media on its own game, and the media actually changed its coverage of AIDS and queer issues.” Voice Literary Supplement“Simon Watney’s Policing Desire is essential reading for anyone who wants to press the question of how the media represents AIDS . . . it will stand as a great work of criticism written from the trenches.” New York Native“A landmark work in AIDS analysis because of the combination of emotional urgency and analytical insight that it manifests.” American Book ReviewWinner of the Gustavus Myers Prize for the Study of Human RightsISBN 0-8166-3024-0 Cloth $39.95xx CUSAISBN 0-8166-3025-9 Paper $16.95x CUSA000 pages 0 x 0 MarchMedia Studies/Social TheoryPolicing DesirePornography, AIDS and the MediaThird EditionSimon WatneyAn updated edition of this essential work. Since its initial publication, Policing Desire has proved to be an unparalleled analysis of “the cacophony of voices which sounds through every institution of our society on the subject of AIDS.” For the third edition Simon Watney has provided a new preface, a compelling new concluding essay, and a directory for AIDS information that includes electronic resources.“A far-reaching analysis of images of AIDS and homosexuality in the media. . . . In Policing Desire, Simon Watney called the media on its own game, and the media actually changed its coverage of AIDS and queer issues.” Voice Literary Supplement“Simon Watney’s Policing Desire is essential reading for anyone who wants to press the question of how the media represents AIDS . . . it will stand as a great work of criticism written from the trenches.” New York Native“A landmark work in AIDS analysis because of the combination of emotional urgency and analytical insight that it manifests.” American Book ReviewSimon Watney is the director of the Red Hot AIDS Charitable Trust, which distributes funds internationally for HIV/AIDS prevention and education. Watney lives in London, England.Like other dangerous but pleasurable activities, such as downhill skiing and mountain climbing, engaging in unprotected sex implicitly involves the weighing of costs and benefits. Recognizing that the transmission of the AIDS virus is a consequence of private choices—rational and often informed—to engage in risky conduct, the authors employ tools of economic analysis to reassess the orthodox approach to AIDS by the public health community.
Standard predictions of the spread of AIDS, the authors argue, are questionable because they ignore rational behavioral response to the risk of infection. For the same reason, customary recommended public health measures, such as extensive testing for the AIDS virus, not only may be ineffective in controlling the spread of the disease but may actually cause it to spread more rapidly. The authors examine regulatory measures and proposals such as mandatory testing, criminal punishments, and immigration controls, as well as the subsidization of AIDS education and medical research, the social and fiscal costs of AIDS, the political economy of the government's response, and the interrelation of AIDS and fertility risk.
Neither liberal nor conservative, yet on the whole skeptical about governmental involvement in the epidemic, this book is certain to be controversial, but its injection of hard-headed economic thinking into the AIDS debate is long overdue. Although Private Choices and Public Health is accessible to the interested general reader, it will also capture the attention of economists—especially those involved in health issues—epidemiologists, public health workers, lawyers, and specialists in sexual behavior and drug addiction.
Risky Rhetoric: AIDS and the Cultural Practices of HIV Testing is the first book-length study of the rhetoric inherent in and surrounding HIV testing. In addition to providing a history of HIV testing in the United States from 1985 to the present, J. Blake Scott explains how faulty arguments about testing’s power and effects have promoted unresponsive and even dangerous testing practices for so-called healthy subjects as well as those deemed risky.A new afterword to the paperback edition discusses changes in testing technology, treatments, and public health responses in the last ten years. The ultimate goal of Risky Rhetoric is to offer strategies to policy makers, HIV educators and test counselors, and other rhetors for developing more responsive and egalitarian testing-related rhetorics and practices.
In the year 2000 the World Health Organization estimated that 85 percent of fifteen-year-olds in Botswana would eventually die of AIDS. In Saturday Is for Funerals we learn why that won’t happen.
Unity Dow and Max Essex tell the true story of lives ravaged by AIDS—of orphans, bereaved parents, and widows; of families who devote most Saturdays to the burial of relatives and friends. We witness the actions of community leaders, medical professionals, research scientists, and educators of all types to see how an unprecedented epidemic of death and destruction is being stopped in its tracks.
This book describes how a country responded in a time of crisis. In the true-life stories of loss and quiet heroism, activism and scientific initiatives, we learn of new techniques that dramatically reduce rates of transmission from mother to child, new therapies that can save lives of many infected with AIDS, and intricate knowledge about the spread of HIV, as well as issues of confidentiality, distributive justice, and human rights. The experiences of Botswana offer practical lessons along with the critical element of hope.
The AIDS epidemic has touched the lives of all Americans. An entire generation has been forced to redefine the way it looks at intimacy. Our very images of ourselves are being altered in the wake of this tragic illness. Yet we are only now beginning to discover the true extent of the change AIDS has wrought on American society. This massive challenge to public health is creating a fault line beneath our institutions, threatening to undermine much that we have taken for granted about the pillars of our culture. Looking out across the landscape of AIDS, we sense a fundamental shift in the way we think about ourselves, about others, and about government.
Shattered Mirrors is a deeply moving meditation on the impact AIDS is having on American consciousness. AIDS has become a moral lesson for our nation, Monroe Price argues, but not the narrow lesson about the dangers of deviancy that certain segments of society have professed. The AIDS epidemic challenges some of our most cherished ideas about individual autonomy, free expression, fairness, and confidence in the future. As this book points out, the ultimate legacy of the AIDS epidemic is far more than its terrible impact on the health of the citizenry.
As the disease grinds on, several traditional barriers between church and state, government and the media, citizen and consumer have begun to erode, while other barriers of class, race, and lifestyle are growing larger. It is too early to say whether these and similar changes will be permanent, but as long as there is uncertainty about how devastating AIDS will prove to be to our society, we will continue to debate its meaning and how we should respond to the threat it poses to all of us. In the long run, Price maintains, AIDS may force us to reexamine the role government should play in shaping our personal lives. More than this, it may well oblige us to redefine what we mean by identity and community in a democracy under siege.
As elected lawmakers confront complex social problems, they inevitably make choices to single out certain populations for government-sanctioned benefits or burdens. Why some groups and not others are targeted is the central question explored in this analysis of the congressional response to two related public health crises.
Weaving case studies from the wars against AIDS and drugs with an empirical analysis of fifteen years of congressional action on these issues, Mark Donovan shows how members of Congress balance problem solving with re-election concerns, paying particular attention to their need to craft compelling rationales for their actions. His analysis shows that, counterintuitive as it may seem, most target populations with negative public images are selected to receive benefits rather than burdens.
Demonstrating that it is possible to analyze simultaneously both policy rhetoric and policy outputs, this book shows how problem frames and policy decisions evolve through the dynamic interplay of conflict participants.
Unstable Frontiers was first published in 1994. Minnesota Archive Editions uses digital technology to make long-unavailable books once again accessible, and are published unaltered from the original University of Minnesota Press editions.
"John Erni's heartfelt and insightful book is a valuable contribution to the study of the cultural politics of AIDS."–Jeff Nunokawa Princeton University
The "cure" for AIDS: The search goes on, keeping pace with our belief that AIDS is incurable. How such a seeming paradox works-and how it may well work against the proper treatment of the disease-is the subject of Unstable Frontiers, a probing, critical look at the cultural politics behind the quest for a cure for AIDS.
This massive commercial and scientific project, John Erni suggests, actually hinges on our contradictory definitions of the disease as curable and incurable at the same time. Drawing on diverse sources, from popular media to medical literature to cultural theory, he shows how the dual discourse of curability/incurability frames the way we think about and act on issues of medical treatment for AIDS. His work makes a major advance in our understanding of—and, perhaps, humane response to—a national crisis.
In his critique of the logic and fantasies underlying the double definition of AIDS, Erni explores a broad range of issues: the scientific paradigm used to develop AZT; the politics of alternative treatment practices, of clinical drug trials, and of AIDS activism; and the notions of time and temporality operating in AIDS treatment science. He also addresses the problematic popular themes, such as "AIDS is invariably fatal" and "Knowledge = Cure."
Unique in its approach to a social and political issue still in the making, the book reveals how AIDS has challenged technomedicine's historical position of authority-and in doing so, recasts this challenge in a powerful and ultimately hopeful way.
John Nguyet Erni is assistant professor of communication at the University of New Hampshire. He has published essays on AIDS and is currently working on a book about AIDS in Thailand.
Ross Chambers argues that culture produces itself as civilized by denying the forms of collective violence and other traumatic experience that it cannot control. In the context of such denial, personal accounts of collective disaster can function as a form of counter-denial. By investigating a range of writing on AIDS, the First World War, and the Holocaust, Chambers shows how such writing produces a rhetorical effect of haunting, as it seeks to describe the reality of those experiences culture renders unspeakable.
Ross Chambers is Professor of Romance Languages at the University of Michigan. His other books includeFacing It: AIDS Diaries and the Death of the Author.
Delves deep into the archives that keep the history and work of AIDS activism alive
Serving as a vital supplement to the existing scholarship on AIDS activism of the 1980s and 1990s, ViralCultures is the first book to critically examine the archives that have helped preserve and create the legacy of those radical activities. Marika Cifor charts the efforts activists, archivists, and curators have made to document the work of AIDS activism in the United States and the infrastructure developed to maintain it, safeguarding the material for future generations to remember these social movements and to revitalize the epidemic’s past in order to remake the present and future of AIDS.
Drawing on large institutional archives such as the New York Public Library, as well as those developed by small, community-based organizations, this work of archival ethnography details how contemporary activists, artists, and curators use these records to build on the cultural legacy of AIDS activism to challenge the conditions of injustice that continue to undergird current AIDS crises. Cifor analyzes the various power structures through which these archives are mediated, demonstrating how ideology shapes the nature of archival material and how it is accessed and used. Positioning vital nostalgia as both a critical faculty and a generative practice, this book explores the act of saving this activist past and reanimating it in the digital age.
While many books, popular films, and major exhibitions have contributed to a necessary awareness of HIV and AIDS activism, Viral Cultures provides a crucial missing link by highlighting the powerful role of archives in making those cultural moments possible.
In the second wave of the HIV epidemic, those with the disease are more likely to be female, young, heterosexual, a racial minority, and rural-living than in the past. An understanding of the vastly different lives of this second wave of HIV-infected persons is vital to the development of user-friendly health care systems.
"You're the First One I've Told" offers a view into the lives of men and women infected with HIV. The experiences of twenty-five people living with this disease in rural eastern North Carolina serve as the foundation of this book, which also draws upon unique HIV/AIDS survey data collected by the authors and statistics from the Southeastern United States. This combination of qualitative and quantitative information provides readers with a vivid description of how people live with HIV/AIDS in the midst of their often traumatic lives, and why they manage their illness in ways that seem to contradict mainstream medical and social wisdom. The people interviewed represent a variety of races, genders, professions, family lives, and medical and social service access and utilization.
The Deep South has seen a 36 percent increase in AIDS cases while the rest of the nation has seen a 2 percent decline. Many of the underlying reasons for the disease’s continued spread in the region—ignorance about HIV, reluctance to get tested, non-adherence to treatment protocols, resistance to behavioral changes—remain unaddressed by policymakers.
In this extensively revised second edition, Kathryn Whetten and Brian Wells Pence present a rich discussion of twenty-five ethnographic life stories of people living with HIV in the South. Most importantly, they incorporate research from their recent quantitative study, “Coping with HIV/AIDS in the Southeast” (CHASE), which includes 611 HIV-positive patients from North Carolina, South Carolina, Georgia, Alabama, and Louisiana. This new edition continues to bring the participants’ voices to life while highlighting how the CHASE study confirmed many of the themes that originally emerged from the life histories. This is the first cohesive compilation of up-to-date evidence on the unique and difficult aspects of living with HIV in the Deep South.
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